| Literature DB >> 25367558 |
Marlies de Graaf1, Joan Ee Totté, Harmieke van Os-Medendorp, Wilco van Renselaar, Corstiaan C Breugem, Suzanne Gma Pasmans.
Abstract
BACKGROUND: Since beta blockers became the preferred treatment for infantile hemangiomas (IH), the number of patients eligible for treatment is increasing. Currently treatment of IH with beta blockers is mainly reserved for expert centers, where wait times are lengthening. This demonstrated the need for development of a more efficient and accessible way of providing care for children needing treatment for IH. An eHealth intervention, Hemangioma Treatment Plan (HTP), was developed to treat IH in regional hospitals with online support from an academic doctor.Entities:
Keywords: Internet; acceptance, usability; child; e-consulation, tertiary teledermatology; eHealth; infantile hemangioma; personal health record
Year: 2014 PMID: 25367558 PMCID: PMC4259911 DOI: 10.2196/resprot.3418
Source DB: PubMed Journal: JMIR Res Protoc ISSN: 1929-0748
Figure 1Screenshot of the Hemangioma Treatment Plan (in Dutch) showing the page where parents upload a photo of the hemangioma prior to consultation (fictitious patient in a test environment).
Figure 2Screenshot of the Hemangioma Treatment Plan (in Dutch) showing the page where parents fill in standardized questionnaires about side-effects prior to consultation (fictitious patient in a test environment).
Questions used to evaluate feasibility of the eHealth intervention.
| Variable | Dimension | Related questions | Example | |
| Parent questionnaire | Doctor questionnaire | |||
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| 1-6, 9, 11, 13 | 1-3, 6 | Parent: gender, age, education level, residence, treatment indication |
| Doctor: gender, age, medical specialism | ||||
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| 7e-f, 10, 16, 17h | 4c-d, 8, 10 | Treatment at the regional doctor corresponds with information given by academic center |
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| Perceived usefulness | 8, 17e, 19, 20a-c | 4e, 5, 9f | The e-consult function of the HTP is useful |
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| Perceived ease of use | 15, 17d, 17f-g, 17i-j, | 7, 9a-e, 9g-h, 12, 13a-d | The instruction letter of the HTP is understandable and clear |
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| Attitude | 7a-d, 7g, 12, 14, 17a-c, 18, 21 | 4a-b, 9i, 11, 14 | I feel positive about treatment by a regional doctor, with digital support from an expert |
Characteristics of the parents and regional doctors.
| Characteristics | Parents, n=25 | Regional doctors, n=15 | |
| Male-female ratio | 1:7.3 | 1:1.5 | |
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| Mean (SD) | 32.1 (4.1) | 44.9 (9.4) |
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| Median (range) | 32.0 (25-41) | 39.0 (36-62) |
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| Dermatologist |
| 7/15 (47) |
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| Pediatrician |
| 8/15 (53) |
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| Low | 0/25 (0) |
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| Moderate | 6/25 (24) |
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| High | 18/25 (72) |
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| Unknown | 1/25 (4) |
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| Cosmetic | 9/25 (36) |
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| Functional | 14/25 (56) |
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| Ulceration | 5/25 (20) |
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aIn some cases there were multiple indications for treatment.
Overview of the feasibility of the eHealth intervention sorted by variable.
| Feasibility | Parents | n/N (%) | Regional doctors | n/N (%) |
| Use | Use of different functions (e-consult, uploading photographs, questionnaires) (mean) | 19/25 (76) | Use of different functions (tertiary teledermatology) | 6/15 (40) |
| E-consults were adequately answered | 25/25 (100) | Informed enough about IH care | 14/15 (93) | |
| Treatment at regional doctor corresponds with information given by academic center (mean) | 15.7/25 (63) | Easy contact with tertiary caretaker | 7/8 (88) | |
| Perceived usefulness | HTP is useful | 24/25 (96) | HTP is useful | 13/15 (87) |
| Usefulness of different functions | 21.5/25 (86) | Usefulness of different functions (mean) | 12.7/15 and 13/14 (87, range 80-93) | |
| Usefulness of e-consult | 22/25 (88) | Usefulness of tertiary teledermatology | 9/12 (75) | |
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| Usefulness of e-consultation | 7/13 (54) | |
| Perceived ease of use | Instructions of the HTP | 23.5/25 (94) | Instructions of the HTP | 11.5/15 (77) |
| The HTP is easy to use | 19/25 (76) | The HTP is easy to use | 8/15 (53) | |
| Technical problems | 7/25 (28) | Technical problems | 11/15 (73) | |
| Attitude | Positive about treatment at secondary caretaker | 22/25 (88) | Positive about treatment at secondary caretaker | 15/15 (100) |
| Positive about usage of HTP | 23/25 (92) | Positive about usage of HTP | 14/15 (93) | |
| Worth the time investment | 24/25 (96) | Worth the time investment | 7/15 (47) | |
| More involved in care | 18/25 (72) |
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