Literature DB >> 25305541

Parent experiences raising young people with type 1 diabetes and celiac disease.

Kerri Erickson1, Donna Freeborn2, Susanne Olsen Roper3, Barbara Mandleco4, Ashley Anderson5, Tina Dyches6.   

Abstract

Authors of this qualitative descriptive study interviewed 30 parents concerning their experiences raising a child or adolescent with type 1 diabetes (T1D) and celiac disease (CD). Analysis revealed six themes: (a) health complications of T1D, (b) challenges of daily disease management, (c) financial concerns, (d) the young person's emotional/mental health, (e) experiences with healthcare providers, and (f) experiences with people outside the family and at school. Results suggest nurses need to be sensitive to challenges young people living with T1D and CD and their parents face, conduct ongoing assessments, and provide time during interactions to adequately address concerns.
Copyright © 2015 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Celiac disease; Child/adolescent health; Chronic illness; Qualitative; Type 1 diabetes

Mesh:

Year:  2014        PMID: 25305541     DOI: 10.1016/j.pedn.2014.09.011

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  7 in total

Review 1.  Assessment of patient concerns: a review.

Authors:  Jemima Nilan; Deepak Doltani; Dominic Harmon
Journal:  Ir J Med Sci       Date:  2018-01-24       Impact factor: 1.568

2.  Mothers' Experiences of Maze Path of Type 1 Diabetes Diagnosis in Children.

Authors:  Maryam Khandan; Batool Tirgari; Farokh Abazari; Mohammad Ali Cheraghi
Journal:  Ethiop J Health Sci       Date:  2018-09

3.  Characterising common challenges faced by parental caregivers of children with type 1 diabetes mellitus in mainland China: a qualitative study.

Authors:  Huijuan Tong; Feng Qiu; Ling Fan
Journal:  BMJ Open       Date:  2022-01-11       Impact factor: 2.692

4.  Recommendations for Clinical Decision-making in Children with Type 1 Diabetes and Celiac Disease: Type 1 Diabetes and Celiac Disease Joint Working Group Report

Authors:  Şükrü Hatun; Buket Dalgıç; Damla Gökşen; Sema Aydoğdu; Şenay Savaş Erdeve; Zarife Kuloğu; Yaşar Doğan; Zehra Aycan; Gül Yeşiltepe Mutlu; Nuray Uslu Kızılkan; Alev Keser; Ömer Faruk Beşer; Mehmet Nuri Özbek; Aysun Bideci; Deniz Ertem; Olcay Evliyaoğlu; Beyza Eliuz Tipici; Tuğba Gökçe; Serra Muradoğlu; Orhun Çığ Taşkın; Tuğba Koca; Filiz Tütüncüler; Firdevs Baş; Feyza Darendeliler; Mukadder Ayşe Selimoğlu
Journal:  J Clin Res Pediatr Endocrinol       Date:  2021-08-18

5.  A Quantitative Assessment of Gluten Cross-contact in the School Environment for Children With Celiac Disease.

Authors:  Vanessa M Weisbrod; Jocelyn A Silvester; Catherine Raber; William Suslovic; Shayna S Coburn; Blair Raber; Joyana McMahon; Amy Damast; Zachary Kramer; Benny Kerzner
Journal:  J Pediatr Gastroenterol Nutr       Date:  2020-03       Impact factor: 3.288

6.  Lived Experiences of Mothers with Diabetic Children from the Transfer of Caring Role.

Authors:  Maryam Khandan; Farokh Abazari; Batool Tirgari; Mohammad Ali Cheraghi
Journal:  Int J Community Based Nurs Midwifery       Date:  2018-01

7.  The Experience of a Gluten-free Diet in Children with Type 1 Diabetes and Celiac Disease.

Authors:  Rohan Kakkar; Alex Fung; Collin Barker; Alice Foster; Brenden E Hursh
Journal:  J Can Assoc Gastroenterol       Date:  2021-06-18
  7 in total

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