Literature DB >> 25211730

Promoting ethical research with American Indian and Alaska Native people living in urban areas.

Nicole P Yuan1, Jami Bartgis, Deirdre Demers.   

Abstract

Most health research with American Indian and Alaska Native (AI/AN) people has focused on tribal communities on reservation lands. Few studies have been conducted with AI/AN people living in urban settings despite their documented health disparities compared with other urban populations. There are unique considerations for working with this population. Engaging key stakeholders, including urban Indian health organization leaders, tribal leaders, research scientists and administrators, and policymakers, is critical to promoting ethical research and enhancing capacity of urban AI/AN communities. Recommendations for their involvement may facilitate an open dialogue and promote the development of implementation strategies. Future collaborations are also necessary for establishing research policies aimed at improving the health of the urban AI/AN population.

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Year:  2014        PMID: 25211730      PMCID: PMC4202957          DOI: 10.2105/AJPH.2014.302027

Source DB:  PubMed          Journal:  Am J Public Health        ISSN: 0090-0036            Impact factor:   9.308


  21 in total

Review 1.  Health policy-makers' perceptions of their use of evidence: a systematic review.

Authors:  Simon Innvaer; Gunn Vist; Mari Trommald; Andrew Oxman
Journal:  J Health Serv Res Policy       Date:  2002-10

2.  The Indian Family Wellness project: an application of the tribal participatory research model.

Authors:  Philip A Fisher; Thomas J Ball
Journal:  Prev Sci       Date:  2002-09

3.  Health and aging of urban American Indians.

Authors:  B J Kramer
Journal:  West J Med       Date:  1992-09

4.  Urban Indian voices: a community-based participatory research health and needs assessment.

Authors:  Chad V Johnson; Jami Bartgis; Jody A Worley; Chad M Hellman; Russell Burkhart
Journal:  Am Indian Alsk Native Ment Health Res       Date:  2010

5.  A nationwide population-based study identifying health disparities between American Indians/Alaska Natives and the general populations living in select urban counties.

Authors:  Mei L Castor; Michael S Smyser; Maile M Taualii; Alice N Park; Shelley A Lawson; Ralph A Forquera
Journal:  Am J Public Health       Date:  2006-03-29       Impact factor: 9.308

Review 6.  A review of improved ethical practices in environmental and public health research: case examples from native communities.

Authors:  Dianne Quigley
Journal:  Health Educ Behav       Date:  2006-04

Review 7.  Review of community-based research: assessing partnership approaches to improve public health.

Authors:  B A Israel; A J Schulz; E A Parker; A B Becker
Journal:  Annu Rev Public Health       Date:  1998       Impact factor: 21.981

8.  Attitudes of urban American Indians and Alaska Natives regarding participation in research.

Authors:  Dedra Buchwald; Veronica Mendoza-Jenkins; Calvin Croy; Helen McGough; Marjorie Bezdek; Paul Spicer
Journal:  J Gen Intern Med       Date:  2006-06       Impact factor: 5.128

9.  Incorporating traditional healing into an urban American Indian health organization: a case study of community member perspectives.

Authors:  William E Hartmann; Joseph P Gone
Journal:  J Couns Psychol       Date:  2012-06-25

10.  The utilisation of health research in policy-making: concepts, examples and methods of assessment.

Authors:  Stephen R Hanney; Miguel A Gonzalez-Block; Martin J Buxton; Maurice Kogan
Journal:  Health Res Policy Syst       Date:  2003-01-13
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  14 in total

Review 1.  Responsible Research With Urban American Indians and Alaska Natives.

Authors:  Rosalina D James; Kathleen M West; Katrina G Claw; Abigail EchoHawk; Leah Dodge; Adrian Dominguez; Maile Taualii; Ralph Forquera; Kenneth Thummel; Wylie Burke
Journal:  Am J Public Health       Date:  2018-10-25       Impact factor: 9.308

2.  Beyond the Belmont Principles: A Community-Based Approach to Developing an Indigenous Ethics Model and Curriculum for Training Health Researchers Working with American Indian and Alaska Native Communities.

Authors:  Myra Parker; Cynthia Pearson; Caitlin Donald; Celia B Fisher
Journal:  Am J Community Psychol       Date:  2019-07-29

3.  Recruitment and retention in randomized controlled trials with urban American Indian/Alaska Native adolescents: Challenges and lessons learned.

Authors:  Daniel L Dickerson; Jennifer Parker; Carrie L Johnson; Ryan A Brown; Elizabeth J D'Amico
Journal:  Clin Trials       Date:  2020-11-24       Impact factor: 2.486

4.  Virtual Research with Urban Native Young Women: Cautionary Tales in the Time of a Pandemic.

Authors:  Nicole R Tuitt; Umit Shrestha; Nicole Reed; Roland S Moore; Michelle Sarche; Carol E Kaufman
Journal:  Prog Community Health Partnersh       Date:  2022

5.  Women finding the way: American Indian women leading intervention research in Native communities.

Authors:  Maria Yellow Horse Brave Heart; Josephine Chase; Jennifer Elkins; Jennifer Martin; Jennifer Nanez; Jennifer Mootz
Journal:  Am Indian Alsk Native Ment Health Res       Date:  2016

6.  Urban American Indian and Alaska Native Data Sovereignty: Ethical Issues.

Authors:  Emily A Haozous; Juliet Lee; Claradina Soto
Journal:  Am Indian Alsk Native Ment Health Res       Date:  2021

7.  Recommendations to researchers for aiding in increasing American Indian representation in genetic research and personalized medicine.

Authors:  Dana M Carroll; Carol Hernandez; Greg Braaten; Ellen Meier; Pamala Jacobson; Abbie Begnaud; Erin McGonagle; Linda Bane Frizzell; Dorothy K Hatsukami
Journal:  Per Med       Date:  2020-12-17       Impact factor: 2.512

8.  Identifying Relative Changes in Social Risk Factors: An Analytic Approach.

Authors:  Stanley Xu; Glenn K Goodrich; Kelly R Moore; Spero M Manson; Laura M Gottlieb; Danielle Hessler; Emily B Schroeder; John F Steiner
Journal:  Med Care       Date:  2021-02-01       Impact factor: 3.178

9.  Rural and Urban American Indian and Alaska Native Veteran Health Disparities: a Population-Based Study.

Authors:  Carol E Kaufman; Nancy L Asdigian; Ursula Running Bear; Janette Beals; Spero M Manson; Nancy Dailey; Byron Bair; Jay H Shore
Journal:  J Racial Ethn Health Disparities       Date:  2020-03-18

10.  A randomized clinical trial of an interactive voice response and text message intervention for individuals with hypertension.

Authors:  Emily B Schroeder; Kelly R Moore; Spero M Manson; Megan A Baldwin; Glenn K Goodrich; Allen S Malone; Lisa E Pieper; Stanley Xu; Meredith P Fort; Linda Son-Stone; David Johnson; John F Steiner
Journal:  J Clin Hypertens (Greenwich)       Date:  2020-06-09       Impact factor: 3.738

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