Howard L Taras1, Michael W Kalichman2, Gery Schulteis3, Jill Dumbauld1, Yvonne Bell4, Fe Fidelis Seligman5, Kathy D West6. 1. Clinical & Translational Research Institute, University of California-San Diego, La Jolla, CA, USA. 2. Research Ethics Program, University of California-San Diego, La Jolla, CA, USA. 3. Research & Development, VA San Diego Healthcare System, Department of Anesthesiology, University of California-San Diego, La Jolla, CA, USA. 4. Clinicas de Salud del Pueblo, Inc., Brawley, CA, USA. 5. Operation Samahan, Inc, San Diego, CA, USA. 6. Epilepsy Foundation of San Diego County, San Diego, CA, USA.
Abstract
BACKGROUND: Members of the public are increasingly engaged in health-service and biomedical research and provide input into the content of research, design and data sharing. As there is variation among different communities on how research is perceived, to engage all sectors of the general public research institutions need to customize their approach. OBJECTIVE: This paper explores how research institutions and community leaders can partner to determine the best ways to engage different sectors of the public in research. DESIGN: Following a literature review, a research institution engaged with four different sectors of the public through their respective representative community-based organizations (CBOs) by interviews with leaders, community member focus groups and a joint project. SETTING: San Diego and Imperial Counties, California, United States of America (USA). CONCLUSION: Before embarking on more specific research projects, investigators can gain valuable insights about different communities' attitudes to, and understanding of, health services and biomedical research by interacting directly with members of the community, collaborating with community leaders, and jointly identifying steps of engagement tailored to the community.
BACKGROUND: Members of the public are increasingly engaged in health-service and biomedical research and provide input into the content of research, design and data sharing. As there is variation among different communities on how research is perceived, to engage all sectors of the general public research institutions need to customize their approach. OBJECTIVE: This paper explores how research institutions and community leaders can partner to determine the best ways to engage different sectors of the public in research. DESIGN: Following a literature review, a research institution engaged with four different sectors of the public through their respective representative community-based organizations (CBOs) by interviews with leaders, community member focus groups and a joint project. SETTING: San Diego and Imperial Counties, California, United States of America (USA). CONCLUSION: Before embarking on more specific research projects, investigators can gain valuable insights about different communities' attitudes to, and understanding of, health services and biomedical research by interacting directly with members of the community, collaborating with community leaders, and jointly identifying steps of engagement tailored to the community.
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