Literature DB >> 25085323

Patient-centered guideline development: best practices can improve the quality and impact of guidelines.

Benjamin R Roman1, Jordyn Feingold2.   

Abstract

Guideline development is improved when diverse stakeholders, including patients, specialists, and experts, share power in the process, from defining the scope of the question to the final stages of review. The Institute of Medicine (IOM) and Guidelines International Network (G-I-N) have each released best-practice standards for clinical guidelines that place health care consumers at the forefront of guideline development. The AAO-HNSF has placed a growing emphasis on consumer engagement in its latest guideline development manual and has developed clear, multifaceted infrastructural approaches to identify and utilize consumers in guideline development and guideline review. This article reviews those recommendations and emphasizes that patient-centered guideline development can improve the quality and impact of medical guidelines. © American Academy of Otolaryngology—Head and Neck Surgery Foundation 2014.

Entities:  

Keywords:  guideline development; patient-centered guidelines

Mesh:

Year:  2014        PMID: 25085323     DOI: 10.1177/0194599814544878

Source DB:  PubMed          Journal:  Otolaryngol Head Neck Surg        ISSN: 0194-5998            Impact factor:   3.497


  8 in total

Review 1.  Defining value-driven care in head and neck oncology.

Authors:  Benjamin R Roman; Mahmoud I Awad; Snehal G Patel
Journal:  Curr Oncol Rep       Date:  2015-01       Impact factor: 5.075

2.  Dental caries prevention in children and adolescents: a systematic quality assessment of clinical practice guidelines.

Authors:  Andrea Seiffert; Carlos Zaror; Claudia Atala-Acevedo; Andrea Ormeño; María José Martínez-Zapata; Pablo Alonso-Coello
Journal:  Clin Oral Investig       Date:  2018-03-09       Impact factor: 3.573

Review 3.  Patient and Public Involvement in the Development of Healthcare Guidance: An Overview of Current Methods and Future Challenges.

Authors:  Ahmed Rashid; Victoria Thomas; Toni Shaw; Gillian Leng
Journal:  Patient       Date:  2017-06       Impact factor: 3.883

4.  What are the Relevant Outcomes of the Periodic Health Examination? A Comparison of Citizens' and Experts' Ratings.

Authors:  Isolde Sommer; Viktoria Titscher; Monika Szelag; Gerald Gartlehner
Journal:  Patient Prefer Adherence       Date:  2021-01-18       Impact factor: 2.711

5.  Adapting medical guidelines to be patient-centered using a patient-driven process for individuals with sickle cell disease and their caregivers.

Authors:  Robert Michael Cronin; Tilicia L Mayo-Gamble; Sarah-Jo Stimpson; Sherif M Badawy; Lori E Crosby; Jeannie Byrd; Emmanuel J Volanakis; Adetola A Kassim; Jean L Raphael; Velma M Murry; Michael R DeBaun
Journal:  BMC Hematol       Date:  2018-06-08

6.  Patient and caregiver perspectives on guideline adherence: the case of endocrine and bone health recommendations for Duchenne muscular dystrophy.

Authors:  Brian Denger; Kathi Kinnett; Ann Martin; Sean Grant; Courtney Armstrong; Dmitry Khodyakov
Journal:  Orphanet J Rare Dis       Date:  2019-08-20       Impact factor: 4.123

Review 7.  Value and Quality of Care in Head and Neck Oncology.

Authors:  Robert P Takes; Gyorgy B Halmos; John A Ridge; Paolo Bossi; Matthias A W Merkx; Alessandra Rinaldo; Alvaro Sanabria; Ludi E Smeele; Antti A Mäkitie; Alfio Ferlito
Journal:  Curr Oncol Rep       Date:  2020-07-10       Impact factor: 5.075

8.  Practical Considerations in Using Online Modified-Delphi Approaches to Engage Patients and Other Stakeholders in Clinical Practice Guideline Development.

Authors:  Dmitry Khodyakov; Sean Grant; Brian Denger; Kathi Kinnett; Ann Martin; Holly Peay; Ian Coulter
Journal:  Patient       Date:  2020-02       Impact factor: 3.883

  8 in total

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