Literature DB >> 25070167

Ethics and etiquette in neonatal intensive care.

Annie Janvier1, John Lantos2.   

Abstract

When parents voice their dissatisfaction with the neonatal intensive care unit (NICU), it is often not because they think their baby has not received good medical care. Instead, it is often because their needs have not been addressed. Policy statements and pedagogy alike urge professionals to be empathetic, compassionate, honest, and caring. However, these theoretical concepts are generally endorsed without practical suggestions on how to achieve these goals. Negative encounters for parents are generally not about the caregivers' technical expertise or knowledge and often reflect a failure in a different domain. Simple rules of etiquette are not always applied in a busy NICU or in the hospital at large. The investigators of the POST (Parents from the Other Side of Treatment) group are health care professionals who regularly communicate with parents of sick children and who were also "NICU parents." We have developed an etiquette-based systematic approach to communication with families in the NICU. These specific and practical recommendations may help parents feel well treated and respected as they go through a challenging NICU stay.

Entities:  

Mesh:

Year:  2014        PMID: 25070167     DOI: 10.1001/jamapediatrics.2014.527

Source DB:  PubMed          Journal:  JAMA Pediatr        ISSN: 2168-6203            Impact factor:   16.193


  9 in total

1.  Catch the moment: The power of turning mistakes into 'precious' learning opportunities.

Authors:  Emanuela Ferretti; Kristina Rohde; Gregory P Moore; Thierry Daboval
Journal:  Paediatr Child Health       Date:  2018-08-14       Impact factor: 2.253

2.  Counselling and management for anticipated extremely preterm birth.

Authors:  Brigitte Lemyre; Gregory Moore
Journal:  Paediatr Child Health       Date:  2017-08-11       Impact factor: 2.253

Review 3.  Counseling parents of premature neonates on neuroimaging findings.

Authors:  Sarah M Bernstein; Madison Canfora; Monica E Lemmon
Journal:  Semin Perinatol       Date:  2021-08-20       Impact factor: 3.300

Review 4.  Palliative care in neonatal neurology: robust support for infants, families and clinicians.

Authors:  M E Lemmon; M Bidegain; R D Boss
Journal:  J Perinatol       Date:  2015-12-10       Impact factor: 2.521

5.  Family-Centered Care for Children and Families Impacted by Neonatal Seizures: Advice From Parents.

Authors:  Monica E Lemmon; Hannah C Glass; Renée A Shellhaas; Mary Carol Barks; Simran Bansal; Dana Annis; Jennifer L Guerriero; Betsy Pilon; Courtney J Wusthoff; Taeun Chang; Janet S Soul; Catherine J Chu; Cameron Thomas; Shavonne L Massey; Nicholas S Abend; Stephanie Rau; Elizabeth E Rogers; Linda S Franck
Journal:  Pediatr Neurol       Date:  2021-07-30       Impact factor: 3.372

6.  "It scares me to know that we might not have been there!": a qualitative study into the experiences of parents of seriously ill children participating in ethical case discussions.

Authors:  Reidun Førde; Trude Linja
Journal:  BMC Med Ethics       Date:  2015-06-06       Impact factor: 2.652

7.  Improving Staff Knowledge and Attitudes Toward Providing Psychosocial Support to NICU Parents Through an Online Education Course.

Authors:  Sue L Hall; Mobolaji E Famuyide; Sage N Saxton; Tiffany A Moore; Sara Mosher; Keira Sorrells; Cheryl A Milford; Jenene Craig
Journal:  Adv Neonatal Care       Date:  2019-12       Impact factor: 1.968

Review 8.  Recommendations for enhancing psychosocial support of NICU parents through staff education and support.

Authors:  S L Hall; J Cross; N W Selix; C Patterson; L Segre; R Chuffo-Siewert; P A Geller; M L Martin
Journal:  J Perinatol       Date:  2015-12       Impact factor: 2.521

9.  The COPE-Trial-Communicating prognosis to parents in the neonatal ICU: Optimistic vs. PEssimistic: study protocol for a randomized controlled crossover trial using two different scripted video vignettes to explore communication preferences of parents of preterm infants.

Authors:  Fiona A Forth; Florian Hammerle; Jochem König; Michael S Urschitz; Philipp Neuweiler; Eva Mildenberger; André Kidszun
Journal:  Trials       Date:  2021-12-06       Impact factor: 2.279

  9 in total

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