Literature DB >> 25026994

Through the patient's eyes: the value of a comprehensive brain tumor center.

Adam M Robin1, Tobias Walbert, Tom Mikkelsen, Steven N Kalkanis, Jack Rock, Ian Lee, Mark L Rosenblum.   

Abstract

Since the founding of the Tumor Section of the American Association of Neurological Surgeons (AANS) and the Congress of Neurological Surgeons (CNS) in 1984 much in neurosurgical oncology has changed. More than 40,000 papers have been published on glioma since the arrival of the AANS/CNS Tumor Section. Increasingly, research is focusing on more patient-centered care and quality of life. Preliminary work suggests that a greater emphasis on the patient and caregiver's experience of disease is crucial. Also, the provision of hope and appropriate information and communication with health care providers helps to lessen anxiety and promote improved quality of life. Lastly, our patients need a mechanism for continued symptom control and psychosocial support throughout their experience of this disease. An excellent venue for providing these facets of neurooncological patient care is the multidisciplinary brain tumor board and symptom management team. Herein, we present the philosophy and practice of the Hermelin Brain Tumor Center at the Henry Ford Health System as one type of approach to caring for the patient with a malignant glioma. The authors are aware of several brain tumor centers that share our philosophy and approach to patient care. Our comments are not meant to be exclusive to our experience and should be interpreted as representative of the growing movement in neurosurgery to provide comprehensive, multidisciplinary, patient-centered care.

Entities:  

Mesh:

Year:  2014        PMID: 25026994     DOI: 10.1007/s11060-014-1494-2

Source DB:  PubMed          Journal:  J Neurooncol        ISSN: 0167-594X            Impact factor:   4.130


  47 in total

1.  Which terminally ill cancer patients in the United Kingdom receive care from community specialist palliative care nurses?

Authors:  J Addington-Hall; D Altmann
Journal:  J Adv Nurs       Date:  2000-10       Impact factor: 3.187

Review 2.  Neuro-oncology and palliative care: a challenging interface.

Authors:  Esther Lin; Mark A Rosenthal; Brian H Le; Peter Eastman
Journal:  Neuro Oncol       Date:  2012-09       Impact factor: 12.300

3.  Association between a name change from palliative to supportive care and the timing of patient referrals at a comprehensive cancer center.

Authors:  Shalini Dalal; Shana Palla; David Hui; Linh Nguyen; Ray Chacko; Zhijun Li; Nada Fadul; Cheryl Scott; Veatra Thornton; Brenda Coldman; Yazan Amin; Eduardo Bruera
Journal:  Oncologist       Date:  2011-01-06

4.  Caring for someone with high-grade glioma: a time of rapid change for caregivers.

Authors:  Ruth McConigley; Georgia Halkett; Elizabeth Lobb; Anna Nowak
Journal:  Palliat Med       Date:  2010-02-01       Impact factor: 4.762

5.  Thromboembolism in patients with high-grade glioma.

Authors:  J F Quevedo; J C Buckner; J L Schmidt; R P Dinapoli; J R O'Fallon
Journal:  Mayo Clin Proc       Date:  1994-04       Impact factor: 7.616

6.  A study of patients with a primary malignant brain tumour and their carers: symptoms and access to services.

Authors:  Anne Arber; Sara Faithfull; Marek Plaskota; Caroline Lucas; Kay de Vries
Journal:  Int J Palliat Nurs       Date:  2010-01

7.  Proper information during the surgical decision-making process lowers the anxiety of patients with high-grade gliomas.

Authors:  José L Díaz; Pilar Barreto; José M Gallego; Javier Barbero; Ramón Bayés; Juan A Barcia
Journal:  Acta Neurochir (Wien)       Date:  2009-02-18       Impact factor: 2.216

Review 8.  Management of venous thromboembolism in patients with primary and metastatic brain tumors.

Authors:  David E Gerber; Stuart A Grossman; Michael B Streiff
Journal:  J Clin Oncol       Date:  2006-03-10       Impact factor: 44.544

9.  The creation of protection and hope in patients with malignant brain tumours.

Authors:  P Salander; T Bergenheim; R Henriksson
Journal:  Soc Sci Med       Date:  1996-04       Impact factor: 4.634

Review 10.  The role of surgical resection in the management of newly diagnosed brain metastases: a systematic review and evidence-based clinical practice guideline.

Authors:  Steven N Kalkanis; Douglas Kondziolka; Laurie E Gaspar; Stuart H Burri; Anthony L Asher; Charles S Cobbs; Mario Ammirati; Paula D Robinson; David W Andrews; Jay S Loeffler; Michael McDermott; Minesh P Mehta; Tom Mikkelsen; Jeffrey J Olson; Nina A Paleologos; Roy A Patchell; Timothy C Ryken; Mark E Linskey
Journal:  J Neurooncol       Date:  2009-12-04       Impact factor: 4.130

View more
  4 in total

Review 1.  Determining priority signs and symptoms for use as clinical outcomes assessments in trials including patients with malignant gliomas: Panel 1 Report.

Authors:  Terri S Armstrong; Allison M Bishof; Paul D Brown; Martin Klein; Martin J B Taphoorn; Christina Theodore-Oklota
Journal:  Neuro Oncol       Date:  2016-03       Impact factor: 12.300

2.  Association between hospital volume and receipt of treatment and survival in patients with glioblastoma.

Authors:  Matthew Koshy; David J Sher; Michael Spiotto; Zain Husain; Herb Engelhard; Konstantin Slavin; Martin K Nicholas; Ralph R Weichselbaum; Chad Rusthoven
Journal:  J Neurooncol       Date:  2017-08-23       Impact factor: 4.130

3.  [Patient-centered care. Improvement of communication between university medical centers and general practitioners for patients in neuro-oncology].

Authors:  M Renovanz; N Keric; C Richter; A Gutenberg; A Giese
Journal:  Nervenarzt       Date:  2015-12       Impact factor: 1.214

4.  Effect of anesthesia on the outcome of high-grade glioma patients undergoing supratentorial resection: study protocol for a pragmatic randomized controlled trial.

Authors:  Jia Dong; Dexiang Wang; Huizhong Sun; Min Zeng; Xiaoyuan Liu; Xiang Yan; Ruowen Li; Shu Li; Yuming Peng
Journal:  Trials       Date:  2022-09-27       Impact factor: 2.728

  4 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.