Literature DB >> 24986308

Pediatric cancer and the internet: exploring the gap in doctor-parents communication.

Martí Domínguez1, Lucía Sapiña.   

Abstract

The aim of this study is to examine the use of the Internet to obtain information by parents of children with cancer and how pediatric oncologists understand this new scenario and the shifting relationship between patients and doctors. With this goal in mind, we conducted two surveys: one was answered by 110 parents of pediatric cancer patients and another one was answered by 74 oncologists, members of the Spanish Society of Pediatric Hematology and Oncology (SEHOP). Less than half of the surveyed parents (44.5%) looked for information on the Internet, while 55.5% preferred not to do it. In addition, 87.3% of the parents explain that their doctors did not recommend any Internet resources. Among the oncologists' sample, 68.9% of the respondents did not recommend seeking information on the Internet, but they would consider it desirable for the patients to be guided in the search (82.4%). These results show some degree of dissent between the parents' needs and the oncologists' attitudes. Higher interaction between these two agents would be recommended in order to achieve better information and cooperation in the therapeutic protocols.

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Year:  2015        PMID: 24986308     DOI: 10.1007/s13187-014-0700-4

Source DB:  PubMed          Journal:  J Cancer Educ        ISSN: 0885-8195            Impact factor:   2.037


  24 in total

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Authors:  G K Berland; M N Elliott; L S Morales; J I Algazy; R L Kravitz; M S Broder; D E Kanouse; J A Muñoz; J A Puyol; M Lara; K E Watkins; H Yang; E A McGlynn
Journal:  JAMA       Date:  2001 May 23-30       Impact factor: 56.272

2.  Quality of health information on the Internet in pediatric neuro-oncology.

Authors:  Darren R Hargrave; Ursula A Hargrave; Eric Bouffet
Journal:  Neuro Oncol       Date:  2006-03-02       Impact factor: 12.300

3.  Everyday health and the internet: a mediated health perspective on health information seeking.

Authors:  Joëlle Kivits
Journal:  Sociol Health Illn       Date:  2009-02-11

4.  Cancer information sources used by patients to inform and influence treatment decisions.

Authors:  Matthew C Walsh; Amy Trentham-Dietz; Tracy A Schroepfer; Douglas J Reding; Bruce Campbell; Mary L Foote; Stephanie Kaufman; Morgan Barrett; Patrick L Remington; James F Cleary
Journal:  J Health Commun       Date:  2010-06

5.  American oncologists' views of internet use by cancer patients: a mail survey of American Society of Clinical Oncology members.

Authors:  Paul R Helft; Fay Hlubocky; Christopher K Daugherty
Journal:  J Clin Oncol       Date:  2003-03-01       Impact factor: 44.544

6.  Motives of cancer patients for using the Internet to seek social support.

Authors:  T Yli-Uotila; A Rantanen; T Suominen
Journal:  Eur J Cancer Care (Engl)       Date:  2013-01-16       Impact factor: 2.520

7.  The determinants and consequences of information seeking among cancer patients.

Authors:  Ronald Czaja; Clara Manfredi; Jammie Price
Journal:  J Health Commun       Date:  2003 Nov-Dec

8.  Producing genetic knowledge and citizenship through the Internet: mothers, pediatric genetics, and cybermedicine.

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Journal:  Sociol Health Illn       Date:  2008-01

9.  Use of information resources by patients with cancer and their companions.

Authors:  Ethan M Basch; Howard T Thaler; Weiji Shi; Sofia Yakren; Deborah Schrag
Journal:  Cancer       Date:  2004-06-01       Impact factor: 6.860

Review 10.  The doctor, the patient and the world-wide web: how the internet is changing healthcare.

Authors:  J A Powell; M Darvell; J A M Gray
Journal:  J R Soc Med       Date:  2003-02       Impact factor: 18.000

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  5 in total

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Authors:  Elizabeth A Gage-Bouchard; Susan LaValley; Molli Warunek; Lynda Kwon Beaupin; Michelle Mollica
Journal:  J Cancer Educ       Date:  2018-12       Impact factor: 2.037

3.  "Others Like Me". An Approach to the Use of the Internet and Social Networks in Adolescents and Young Adults Diagnosed with Cancer.

Authors:  Martí Domínguez; Lucía Sapiña
Journal:  J Cancer Educ       Date:  2017-12       Impact factor: 2.037

4.  Co-creation of a digital tool for the empowerment of parents of children with physical disabilities.

Authors:  M W Alsem; K M van Meeteren; M Verhoef; M J W M Schmitz; M J Jongmans; J M A Meily-Visser; M Ketelaar
Journal:  Res Involv Engagem       Date:  2017-12-11

5.  Longitudinal Changes of COVID-19 Symptoms in Social Media: Observational Study.

Authors:  Sarah Sarabadani; Gaurav Baruah; Yan Fossat; Jouhyun Jeon
Journal:  J Med Internet Res       Date:  2022-02-16       Impact factor: 5.428

  5 in total

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