Mary Oschwald1, Sandy Leotti2, Dora Raymaker3, Marsha Katz4, Rebecca Goe5, Mark Harviston2, Annie Wallington6, Lisa Howard7, Leanne Beers5, Christina Nicolaidis8, Susan Robinson-Whelen9, Rosemary B Hughes5, Emily Lund5, Laurie E Powers2. 1. Regional Research Institute for Human Services, School of Social Work, Portland State University, Portland, OR, USA. Electronic address: oschwald@pdx.edu. 2. Regional Research Institute for Human Services, School of Social Work, Portland State University, Portland, OR, USA. 3. Regional Research Institute for Human Services, School of Social Work, Portland State University, Portland, OR, USA; Autistic Self Advocacy Network, Portland, OR, USA; Self-Advocacy Coalition of Oregon (formerly Self Advocates as Leaders), Portland, OR, USA. 4. The Rural Institute, University of Montana, Missoula, MT, USA; Missoula People First, Missoula, MT, USA. 5. The Rural Institute, University of Montana, Missoula, MT, USA. 6. Self-Advocacy Coalition of Oregon (formerly Self Advocates as Leaders), Portland, OR, USA. 7. Bitterroot Valley People First Aktion Club, Hamilton, MT, USA. 8. Regional Research Institute for Human Services, School of Social Work, Portland State University, Portland, OR, USA; Department of Medicine, Oregon Health & Science University, USA; Department of Public Health & Preventive Medicine, Oregon Health & Science University, OR, USA. 9. Center for Research on Women with Disabilities, Baylor College of Medicine, Houston, TX, USA.
Abstract
BACKGROUND: Audio computer-assisted self-interviews (ACASIs) have safely and effectively obtained sensitive research data from the general public and have been recommended for use with people with disabilities. However, few studies have used ACASIs with people with disabilities and ACASIs have not been used to investigate the relationship between disability, interpersonal violence (IPV), and physical and psychological health among people with developmental disabilities (PWDD). OBJECTIVE: We developed an accessible ACASI specifically designed to allow PWDD to answer questions independently, while privately and securely collecting anonymous data related to their disability, IPV experiences, and physical and psychological health. METHODS: We used a safety protocol to apply community based participatory research (CBPR) principles and an iterative process to create, test, and administer a cross-sectional ACASI survey to 350 adults with developmental disabilities in urban and rural locales. RESULTS: Most participants completed the ACASI independently and reported that its accessibility features allowed them to do so. Most also agreed that the ACASI was easy to use, its questions were easy to understand, and that they would prefer using an ACASI to answer IPV and health-related questions rather than in a face-to-face interview. The majority agreed that health and safety were critical issues to address. CONCLUSIONS: ACASI technology has the potential to maximize the independent and private participation of PWDD in research on sensitive topics. We recommend further exploration into accessibility options for ACASI technology, including hardware and Internet applications.
BACKGROUND: Audio computer-assisted self-interviews (ACASIs) have safely and effectively obtained sensitive research data from the general public and have been recommended for use with people with disabilities. However, few studies have used ACASIs with people with disabilities and ACASIs have not been used to investigate the relationship between disability, interpersonal violence (IPV), and physical and psychological health among people with developmental disabilities (PWDD). OBJECTIVE: We developed an accessible ACASI specifically designed to allow PWDD to answer questions independently, while privately and securely collecting anonymous data related to their disability, IPV experiences, and physical and psychological health. METHODS: We used a safety protocol to apply community based participatory research (CBPR) principles and an iterative process to create, test, and administer a cross-sectional ACASI survey to 350 adults with developmental disabilities in urban and rural locales. RESULTS: Most participants completed the ACASI independently and reported that its accessibility features allowed them to do so. Most also agreed that the ACASI was easy to use, its questions were easy to understand, and that they would prefer using an ACASI to answer IPV and health-related questions rather than in a face-to-face interview. The majority agreed that health and safety were critical issues to address. CONCLUSIONS: ACASI technology has the potential to maximize the independent and private participation of PWDD in research on sensitive topics. We recommend further exploration into accessibility options for ACASI technology, including hardware and Internet applications.
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