Literature DB >> 24933374

Can joined-up data lead to joined-up thinking? The Western Australian developmental pathways project.

Fiona Stanley1, Rebecca Glauert2, Anne McKenzie3, Melissa O'Donnell4.   

Abstract

Modern societies are challenged by "wicked problems" - by definition, those that are difficult to define, multi-causal and hard to treat. Problems such as low birth weight, obesity, mental ill health, teenage pregnancy, educational difficulties and juvenile crime fit this category. Given the complex nature of these problems, they require the best data in order to measure them, guide policy frameworks and evaluate whether the steps taken to address them are actually making a difference. What such problems really require are joined-up approaches to enable effective solutions. In this paper, we describe a unique initiative to encourage a more preventive, whole-of-government approach to these problems - the Developmental Pathways Project, which has enabled the linkage of a large number of de-identified administrative databases in order to explore the pathways into and out of the negative outcomes affecting our children and youth. This project has not only enabled the linkage of agency data, but also of agency personnel, in order to improve and promote cross-agency research, policy and preventive solutions. Through the use of these linkages we are attempting to shift the paradigm to encourage agencies to appreciate that these "wicked problems" demand a preventive approach, as well as the provision of effective services for those already affected.
Copyright © 2011 Longwoods Publishing.

Entities:  

Year:  2011        PMID: 24933374      PMCID: PMC5319574     

Source DB:  PubMed          Journal:  Healthc Policy        ISSN: 1715-6572


  8 in total

1.  Research use of linked health data--a best practice protocol.

Authors:  C W Kelman; A J Bass; C D J Holman
Journal:  Aust N Z J Public Health       Date:  2002       Impact factor: 2.939

2.  Health data linkage conserves privacy in a research-rich environment.

Authors:  Brooke Trutwein; C D'Arcy J Holman; Diana L Rosman
Journal:  Ann Epidemiol       Date:  2005-10-27       Impact factor: 3.797

3.  The risk of major birth defects after intracytoplasmic sperm injection and in vitro fertilization.

Authors:  Michèle Hansen; Jennifer J Kurinczuk; Carol Bower; Sandra Webb
Journal:  N Engl J Med       Date:  2002-03-07       Impact factor: 91.245

4.  A population database for maternal and child health research in Western Australia using record linkage.

Authors:  F J Stanley; M L Croft; J Gibbins; A W Read
Journal:  Paediatr Perinat Epidemiol       Date:  1994-10       Impact factor: 3.980

5.  Pregnancy, delivery, and neonatal complications in a population cohort of women with schizophrenia and major affective disorders.

Authors:  Assen V Jablensky; Vera Morgan; Stephen R Zubrick; Carol Bower; Li-Anne Yellachich
Journal:  Am J Psychiatry       Date:  2005-01       Impact factor: 18.112

6.  Rates and types of hospitalisations for children who have subsequent contact with the child protection system: a population based case-control study.

Authors:  M O'Donnell; N Nassar; H Leonard; P Jacoby; R Mathews; Y Patterson; F Stanley
Journal:  J Epidemiol Community Health       Date:  2009-09-23       Impact factor: 3.710

7.  Association of birth outcomes and maternal, school, and neighborhood characteristics with subsequent numeracy achievement.

Authors:  Eva Malacova; Jianghong Li; Eve Blair; Helen Leonard; Nicholas de Klerk; Fiona Stanley
Journal:  Am J Epidemiol       Date:  2008-04-15       Impact factor: 4.897

8.  Increasing prevalence of neonatal withdrawal syndrome: population study of maternal factors and child protection involvement.

Authors:  Melissa O'Donnell; Natasha Nassar; Helen Leonard; Ronnie Hagan; Richard Mathews; Yvonne Patterson; Fiona Stanley
Journal:  Pediatrics       Date:  2009-04       Impact factor: 7.124

  8 in total
  2 in total

1.  Influence of exposure to perinatal risk factors and parental mental health related hospital admission on adolescent deliberate self-harm risk.

Authors:  Nan Hu; Jianghong Li; Rebecca A Glauert; Catherine L Taylor
Journal:  Eur Child Adolesc Psychiatry       Date:  2017-02-03       Impact factor: 4.785

2.  What factors contribute to positive early childhood health and development in Australian Aboriginal children? Protocol for a population-based cohort study using linked administrative data (The Seeding Success Study).

Authors:  Kathleen Falster; Louisa Jorm; Sandra Eades; John Lynch; Emily Banks; Marni Brownell; Rhonda Craven; Kristjana Einarsdóttir; Deborah Randall
Journal:  BMJ Open       Date:  2015-05-18       Impact factor: 2.692

  2 in total

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