Literature DB >> 24926715

Privacy-preserving analytic methods for multisite comparative effectiveness and patient-centered outcomes research.

Sengwee Toh1, Susan Shetterly, John D Powers, David Arterburn.   

Abstract

BACKGROUND: For privacy and practical reasons, it is sometimes necessary to minimize sharing of individual-level information in multisite studies. However, individual-level information is often needed to perform more rigorous statistical analysis.
OBJECTIVES: To compare empirically 3 analytic methods for multisite studies that only require sharing of summary-level information to perform statistical analysis that have traditionally required access to detailed individual-level data from each site. RESEARCH DESIGN, SUBJECTS, AND MEASURES: We analyzed data from a 7-site study of bariatric surgery outcomes within the Scalable Partnering Network. We compared the long-term risk of rehospitalization between adjustable gastric banding and Roux-en-y gastric bypass procedures using a stratified analysis of propensity score (PS)-defined strata, a case-centered analysis of risk set data, and a meta-analysis of site-specific effect estimates. Their results were compared with the result from a pooled individual-level data analysis.
RESULTS: The study included 1327 events (18.1%) among 7342 patients. The adjusted hazard ratio was 0.71 (95% CI, 0.59, 0.84) comparing adjustable gastric banding with Roux-en-y gastric bypass in the individual-level data analysis. The corresponding effect estimate was 0.70 (0.59, 0.83) in the PS-stratified analysis, 0.71 (0.59, 0.84) in the case-centered analysis, and 0.71 (0.60, 0.84) in both the fixed-effect and random-effects meta-analysis.
CONCLUSIONS: In this empirical study, PS-stratified analysis, case-centered analysis, and meta-analysis produced results that are identical or highly comparable with the result from a pooled individual-level data analysis. These methods have the potential to be viable analytic alternatives when sharing of individual-level information is not feasible or not preferred in multisite studies.

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Year:  2014        PMID: 24926715     DOI: 10.1097/MLR.0000000000000147

Source DB:  PubMed          Journal:  Med Care        ISSN: 0025-7079            Impact factor:   2.983


  13 in total

Review 1.  Analytic and Data Sharing Options in Real-World Multidatabase Studies of Comparative Effectiveness and Safety of Medical Products.

Authors:  Sengwee Toh
Journal:  Clin Pharmacol Ther       Date:  2020-01-24       Impact factor: 6.875

2.  Validity of Privacy-Protecting Analytical Methods That Use Only Aggregate-Level Information to Conduct Multivariable-Adjusted Analysis in Distributed Data Networks.

Authors:  Xiaojuan Li; Bruce H Fireman; Jeffrey R Curtis; David E Arterburn; David P Fisher; Érick Moyneur; Mia Gallagher; Marsha A Raebel; W Benjamin Nowell; Lindsay Lagreid; Sengwee Toh
Journal:  Am J Epidemiol       Date:  2019-04-01       Impact factor: 4.897

Review 3.  A proposed approach to accelerate evidence generation for genomic-based technologies in the context of a learning health system.

Authors:  Christine Y Lu; Marc S Williams; Geoffrey S Ginsburg; Sengwee Toh; Jeff S Brown; Muin J Khoury
Journal:  Genet Med       Date:  2017-08-10       Impact factor: 8.822

4.  Stakeholders' views on data sharing in multicenter studies.

Authors:  Kathleen M Mazor; Allison Richards; Mia Gallagher; David E Arterburn; Marsha A Raebel; W Benjamin Nowell; Jeffrey R Curtis; Andrea R Paolino; Sengwee Toh
Journal:  J Comp Eff Res       Date:  2017-08-14       Impact factor: 1.744

5.  Data Extraction and Management in Networks of Observational Health Care Databases for Scientific Research: A Comparison of EU-ADR, OMOP, Mini-Sentinel and MATRICE Strategies.

Authors:  Rosa Gini; Martijn Schuemie; Jeffrey Brown; Patrick Ryan; Edoardo Vacchi; Massimo Coppola; Walter Cazzola; Preciosa Coloma; Roberto Berni; Gayo Diallo; José Luis Oliveira; Paul Avillach; Gianluca Trifirò; Peter Rijnbeek; Mariadonata Bellentani; Johan van Der Lei; Niek Klazinga; Miriam Sturkenboom
Journal:  EGEMS (Wash DC)       Date:  2016-02-08

6.  The National Patient-Centered Clinical Research Network (PCORnet) Bariatric Study Cohort: Rationale, Methods, and Baseline Characteristics.

Authors:  Sengwee Toh; Laura J Rasmussen-Torvik; Emily E Harmata; Roy Pardee; Rosalinde Saizan; Elisha Malanga; Jessica L Sturtevant; Casie E Horgan; Jane Anau; Cheri D Janning; Robert D Wellman; R Yates Coley; Andrea J Cook; Anita P Courcoulas; Karen J Coleman; Neely A Williams; Kathleen M McTigue; David Arterburn; James McClay
Journal:  JMIR Res Protoc       Date:  2017-12-05

7.  Inverse probability weighted Cox model in multi-site studies without sharing individual-level data.

Authors:  Di Shu; Kazuki Yoshida; Bruce H Fireman; Sengwee Toh
Journal:  Stat Methods Med Res       Date:  2019-08-26       Impact factor: 3.021

8.  Comparison of privacy-protecting analytic and data-sharing methods: A simulation study.

Authors:  Kazuki Yoshida; Susan Gruber; Bruce H Fireman; Sengwee Toh
Journal:  Pharmacoepidemiol Drug Saf       Date:  2018-07-18       Impact factor: 2.890

9.  Development and application of two semi-automated tools for targeted medical product surveillance in a distributed data network.

Authors:  John G Connolly; Shirley V Wang; Candace C Fuller; Sengwee Toh; Catherine A Panozzo; Noelle Cocoros; Meijia Zhou; Joshua J Gagne; Judith C Maro
Journal:  Curr Epidemiol Rep       Date:  2017-10-06

10.  Use of Medications for Treatment of Opioid Use Disorder Among US Medicaid Enrollees in 11 States, 2014-2018.

Authors:  Julie M Donohue; Marian P Jarlenski; Joo Yeon Kim; Lu Tang; Katherine Ahrens; Lindsay Allen; Anna Austin; Andrew J Barnes; Marguerite Burns; Chung-Chou H Chang; Sarah Clark; Evan Cole; Dushka Crane; Peter Cunningham; David Idala; Stefanie Junker; Paul Lanier; Rachel Mauk; Mary Joan McDuffie; Shamis Mohamoud; Nathan Pauly; Logan Sheets; Jeffery Talbert; Kara Zivin; Adam J Gordon; Susan Kennedy
Journal:  JAMA       Date:  2021-07-13       Impact factor: 56.272

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