Literature DB >> 24907228

Partners in projects: preparing for public involvement in health and social care research.

Jacqueline H Parkes1, Michelle Pyer2, Paula Wray3, Jane Taylor4.   

Abstract

In recent years, several UK and, international funders of health and social care related research have adopted the policy of requiring explicit evidence of the 'public' voice in all aspects of project design. For many academic researchers engaged within research, evaluations or audit projects, this formal requirement to actively engage members of the public will present them with both benefits and challenges to securing knowledgeable, skilled, and confident lay representation onto project teams. This could potentially lead to the exploitation of those individuals who are available, appropriately informed, and adequately prepared for such activities. Currently, much of the preparation of patients or members of the public for research involvement tends to be aligned to specific projects; however, with the call for greater active and meaningful involvement of lay representatives in future national and international funding applications, there is clearly a growing need to 'train' sufficient numbers of confident and competent representatives to meet this growing demand. This paper describes the development of a specifically designed research awareness training programme and underpinning theoretical model, which has been specifically designed to support active and meaningful lay involvement in research, evaluations and audit projects. Developed over a four year period, the course is a culmination of learning extracted from a series of four completed research projects, which have incorporated an element of public and patient involvement (PPI) training in their overall design. Crown
Copyright © 2014. Published by Elsevier Ireland Ltd. All rights reserved.

Entities:  

Keywords:  Health research; Public involvement; Training model

Mesh:

Year:  2014        PMID: 24907228     DOI: 10.1016/j.healthpol.2014.04.014

Source DB:  PubMed          Journal:  Health Policy        ISSN: 0168-8510            Impact factor:   2.980


  12 in total

Review 1.  Interdisciplinary team science and the public: Steps toward a participatory team science.

Authors:  Jacob Kraemer Tebes; Nghi D Thai
Journal:  Am Psychol       Date:  2018 May-Jun

2.  Health and LifeDomain ResearchPriorities in Children, Adolescents and Young Adults With Pediatric-Onset Spinal Cord Injury: A National Cross-Sectional Survey in England.

Authors:  Bashak Onal; Marta Ríos León; Marika Augutis; Emily Mattacola; Allison Graham; Kirsten Hart; Erin Kelly; Anke Scheel-Sailer; Julian Taylor
Journal:  Top Spinal Cord Inj Rehabil       Date:  2022-04-12

3.  Co-development and Usability Testing of Research 101: A Patient-Oriented Research Curriculum in Child Health (PORCCH) E-Learning Module for Patients and Families.

Authors:  Catharine M Walsh; Nicola L Jones; Graham A McCreath; Veronik Connan; Linda Pires; Autumn Q H Chen; Aliza Karoly; Colin Macarthur
Journal:  Front Pediatr       Date:  2022-07-06       Impact factor: 3.569

4.  Public involvement in research within care homes: benefits and challenges in the APPROACH study.

Authors:  Katherine Froggatt; Claire Goodman; Hazel Morbey; Sue L Davies; Helen Masey; Angela Dickinson; Wendy Martin; Christina Victor
Journal:  Health Expect       Date:  2015-12-01       Impact factor: 3.377

5.  Moving towards a more inclusive patient and public involvement in health research paradigm: the incorporation of a trauma-informed intersectional analysis.

Authors:  Carolyn Shimmin; Kristy D M Wittmeier; Josée G Lavoie; Evan D Wicklund; Kathryn M Sibley
Journal:  BMC Health Serv Res       Date:  2017-08-07       Impact factor: 2.655

Review 6.  Supporting public involvement in interview and other panels: a systematic review.

Authors:  Susan Baxter; Mark Clowes; Delia Muir; Wendy Baird; Andrea Broadway-Parkinson; Carole Bennett
Journal:  Health Expect       Date:  2016-08-17       Impact factor: 3.377

7.  Using qualitative Health Research methods to improve patient and public involvement and engagement in research.

Authors:  Danielle E Rolfe; Vivian R Ramsden; Davina Banner; Ian D Graham
Journal:  Res Involv Engagem       Date:  2018-12-13

8.  The value of involving patients and public in health services research and evaluation: a qualitative study.

Authors:  Pooja Saini; Shaima M Hassan; Esmaeil Khedmati Morasae; Mark Goodall; Clarissa Giebel; Saiqa Ahmed; Anna Pearson; Lesley M Harper; Jane Cloke; Jenny Irvine; Mark Gabbay
Journal:  Res Involv Engagem       Date:  2021-06-29

9.  Co-producing public involvement training with members of the public and research organisations in the East Midlands: creating, delivering and evaluating the lay assessor training programme.

Authors:  Adele Horobin; George Brown; Fred Higton; Stevie Vanhegan; Andrew Wragg; Paula Wray; Dawn-Marie Walker
Journal:  Res Involv Engagem       Date:  2017-04-05

10.  Top ten research priorities for spinal cord injury: the methodology and results of a British priority setting partnership.

Authors:  J J van Middendorp; H C Allison; S Ahuja; D Bracher; C Dyson; J Fairbank; A Gall; A Glover; L Gray; W El Masri; A Uttridge; K Cowan
Journal:  Spinal Cord       Date:  2015-11-10       Impact factor: 2.772

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