Susanne Singer1, Cláudia Araújo2, Juan Ignacio Arraras3, Ingo Baumann4, Andreas Boehm5, Bente Brokstad Herlofson6, Joaquim Castro Silva7, Wei-Chu Chie8, Sheila Fisher9, Orlando Guntinas-Lichius10, Eva Hammerlid11, María Elisa Irarrázaval12, Marianne Jensen Hjermstad13, Kenneth Jensen14, Naomi Kiyota15, Lisa Licitra16, Ourania Nicolatou-Galitis17, Monica Pinto18, Marcos Santos19, Claudia Schmalz20, Allen C Sherman21, Iwona M Tomaszewska22, Irma Verdonck de Leeuw23, Noam Yarom24, Paola Zotti25, Dirk Hofmeister26. 1. Division of Epidemiology and Health Services Research, Institute of Medical Biostatistics, Epidemiology, and Informatics, University Medical Centre of Johannes Gutenberg University, Mainz, Germany. 2. Head and Neck Unit, Department of Surgical Oncology, Instituto Português de Oncologia Francisco Gentil do Porto, Porto, Portugal. 3. Oncology Departments, Complejo Hospitalario de Navarra, Pamplona, Spain. 4. Department of Otolaryngology, Head and Neck Surgery, University of Heidelberg, Heidelberg, Germany. 5. Department of Otolaryngology Head and Neck Surgery, University of Leipzig, Leipzig, Germany. 6. Department of Oral Surgery and Oral Medicine, Faculty of Dentistry, University of Oslo, Oslo, Norway. 7. Department of Otolaryngology, Head and Neck Surgery, Instituto Português de Oncologia Francisco Gentil do Porto, Porto, Portugal. 8. Institute of Epidemiology and Preventive Medicine, College of Public Health, National Taiwan University, Taiwan. 9. Leeds Institute of Cancer and Pathology, University of Leeds, Leeds, United Kingdom. 10. Clinic of Otorhinolaryngology, Jena University Hospital, Jena, Germany. 11. Department of Otolaryngology and Head and Neck Surgery, Sahlgrenska University Hospital, Gothenburg, Sweden. 12. Quality Of Life Department, Instituto Oncológico Fundación Arturo López Pérez, Santiago, Chile. 13. Regional Centre for Excellence in Palliative Care, Department of Oncology, Oslo Universitetssykehus, Oslo, Norway and European Palliative Care Research Centre, Department of Cancer Research and Molecular Medicine, Norwegian University of Science and Technology, Trondheim, Norway. 14. Department of Oncology, Aarhus University Hospital, Aarhus, Denmark. 15. Department of Medical Oncology and Hematology, Kobe University Hospital, Kobe, Japan. 16. Department of Medical Oncology, Fondaczione IRCCS Istituto Nazionale Tumori, Milano, Italy. 17. Clinic of Hospital Dentistry, Dental Oncology Unit, School of Dentistry, University of Athens, Athens, Greece. 18. Deapartment of Quality of Life, Istituto Nazionale per lo Studio e la Cura dei Tumori "Fondazione Giovanni Pascale" - IRCCS, Naples, Italy. 19. Radiation Oncology Department, Brasilia University Hospital, Brasilia, Brazil. 20. Department of Radiation Therapy, University Hospital Schleswig-Holstein, Kiel, Germany. 21. Behavioral Medicine Division, Winthrop P. Rockefeller Cancer Institute, University of Arkansas for Medical Sciences, Little Rock, Arkansas. 22. Department of Medical Didactics, Jagiellonian University Medical College, Krakow, Poland. 23. Department of Otolaryngology / Head and Neck Surgery, VU University Medical Center, Amsterdam, The Netherlands and Department of Clinical Psychology, VU University, Amsterdam, The Netherlands. 24. Department of Oral and Maxillofacial Surgery, Sheba Medical Center, Tel-Hashomer, Israel and Department of Oral Pathology and Oral Medicine, School of Dental Medicine, Tel Aviv University, Tel Aviv, Israel. 25. Department of Psychology, National Cancer Institute CRO-Aviano, Aviano, Italy. 26. Department of Medical Psychology, University of Leipzig, Leipzig, Germany.
Abstract
BACKGROUND: The objective of this study was to pilot test an updated version of the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Head and Neck Module (EORTC QLQ-H&N60). METHODS: Patients with head and neck cancer were asked to complete a list of 60 head and neck cancer-specific items comprising the updated EORTC head and neck module and the core questionnaire EORTC QLQ-C30. Debriefing interviews were conducted to identify any irrelevant items and confusing or upsetting wording. RESULTS: Interviews were performed with 330 patients from 17 countries, representing different head and neck cancer sites and treatments. Forty-one of the 60 items were retained according to the predefined EORTC criteria for module development, for another 2 items the wording was refined, and 17 items were removed. CONCLUSION: The preliminary EORTC QLQ-H&N43 can now be used in academic research. Psychometrics will be tested in a larger field study.
BACKGROUND: The objective of this study was to pilot test an updated version of the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Head and Neck Module (EORTC QLQ-H&N60). METHODS:Patients with head and neck cancer were asked to complete a list of 60 head and neck cancer-specific items comprising the updated EORTC head and neck module and the core questionnaire EORTC QLQ-C30. Debriefing interviews were conducted to identify any irrelevant items and confusing or upsetting wording. RESULTS: Interviews were performed with 330 patients from 17 countries, representing different head and neck cancer sites and treatments. Forty-one of the 60 items were retained according to the predefined EORTC criteria for module development, for another 2 items the wording was refined, and 17 items were removed. CONCLUSION: The preliminary EORTC QLQ-H&N43 can now be used in academic research. Psychometrics will be tested in a larger field study.
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