Literature DB >> 24825197

Legal and policy barriers to sharing data between public health programs in New York City: a case study.

M Rose Gasner1, Jennifer Fuld, Ann Drobnik, Jay K Varma.   

Abstract

Integration of public health surveillance data within health departments is important for public health activities and cost-efficient coordination of care. Access to and use of surveillance data are governed by public health law and by agency confidentiality and security policies. In New York City, we examined public health laws and agency policies for data sharing across HIV, sexually transmitted disease, tuberculosis, and viral hepatitis surveillance programs. We found that recent changes to state laws provide greater opportunities for data sharing but that agency policies must be updated because they limit increased data integration. Our case study can help other health departments conduct similar reviews of laws and policies to increase data sharing and integration of surveillance data.

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Year:  2014        PMID: 24825197      PMCID: PMC4062019          DOI: 10.2105/AJPH.2013.301775

Source DB:  PubMed          Journal:  Am J Public Health        ISSN: 0090-0036            Impact factor:   9.308


  5 in total

1.  Mandatory reporting of diseases and conditions by health care professionals and laboratories.

Authors:  S Roush; G Birkhead; D Koo; A Cobb; D Fleming
Journal:  JAMA       Date:  1999-07-14       Impact factor: 56.272

2.  Lessons from the 1800s: tuberculosis control in the new millennium.

Authors:  T R Frieden; B H Lerner; B R Rutherford
Journal:  Lancet       Date:  2000-03-25       Impact factor: 79.321

3.  Public goods, private data: HIV and the history, ethics, and uses of identifiable public health information.

Authors:  Amy L Fairchild; Lance Gable; Lawrence O Gostin; Ronald Bayer; Patricia Sweeney; Robert S Janssen
Journal:  Public Health Rep       Date:  2007       Impact factor: 2.792

4.  Data suppression strategies used during surveillance data release by sexually transmitted disease prevention programs.

Authors:  Philip Christopher Delcher; Kristine T Edwards; Jeffrey Allen Stover; Lori Marie Newman; Samuel L Groseclose; Diane M Rajnik
Journal:  J Public Health Manag Pract       Date:  2008 Mar-Apr

5.  HIPAA privacy rule and public health. Guidance from CDC and the U.S. Department of Health and Human Services.

Authors: 
Journal:  MMWR Suppl       Date:  2003-05-02
  5 in total
  4 in total

1.  Implementation of Lost & Found, An Intervention to Reengage Patients Out of HIV Care: A Convergent Explanatory Sequential Mixed-Methods Analysis.

Authors:  Blake Linthwaite; Nadine Kronfli; David Lessard; Kim Engler; Luciana Ruppenthal; Emilie Bourbonnière; Nancy Obas; Melodie Brown; Bertrand Lebouché; Joseph Cox
Journal:  AIDS Behav       Date:  2022-10-22

2.  Leveraging Health Department Capacities, Partnerships, and Health Insurance for Infectious Disease Response in Massachusetts, 2014-2018.

Authors:  H Dawn Fukuda; Liisa M Randall; Thera Meehan; Kevin Cranston
Journal:  Public Health Rep       Date:  2020 Jul/Aug       Impact factor: 2.792

3.  Sharing Overdose Data Across State Agencies to Inform Public Health Strategies: A Case Study.

Authors:  Sara Cherico-Hsii; Andrea Bankoski; Pooja Singal; Isabelle Horon; Eric Beane; Meghan Casey; Kathleen Rebbert-Franklin; Joshua Sharfstein
Journal:  Public Health Rep       Date:  2016 Mar-Apr       Impact factor: 2.792

4.  Increased reengagement of out-of-care HIV patients using Lost & Found, a clinic-based intervention.

Authors:  Blake Linthwaite; Nadine Kronfli; Ivan Marbaniang; Luciana Ruppenthal; David Lessard; Kim Engler; Bertrand Lebouché; Joseph Cox
Journal:  AIDS       Date:  2022-03-15       Impact factor: 4.177

  4 in total

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