Literature DB >> 24810084

Family-centered care for children with cerebral palsy: conceptual and practical considerations to advance care and practice.

Gillian King1, Lisa Chiarello2.   

Abstract

This article focuses on conceptual and practical considerations in family-centered care for children with cerebral palsy and their families. In the last 5 years, there have been important advances in our understanding of the components of family-centered care, and initial attempts to understand the client change processes at play. Recent research elaborates on family-centered care by delving into aspects of family-provider partnership, and applying family-centered principles to organizational service delivery to bring about organizational cultures of family-centered care. Recent research has also begun to consider mediators of client change, and new practice models have been proposed that embrace family-centered principles and illustrate the "art" of practice. Future research directions are discussed, including explorations of causal relationships between family-centered care principles, elements of caregiving practice, client change processes, and child and family outcomes. The meaning of the recent literature for pediatric neurology practice is considered.
© The Author(s) 2014.

Entities:  

Keywords:  childhood; disability; family-centered care; pediatric neurology; service delivery

Mesh:

Year:  2014        PMID: 24810084     DOI: 10.1177/0883073814533009

Source DB:  PubMed          Journal:  J Child Neurol        ISSN: 0883-0738            Impact factor:   1.987


  18 in total

Review 1.  Relevance of the International Classification of Functioning, Health and Disability: Children & Youth Version in Early Hearing Detection and Intervention Programs.

Authors:  Marlene P Bagatto; Sheila T Moodie
Journal:  Semin Hear       Date:  2016-08

2.  Transitions Theatre: An Arts-Informed Interprofessional Education Workshop.

Authors:  Yukari Seko; Anna Oh; Keisha Goberdhan; Laura Bowman; Darlene Hubley; Payal Khazanchi; Nadine Vermeulen; C J Curran
Journal:  MedEdPORTAL       Date:  2022-06-21

3.  Understanding Acceptability, Barriers, and Facilitators to Clinical Implementation of the on Track Developmental Monitoring System for Children with Cerebral Palsy: A Qualitative Study.

Authors:  Heather A Feldner; Alyssa LaForme Fiss; Lynn M Jeffries; Sarah Westcott McCoy
Journal:  Phys Occup Ther Pediatr       Date:  2022-03-31       Impact factor: 2.297

4.  Exploration of Parent-Provider Communication During Clinic Visits for Children With Chronic Conditions.

Authors:  Barbara K Giambra; Stephen M Haas; Maria T Britto; Ellen A Lipstein
Journal:  J Pediatr Health Care       Date:  2017-08-31       Impact factor: 1.812

5.  Parent-Reported PEDI-CAT Mobility and Gross Motor Function in Infants With Cerebral Palsy.

Authors:  Kimberley Scott; Jessica Lewis; Xueliang Pan; Jill Heathcock
Journal:  Pediatr Phys Ther       Date:  2021-07-01       Impact factor: 1.452

6.  Electronic health record and patterns of care for children with cerebral palsy.

Authors:  Brad G Kurowski; Kelly Greve; Amy F Bailes; Janet Zahner; Jilda Vargus-Adams; Mary A Mcmahon; Bruce J Aronow; Alexis Mitelpunkt
Journal:  Dev Med Child Neurol       Date:  2021-03-25       Impact factor: 4.864

Review 7.  Parental engagement in early intervention for infants with cerebral palsy-A realist synthesis.

Authors:  Phillip Antony Harniess; Deanna Gibbs; Jeff Bezemer; Anna Purna Basu
Journal:  Child Care Health Dev       Date:  2021-11-01       Impact factor: 2.943

8.  A Call to Action: Setting the Research Agenda for Addressing Obesity and Weight-Related Topics in Children with Physical Disabilities.

Authors:  Amy C McPherson; Geoff D C Ball; Désirée B Maltais; Judy A Swift; John Cairney; Tara Joy Knibbe; Kim Krog
Journal:  Child Obes       Date:  2015-12-30       Impact factor: 2.992

9.  Functioning and Disability Profile of Children with Microcephaly Associated with Congenital Zika Virus Infection.

Authors:  Haryelle Náryma Confessor Ferreira; Veronica Schiariti; Isabelly Cristina Rodrigues Regalado; Klayton Galante Sousa; Silvana Alves Pereira; Carla Patrícia Novaes Dos Santos Fechine; Egmar Longo
Journal:  Int J Environ Res Public Health       Date:  2018-05-29       Impact factor: 3.390

10.  Effectiveness of instrumented gait analysis in interdisciplinary interventions on parents' perception of family-centered service and on gross motor function in children with cerebral palsy: a randomized controlled trial.

Authors:  Christina Esmann Fonvig; Helle Mätzke Rasmussen; Søren Overgaard; Anders Holsgaard-Larsen
Journal:  BMC Pediatr       Date:  2020-09-01       Impact factor: 2.125

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