Literature DB >> 24782269

"I didn't feel like I was a person anymore": realigning full adult personhood after ostomy surgery.

Michelle Ramirez1, Andrea Altschuler, Carmit McMullen, Marcia Grant, Mark Hornbrook, Robert Krouse.   

Abstract

Colorectal cancer (CRC) is the third most common cancer in the United States. For some CRC patients, cancer treatment involves creating a permanent or temporary intestinal ostomy. Having an ostomy often results in complex social and physical concerns-including unpredictable and at times publicly noticeable bowel output. In this article, we discuss findings from 30 in-depth interviews with female CRC survivors with ostomies in the western United States. We highlight how having an ostomy disrupts culturally sanctioned practices of continence that mark the attainment of full-adult personhood. We discuss how survivors reclaim a sense of full personhood after ostomy surgery through a process of realignment that entails both learning how to manage ostomy equipment to conceal bowel activity and reappraising their illness and suffering. We suggest that the anthropological categories of personhood and personhood realignment be incorporated into research and interventions aimed at increasing support among cancer survivors living with bodily impairments.
© 2014 by the American Anthropological Association.

Entities:  

Keywords:  adaptation; cancer survivorship; continence; personhood

Mesh:

Year:  2014        PMID: 24782269      PMCID: PMC5023005          DOI: 10.1111/maq.12095

Source DB:  PubMed          Journal:  Med Anthropol Q        ISSN: 0745-5194


  25 in total

1.  Body image and self-concept among individuals with stomas.

Authors:  A L Klopp
Journal:  J Enterostomal Ther       Date:  1990 May-Jun

2.  Quality of life in stoma patients.

Authors:  K P Nugent; P Daniels; B Stewart; R Patankar; C D Johnson
Journal:  Dis Colon Rectum       Date:  1999-12       Impact factor: 4.585

3.  Coming to terms with advanced breast cancer: black women's narratives from eastern North Carolina.

Authors:  H F Mathews; D R Lannin; J P Mitchell
Journal:  Soc Sci Med       Date:  1994-03       Impact factor: 4.634

4.  Hair Loss Induced by Chemotherapy: An Anthropological Study of Women, Cancer and Rehabilitation.

Authors:  Helle Ploug Hansen
Journal:  Anthropol Med       Date:  2007-04

5.  Preparing for loop ileostomy surgery: women's accounts from a qualitative study.

Authors:  Joy Notter; Philip Burnard
Journal:  Int J Nurs Stud       Date:  2006-02       Impact factor: 5.837

6.  Figuring out sex in a reconfigured body: experiences of female colorectal cancer survivors with ostomies.

Authors:  Michelle Ramirez; Carmit McMullen; Marcia Grant; Andrea Altschuler; Mark C Hornbrook; Robert S Krouse
Journal:  Women Health       Date:  2009-12

7.  Privacy for defecation and fecal incontinence in older adults.

Authors:  Asangaedem Akpan; M A Gosney; James Barrett
Journal:  J Wound Ostomy Continence Nurs       Date:  2006 Sep-Oct       Impact factor: 1.741

8.  Expressions of loss of adulthood in the narratives of people with colorectal cancer.

Authors:  Linda Rozmovits; Sue Ziebland
Journal:  Qual Health Res       Date:  2004-02

9.  Social networks and quality of life among female long-term colorectal cancer survivors.

Authors:  Amy L Sapp; Amy Trentham-Dietz; Polly A Newcomb; John M Hampton; Carol M Moinpour; Patrick L Remington
Journal:  Cancer       Date:  2003-10-15       Impact factor: 6.860

10.  Stigmatizing a "normal" condition: urinary incontinence in late life.

Authors:  L S Mitteness; J C Barker
Journal:  Med Anthropol Q       Date:  1995-06
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  7 in total

1.  Caregiving and mutuality among long-term colorectal cancer survivors with ostomies: qualitative study.

Authors:  Andrea Altschuler; Petra Liljestrand; Marcia Grant; Mark C Hornbrook; Robert S Krouse; Carmit K McMullen
Journal:  Support Care Cancer       Date:  2017-08-26       Impact factor: 3.603

2.  Ongoing ostomy self-care challenges of long-term rectal cancer survivors.

Authors:  Joanna E Bulkley; Carmit K McMullen; Marcia Grant; Christopher Wendel; Mark C Hornbrook; Robert S Krouse
Journal:  Support Care Cancer       Date:  2018-05-29       Impact factor: 3.603

3.  Sexual Function and Health-Related Quality of Life in Long-Term Rectal Cancer Survivors.

Authors:  Virginia Sun; Marcia Grant; Christopher S Wendel; Carmit K McMullen; Joanna E Bulkley; Lisa J Herrinton; Mark C Hornbrook; Robert S Krouse
Journal:  J Sex Med       Date:  2016-07       Impact factor: 3.802

Review 4.  The sociology of cancer: a decade of research.

Authors:  Anne Kerr; Emily Ross; Gwen Jacques; Sarah Cunningham-Burley
Journal:  Sociol Health Illn       Date:  2018-02-15

5.  Identity, community and care in online accounts of hereditary colorectal cancer syndrome.

Authors:  Emily Ross; Tineke Broer; Anne Kerr; Sarah Cunningham-Burley
Journal:  New Genet Soc       Date:  2018-05-02

6.  Coping Processes of Patients with Ostomies in South Korea: A Focus Group Study.

Authors:  Heesook Son; Youngmi Kang
Journal:  Healthcare (Basel)       Date:  2020-12-27

7.  Patient-reported outcomes and experiences from the perspective of colorectal cancer survivors: meta-synthesis of qualitative studies.

Authors:  Claudia Rutherford; Fabiola Müller; Nasiba Faiz; Madeleine T King; Kate White
Journal:  J Patient Rep Outcomes       Date:  2020-04-25
  7 in total

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