| Literature DB >> 24692182 |
Alicia Navarro de Souza1, Danielle Groleau, Carmen G Loiselle, William D Foulkes, Nora Wong.
Abstract
We explored the experiences of Ashkenazi Jewish and French Canadian women and meanings attributed to their hereditary breast and ovarian cancer (HBOC) risk. We purposively sampled 40 BRCA1 or BRCA2 (BRCA) mutation carriers and conducted theoretically driven semistructured interviews. According to content analysis, participants from these two ethnocultural groups held divergent meanings associated with being a BRCA carrier and different views pertaining to the illness experience and risk awareness. All participants identified a genetic basis; however, the French Canadian women also expressed other causes. The French Canadian women reported not knowing other carriers in their social environment, whereas the Ashkenazi Jewish women emphasized a strong sense of community contributing to their ethnic risk awareness. Based on these findings, we suggest that French Canadian women could benefit from greater awareness of the HBOC genetic risk and that health care providers should consider ethnically related and individual-based experiences and meanings during counseling.Entities:
Keywords: cancer, breast; cancer, genetics; content analysis; culture / cultural competence; psychosocial issues; risk
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Year: 2014 PMID: 24692182 DOI: 10.1177/1049732314528756
Source DB: PubMed Journal: Qual Health Res ISSN: 1049-7323