Literature DB >> 24679868

Decisional regret after distal hypospadias repair: single institution prospective analysis of factors associated with subsequent parental remorse or distress.

Armando J Lorenzo1, João L Pippi Salle2, Bozana Zlateska2, Martin A Koyle2, Darius J Bägli2, Luis H P Braga2.   

Abstract

PURPOSE: Hypospadias repair is a commonly performed procedure. Little is known about decisional regret in parents who agree to proceed with this surgical reconstruction. We present data on this previously underexplored issue.
MATERIALS AND METHODS: We performed followup analysis of 100 couples prospectively evaluated after counseling for surgical correction of distal hypospadias in their son with assessment of complications and decisional regret 1 year after surgery. Findings were contrasted with baseline demographics, hypospadias knowledge and decisional conflict at the time of counseling.
RESULTS: Decisional regret was found in 116 parents, including mild regret in 41.4% and moderate to severe regret in 8.6%. There was no statistically significant difference in paired regret analysis between mothers and fathers. Complications were strongly associated with decisional regret (p <0.001). On regression analysis postoperative complications (OR 14.7, 95% CI 1.6-131.6), parental desire to avoid circumcision (OR 7.4, 95% CI 1.1-49.4) and initial decisional conflict level (OR 1.06, 95% CI 1.02-1.09) were statistically significant predictors of moderate to strong decisional regret. These findings remained robust after imputation strategies to address missing data. The impact of decisional conflict and preference for circumcision were significant even after excluding families who experienced complications.
CONCLUSIONS: To our knowledge this is the first study demonstrating parental decisional regret after providing consent for surgical correction of distal hypospadias in their son. Based on the described risk factors efforts aimed at minimizing complications and counseling about foreskin preservation techniques may be prudent to ameliorate decisional regret. The novel association between decisional conflict and regret suggests that conflict assessment during counseling may help screen families at risk for postoperative regret.
Copyright © 2014 American Urological Association Education and Research, Inc. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  decision making; hypospadias; informed consent; reconstructive surgical procedures; urethra

Mesh:

Year:  2014        PMID: 24679868     DOI: 10.1016/j.juro.2013.10.036

Source DB:  PubMed          Journal:  J Urol        ISSN: 0022-5347            Impact factor:   7.450


  28 in total

Review 1.  [Distal hypospadias: Current therapeutic approach and various aspects of follow-up].

Authors:  I Rübben
Journal:  Urologe A       Date:  2015-05       Impact factor: 0.639

2.  Psychological Adjustment of Parents of Children Born with Atypical Genitalia 1 Year after Genitoplasty.

Authors:  Rebecca E H Ellens; Dana M Bakula; Alexandria J Mullins; Kristy J Scott Reyes; Paul Austin; Laurence Baskin; Kerlly Bernabé; Earl Y Cheng; Allyson Fried; Dominic Frimberger; Denise Galan; Lynette Gonzalez; Saul Greenfield; Thomas Kolon; Bradley Kropp; Yegappan Lakshmanan; Sabrina Meyer; Theresa Meyer; Larry L Mullins; Natalie J Nokoff; Blake Palmer; Dix Poppas; Alethea Paradis; Elizabeth Yerkes; Amy B Wisniewski; Cortney Wolfe-Christensen
Journal:  J Urol       Date:  2017-05-11       Impact factor: 7.450

3.  The evolution of regret: decision-making for parents of children with cancer.

Authors:  Bryan A Sisk; Tammy I Kang; Jennifer W Mack
Journal:  Support Care Cancer       Date:  2019-06-20       Impact factor: 3.603

4.  High Levels of Decisional Conflict and Decision Regret When Making Decisions About Biologics.

Authors:  Ellen A Lipstein; Daniel J Lovell; Lee A Denson; Sandra C Kim; Charles Spencer; Richard F Ittenbach; Maria T Britto
Journal:  J Pediatr Gastroenterol Nutr       Date:  2016-12       Impact factor: 2.839

5.  Satisfaction, disappointment and regret surrounding fertility preservation decisions in the paediatric and adolescent cancer population.

Authors:  Sadunee Jayasuriya; Michelle Peate; Catherine Allingham; Nancy Li; Lynn Gillam; Margaret Zacharin; Peter Downie; Paddy Moore; Leanne Super; Lisa Orme; Franca Agresta; Catharyn Stern; Yasmin Jayasinghe
Journal:  J Assist Reprod Genet       Date:  2019-08-09       Impact factor: 3.412

6.  Decisional regret about surgical and non-surgical issues after genitoplasty among caregivers of female infants with CAH.

Authors:  Rachel S Fisher; Hannah C Espeleta; Laurence S Baskin; Cindy L Buchanan; Yee-Ming Chan; Earl Y Cheng; Douglas E Coplen; David A Diamond; Natalie J Nokoff; Blake W Palmer; Dix P Poppas; Kristy J Scott Reyes; Amy Tishelman; Cortney Wolfe-Christensen; Larry L Mullins; Amy B Wisniewski
Journal:  J Pediatr Urol       Date:  2021-10-25       Impact factor: 1.830

7.  Parental perspectives on decision-making about hypospadias surgery.

Authors:  K H Chan; J Panoch; A Carroll; S Wiehe; S Downs; M P Cain; R Frankel
Journal:  J Pediatr Urol       Date:  2019-05-02       Impact factor: 1.830

8.  A shared decision-making tool for individuals living with complete androgen insensitivity syndrome.

Authors:  Erica M Weidler; Arlene Baratz; Miriam Muscarella; S Janett Hernandez; Kathleen van Leeuwen
Journal:  Semin Pediatr Surg       Date:  2019-09-19       Impact factor: 2.754

9.  User-centered development of a hypospadias decision aid prototype.

Authors:  Katherine H Chan; Rosalia Misseri; Aaron Carroll; Richard Frankel; Courtney M Moore; Brandon Cockrum; Sarah E Wiehe
Journal:  J Pediatr Urol       Date:  2020-08-11       Impact factor: 1.830

10.  User testing of a hypospadias decision aid prototype at a pediatric medical conference.

Authors:  Katherine H Chan; Rosalia Misseri; Aaron Carroll; Richard M Frankel; Courtney Moore; Brandon Cockrum; Sarah Wiehe
Journal:  J Pediatr Urol       Date:  2020-08-19       Impact factor: 1.830

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