| Literature DB >> 24678380 |
Joshua R Vest1, L Michele Issel2, Sean Lee2.
Abstract
OBJECTIVE: Data collection and management by local health departments (LHDs) is a complex endeavor, complicated by system level and organizational factors. The purpose of this study was to describe the processes and use of information systems (IS) utilized for data collection, management, and sharing by LHD employees.Entities:
Keywords: Public Health Informatics; immunization; information systems; public health administration; vital statistics
Year: 2014 PMID: 24678380 PMCID: PMC3959909 DOI: 10.5210/ojphi.v5i3.4847
Source DB: PubMed Journal: Online J Public Health Inform ISSN: 1947-2579
Characteristics and information systems in use at interviewed local health departments by programmatic area.
| Rural | 3 | Electronic Labs | IIS3 | VRIS4 |
| Suburban | 4 | Surveillance IS5 | IIS3 | VRIS4 |
| Large urban | 5 | Surveillance IS5 | IIS3 | VRIS4 |
1Quality, functions, interoperability, or perceptions of IS are not reported here.
2Practice management includes billing & scheduling functions
3Immunization Information System (statewide system)
4Vital Records Information System (statewide system)
5 Statewide communicable disease (and HIV/STD) surveillance systems
6Maternal Child Health Information System (statewide system)
Themes and corresponding categories regarding public health information systems (IS) and technology.
| Information system quality - reporting / output capability | “…it’s not a report writing system in the sense that I would think it is where it generates aggregate output…when we run a report we’re basically creating another data file.” - Epidemiologist, urban LHD | |
| Information system quality - interoperability | “Our health department providers that use [the IIS], they're like, "Really? We have to input everything into [the IIS] and then at the end of the month we have to do it again into [Vaccine management system]?" And it would be a lot easier, yeah, if they talked to each other…” – Immunization coordinator, urban LHD | |
| Jurisdictionally defined work | “The access we have now for neighboring counties is just that we can put a name in and we can see it's in there, but we can't necessarily see the disease or see what's going on there.” – Nurse, urban LHD | |
| Mobile populations | “Confidentiality. They don't wanna be known wherever they're going. So if they feel like they can't have the confidentiality there in [city in neighboring state], then they'll come here and be tested.” – Public health nurse, rural LHD | |
| Data ownership | “We need our data back, and we need it back immediately…[The SHA is] looking at it simply as data… What that means to us is much more important.” – Registrar, urban LHD | |
| Reporting back | “So it seems like our staff in the unit have to pull information from [IS], put it on a separate piece of paper, and then send it to the state. So I’m not sure why we have to add that extra step when I feel like, in an ideal world, we would be able to use [the IS] to report on the information that they need since there already is a way for us to collect it.’ – Epidemiologist, urban LHD | |
| Duplication of work/re-work / inefficient work | “If you got a parent that’s not a good steward of records, they could possibly have that same child immunized about 3 or 4 times by the certain age and they don’t necessarily need all those vaccines.” – Immunization staff, rural LHD | |
| Workarounds | “We were having to write everything in the comment field for zoonosis.” – Public health nurse, urban LHD | |
| Shadow IS | “We're duplicating our reporting. We do one for in house to help us keep track, and then we use the state system.” – Communicable disease, suburban LHD |
Quotes explaining the challenges to turning data into information for public health practice according to local health departments
| Staff Position, LHD | Quote |
| Communicable disease supervisor, Suburban LHD | “I feel like there's a lot of data that comes in, but there's not a lot of data that goes back out into the community…Why are we collecting all this data if we're not informing people of what we're finding?” |
| Vital records staff, Suburban LHD | “The [LHD director] wants the information for statistics and sharing with city planning to see where risk areas may be…The state does have canned reports that we can request, but he wants more specific and that we cannot get it from the state or we can’t generate it ourselves without individually going through each birth certificate and pulling out the information we need.” |
| Epidemiologist, Urban LHD | “For the most part, the state reports, they don’t always have the data that we need at the local level. And since we can’t run reports at the local level, we do have to go back to the state to request the information.” |
| Epidemiologist, Urban LHD | “…People at the state have found that sometimes their own data release policy is too restrictive and there’s definitely people who work there that do realize that there is some value in releasing some aggregate data so any of the stakeholders who are interested in it could learn something from it.” |
| Communicable disease supervisor, Suburban LHD | “I don't know how to run reports well enough for STD yet to be able to feel comfortable pulling the data and using it for strategic planning. I would rely on our old manual paper because I know that is accurate.” |
| Nurse supervisor, Suburban LHD | “I’m so busy dealing with the day-to-day activities that it’s like, ‘Okay you need this report, fine I give it to you whatever,’ but truly right now I’m just kinda like overwhelmed ...” |
| Communicable disease staff, Rural LHD | I've heard them talk about making reports...but I really don't have the need for it right now.” |
| Immunization program director, Urban LHD | “The biggest challenge we have is the overall integration of the data systems. So it's not just immunizations, it's STD and communicable disease and everything that they're doing, there's health information in there, but I don't think there's anybody that really knows how to pull that information out and utilize it effectively. We have such a patchwork that there's no way, without an incredible amount labor and resource, to sort of pull those things together.” |
| Themes and codes with definitions used identified from content analysis of interviews with local public health practitioners. |
|---|
| Jurisdictionally defined work | Differing roles and IS responsibilities based on political areas/jurisdictions or geographic areas of program implementation/oversight, as it pertains to subsequent acquisition of data | |
| Mobile populations | Citizens/patients receive services at various locations which fall under different jurisdictions with different IS/ forms/ policies, as explanation of why data acquisition is difficult | |
| Data ownership | Description of which organization(s) or departments control/owns which data elements or overall data that are needed, as it pertains to subsequent acquisition of data | |
| Data access control | Nontechnical aspects and policies of departments that determine who can access /use what information in existing IS; blocked access to needed data elements | |
| Multiple data partners at state | Having to deal with different state offices / agencies / departments for data related to a given health topic | |
| More than 1 IS to do job | Job or single task requires the access / use of more than 1 information system | |
| Task technology fit | Issues regarding the match or appropriateness of the design of the IS to public health work, including fragmentation of the IS across agencies/departments | |
| Organizational capabilities | Skills within the organization /department (analytic, technical) to be able to use information, as antecedent to sharing data or reports | |
| Reporting back | Lack of information flow back from other organizations and departments with whom data had been shared (ie, reports) regarding use or quality of those data; no feedback loop | |
| Other LHD | Other local health departments in other jurisdictions. | |
| State health agency – general | The state health agency in general – not specific to any unit or department with the agency | |
| State counterpart department | The counterpart department with the state health agency (e.g. immunizations, communicable disease, vital records) | |
| Providers | Any healthcare organization, provider or physicians | |
| Other | All other organizations (funeral homes, charities, social services, etc) | |
| Sources of Error | Explanations of how errors are introduced into the data, general comments regarding sources or extent of errors | |
| Data logistics/Work processes | Descriptions of the work process of collecting & reporting information and the ways those work processes are related to specific or overall data quality | |
| Use paper for job | Instances where paper is required or used in parallel with IS (both forms & as a paper-based record keeping) in order to have complete data (not shadow system) | |
| ISQ timeliness | Issues affecting or perceptions of the timeliness of the data in the IS | |
| ISQ missing Info | The type or extent of information that is missing in the IS, either specific data elements or entire records | |
| ISQ accuracy | The type or extent of information inaccuracies, such as wrong values or unbelievable information | |
| ISQ accessibility | Technical and software factors related to the availability and retrieval of information from the IS; user friendliness of the IS interface | |
| Security and confidentiality | Issues related to assuring the security and confidentiality of the data as they effect data quality (ie, ability to edit and correct data), irrespective of data ownership | |
| ISQ multiple data sources | Factors related to the quality of the information due to multiple users (ie data managers, data entry personnel, providers) or multiple sources of the information | |
| ISQ interoperability | Factors related to the ability of the IS to export/import data from other information and computer systems | |
| ISQ reporting / output capability | Ability to manipulate the data or generate output/reports using the existing software | |
| ISQ inclusion rules | What makes individuals eligible to have their data included in the IS | |
| Duplication of work/re-work / inefficient work | Repeat of work or use of inefficient work practices (ie calling to get missing data) stemming from having poor IS quality or data logistic procedures | |
| Workarounds | Additional work processes and communication efforts developed and used to overcome /get around /avoid barriers encountered in data availability or use | |
| Shadow IS | Creation and use of additional IS or duplicate IS, databases, or repositories, due to accessibility or functionality issues, in order to store and use information already available in other system, such that staff do not work from a single IS | |
| Effects decision making | Limits strategic planning, community planning, environmental scanning, or community assessment resulting from incomplete data | |
| Effects health problems | Negative effects for health of individuals or populations resulting from IS problems | |
| Hardware & data backups | Comments regarding the characteristics of the hardware which affects its usefulness (ie interface of parts), and of the degree of capability to maintain backups | |
| System stability | Comments regarding the reliability of the hardware in terms of having an overall stable computer system (ie, not crash) | |
| Identify & correct error | Actions to pin-point the incorrect data element or record, and the associated actions to correct that specific error in the data | |
| Technical support | Support options available to help with issues / correct mistakes or provide analytics | |
| Regionalization | Changing of jurisdictional limitations to focus on larger community areas as means to improve data sharing | |
| Customer benefits | Benefits seen by customers, citizens, society from having accurate, timely data | |
| Useful information | Comments on the overall usefulness/not of the data in IS | |
| Management | Executive, administrative or managerial uses of information to help the work and operation of the LHD | |
| Community partners | Sharing of information and reports with the community | |
| Practitioners | How individual practitioners apply information to public health activities | |
| Other government partners | Sharing of information with other government partners | |
| Required state reports | Use of information in required reports to the state | |
| Required sharing | Instances of mandatory or obligatory reporting to other agencies | |
| Personal responses to IS | Emotions (positive and negative) triggered by working with the IS | |
| Meaning of information & data | Distinctions made or differences mentioned between data and information | |
| Full vision | Re-thinking about how IT/IS should support public health and what changes should occur to new systems |