Literature DB >> 24633726

Cancer, adolescence, and their peers: "they'll give you a story".

Maurizio Mascarin1, Ivana Truccolo, Elena Byther, Daniela Capone, Caterina Elia.   

Abstract

Following the model of other international oncology units, a framework was developed to create a special unit for adolescents and young adults (Youth Area) within a cancer research hospital in Italy by defining relevant parameters to improve personalized healthcare delivery and the reduction of the impact of the disease on 14-24 year old patients. The intervention became fully operational in 2007 and allows patients and their families to make decisions on their own care. The concept of "Youth Area" denotes an open model for society to put the patient back into the center of clinical care. We directly want to involve our adolescent and young adult (AYA) patients in participating in conferences so they themselves can send out a positive message to their healthy peers. Furthermore, activities centered on the normal development of AYA patients are encouraged. To highlight this innovative concept, the Youth Area has sponsored various published books. We believe that this intervention may represent an effective new tool for cancer patient care in young Italians.

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Year:  2014        PMID: 24633726     DOI: 10.1007/s13187-014-0635-9

Source DB:  PubMed          Journal:  J Cancer Educ        ISSN: 0885-8195            Impact factor:   2.037


  19 in total

Review 1.  Been there, done that, wrote the blog: the choices and challenges of supporting adolescents and young adults with cancer.

Authors:  Claire L Treadgold; Aura Kuperberg
Journal:  J Clin Oncol       Date:  2010-03-29       Impact factor: 44.544

2.  Sex, drugs, and rock 'n' roll: caring for adolescents and young adults with cancer.

Authors:  Sue Morgan; Simon Davies; Susan Palmer; Meg Plaster
Journal:  J Clin Oncol       Date:  2010-05-24       Impact factor: 44.544

3.  Starting an adolescent and young adult program: some success stories and some obstacles to overcome.

Authors:  Andrea Ferrari; David Thomas; Anna R K Franklin; Brandon M Hayes-Lattin; Maurizio Mascarin; Winette van der Graaf; Karen H Albritton
Journal:  J Clin Oncol       Date:  2010-05-17       Impact factor: 44.544

Review 4.  The adolescent with cancer--at the edge of no-man's land.

Authors:  R Hollis; S Morgan
Journal:  Lancet Oncol       Date:  2001-01       Impact factor: 41.316

5.  Assessing the health care needs of adolescent and young adult cancer patients and survivors.

Authors:  Brad Zebrack; Archie Bleyer; Karen Albritton; Sandra Medearis; Julia Tang
Journal:  Cancer       Date:  2006-12-15       Impact factor: 6.860

Review 6.  The distinctive biology of cancer in adolescents and young adults.

Authors:  Archie Bleyer; Ronald Barr; Brandon Hayes-Lattin; David Thomas; Chad Ellis; Barry Anderson
Journal:  Nat Rev Cancer       Date:  2008-04       Impact factor: 60.716

Review 7.  Challenges in the recruitment of adolescents and young adults to cancer clinical trials.

Authors:  Megan E Burke; Karen Albritton; Neyssa Marina
Journal:  Cancer       Date:  2007-12-01       Impact factor: 6.860

Review 8.  Young adult oncology: the patients and their survival challenges.

Authors:  Archie Bleyer
Journal:  CA Cancer J Clin       Date:  2007 Jul-Aug       Impact factor: 508.702

9.  The Youth Project at the Istituto Nazionale Tumori in Milan.

Authors:  Andrea Ferrari; Carlo Alfredo Clerici; Michela Casanova; Roberto Luksch; Monica Terenziani; Filippo Spreafico; Daniela Polastri; Cristina Meazza; Laura Veneroni; Serena Catania; Elisabetta Schiavello; Veronica Biassoni; Marta Podda; Maura Massimino
Journal:  Tumori       Date:  2012 Jul-Aug

10.  Survival from cancer in teenagers and young adults in England, 1979-2003.

Authors:  J M Birch; D Pang; R D Alston; S Rowan; M Geraci; A Moran; T O B Eden
Journal:  Br J Cancer       Date:  2008-08-19       Impact factor: 7.640

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  5 in total

1.  A Textual Analysis for Understanding the Relations and the Identity Construction in Adolescent Oncology Patients: Retrospective Personal Views in Order to Educate Health Professionals.

Authors:  Francesca Bomben; Maurizio Mascarin; Giuseppe Maria Milano; Paola Quarello; Marco Spinelli; Assunta Tornesello; Carlo Alfredo Clerici; Federico Mercolini; Domitilla Elena Secco; Maria Antonietta Annunziata; Andrea Ferrari; Marina Bertolotti
Journal:  Behav Sci (Basel)       Date:  2022-04-21

2.  "Others Like Me". An Approach to the Use of the Internet and Social Networks in Adolescents and Young Adults Diagnosed with Cancer.

Authors:  Martí Domínguez; Lucía Sapiña
Journal:  J Cancer Educ       Date:  2017-12       Impact factor: 2.037

3.  Patient-Centered Cancer Care Programs in Italy: Benchmarking Global Patient Education Initiatives.

Authors:  Ivana Truccolo; Chiara Cipolat Mis; Silvia Cervo; Luigino Dal Maso; Marilena Bongiovanni; Alessandra Bearz; Ivana Sartor; Paolo Baldo; Emanuela Ferrarin; Lucia Fratino; Maurizio Mascarin; Mario Roncadin; Maria Antonietta Annunziata; Barbara Muzzatti; Paolo De Paoli
Journal:  J Cancer Educ       Date:  2016-06       Impact factor: 2.037

4.  Other side of the coin for personalised medicine and healthcare: content analysis of 'personalised' practices in the literature.

Authors:  Tomris Cesuroglu; Elena Syurina; Frans Feron; Anja Krumeich
Journal:  BMJ Open       Date:  2016-07-13       Impact factor: 2.692

5.  The 4YouLab Model: A Dedicated-Program for Adolescents and Young Adults With Cancer in a Children's Hospital.

Authors:  Andrea De Salvo; Maria Antonietta De Ioris; Domitilla Secco; Francesca Bevilacqua; Roberto Premuselli; Matteo Amicucci; Italo Ciaralli; Francesca Santato; Angela Mastronuzzi; Giuseppe Maria Milano
Journal:  Front Oncol       Date:  2021-07-01       Impact factor: 6.244

  5 in total

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