Literature DB >> 24623662

Recommendations for internet-based qualitative health research with hard-to-reach populations.

J Michael Wilkerson1, Alex Iantaffi, Jeremy A Grey, Walter O Bockting, B R Simon Rosser.   

Abstract

Researchers new to online qualitative health research frequently have questions about how to transfer knowledge of offline data collection to an online environment. In this article, we present best-practice guidelines derived from the literature and our experience to help researchers determine if an online qualitative study design is appropriate for their research project and, if so, when to begin data collection with a hard-to-reach population. Researchers should reflect on administrative, population, and data collection considerations when deciding between online and offline data collection. Decisions must be made regarding whether to conduct interviews or focus groups, to collect data using asynchronous or synchronous methods, and to use only text or to incorporate visual media. Researchers should also reflect on human subjects, recruitment, research instrumentation, additional data collection, and public relations considerations when writing protocols to guide the research team's response to various situations. Our recommendations direct researchers' reflection on these considerations.

Entities:  

Keywords:  Internet; gays and lesbians; gender; research, qualitative; teaching/learning strategies; technology, use in research

Mesh:

Year:  2014        PMID: 24623662      PMCID: PMC4077019          DOI: 10.1177/1049732314524635

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  16 in total

1.  Community-academic research on hard-to-reach populations: benefits and challenges.

Authors:  Cecilia Benoit; Mikael Jansson; Alison Millar; Rachel Phillips
Journal:  Qual Health Res       Date:  2005-02

2.  An online forum as a qualitative research method: practical issues.

Authors:  Eun-Ok Im; Wonshik Chee
Journal:  Nurs Res       Date:  2006 Jul-Aug       Impact factor: 2.381

3.  Evaluating internet interviews with gay men.

Authors:  Russel Ayling; Avril J Mewse
Journal:  Qual Health Res       Date:  2009-04

4.  HIV risk behaviors in the U.S. transgender population: prevalence and predictors in a large internet sample.

Authors:  Jamie Feldman; Rebecca Swinburne Romine; Walter O Bockting
Journal:  J Homosex       Date:  2014

5.  Views from both sides of the bridge? Gender, sexual legitimacy and transgender people's experiences of relationships.

Authors:  Alex Iantaffi; Walter O Bockting
Journal:  Cult Health Sex       Date:  2011-03

6.  Health behavior changes after colon cancer: a comparison of findings from face-to-face and on-line focus groups.

Authors:  M Kramish Campbell; A Meier; C Carr; Z Enga; A S James; J Reedy; B Zheng
Journal:  Fam Community Health       Date:  2001-10

7.  Interaction in cyberspace: an online focus group.

Authors:  Amanda J Kenny
Journal:  J Adv Nurs       Date:  2005-02       Impact factor: 3.187

8.  The "virtual focus group": using the Internet to reach pregnant women on home bed rest.

Authors:  Carrie L Adler; Yosepha Rose Zarchin
Journal:  J Obstet Gynecol Neonatal Nurs       Date:  2002 Jul-Aug

9.  The SEM Risk Behavior (SRB) Model: A New Conceptual Model of how Pornography Influences the Sexual Intentions and HIV Risk Behavior of MSM.

Authors:  J Michael Wilkerson; Alex Iantaffi; Derek J Smolenski; Sonya S Brady; Keith J Horvath; Jeremy A Grey; B R Simon Rosser
Journal:  Sex Relation Ther       Date:  2012-10-24

10.  Online focus groups as a tool to collect data in hard-to-include populations: examples from paediatric oncology.

Authors:  Kiek Tates; Marieke Zwaanswijk; Roel Otten; Sandra van Dulmen; Peter M Hoogerbrugge; Willem A Kamps; Jozien M Bensing
Journal:  BMC Med Res Methodol       Date:  2009-03-03       Impact factor: 4.615

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  19 in total

1.  Lessons Learned Designing and Using an Online Discussion Forum for Care Coordinators in Primary Care.

Authors:  Jeanne M Ferrante; Asia Friedman; Eric K Shaw; Jenna Howard; Deborah J Cohen; Laleh Shahidi
Journal:  Qual Health Res       Date:  2016-07-11

2.  Unmet support needs of sexual and gender minority breast cancer survivors.

Authors:  Maria Teresa Brown; Jane A McElroy
Journal:  Support Care Cancer       Date:  2017-10-28       Impact factor: 3.603

3.  Examining the relationship between use of sexually explicit media and sexual risk behavior in a sample of men who have sex with men in Norway.

Authors:  Bente Træen; Syed W Noor; Gert Martin Hald; B R Simon Rosser; Sonya S Brady; Darin Erickson; Dylan L Galos; Jeremy A Grey; Keith J Horvath; Alex Iantaffi; Gudruna Kilian; J Michael Wilkerson
Journal:  Scand J Psychol       Date:  2015-02-16

4.  Attitudes About the Use of Geosocial Networking Applications for HIV/STD Partner Notification: A Qualitative Study.

Authors:  Marielle Goyette Contesse; Rob J Fredericksen; Dan Wohlfeiler; Jen Hecht; Rachel Kachur; F V Strona; David A Katz
Journal:  AIDS Educ Prev       Date:  2019-06

5.  HIV self-testing may overcome stigma and other barriers to HIV testing among higher-socioeconomic status men in Botswana: A qualitative study.

Authors:  Laura M Bogart; Keonayang Kgotlaetsile; Nthabiseng Phaladze; Mosepele Mosepele
Journal:  Afr J AIDS Res       Date:  2021-12       Impact factor: 1.300

6.  Sex in the Context of Substance Use: A Study of Perceived Benefits and Risks, Boundaries, and Behaviors among Adolescents Participating in an Internet-Based Intervention.

Authors:  Sonya S Brady; Suzanne C Jefferson; Ellen Saliares; Carolyn M Porta; Megan E Patrick
Journal:  Arch Sex Behav       Date:  2021-11-18

7.  Sexually Experienced Adolescents' Thoughts About Sexual Pleasure.

Authors:  Ellen Saliares; J Michael Wilkerson; Renee E Sieving; Sonya S Brady
Journal:  J Sex Res       Date:  2016-04-27

8.  Advantages of asynchronous online focus groups and face-to-face focus groups as perceived by child, adolescent and adult participants: a survey study.

Authors:  Marieke Zwaanswijk; Sandra van Dulmen
Journal:  BMC Res Notes       Date:  2014-10-24

9.  Recruiting 'hard to reach' parents for health promotion research: experiences from a qualitative study.

Authors:  Louise Tully; Eleni Spyreli; Virginia Allen-Walker; Karen Matvienko-Sikar; Sheena McHugh; Jayne Woodside; Michelle C McKinley; Patricia M Kearney; Moira Dean; Catherine Hayes; Caroline Heary; Colette Kelly
Journal:  BMC Res Notes       Date:  2021-07-21

10.  "Not having a minute of self-distancing during the social distancing is exhausting": a qualitative study on the perspective of caregivers of youth with type 1 diabetes during the COVID-19 pandemic.

Authors:  Janine Alessi; Giovana B de Oliveira; Isadora N Erthal; Julia B Teixeira; Milena S Morello; Raquel J E Ribeiro; Taíse R de Carvalho; Eduarda H Jaeger; Beatriz D Schaan; Gabriela H Telo
Journal:  Acta Diabetol       Date:  2021-06-16       Impact factor: 4.280

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