Literature DB >> 24613097

Evaluation of an intervention among adolescents to reduce preventive misconception in HIV vaccine clinical trials.

Michelle Lally1, Richard Goldsworthy2, Moussa Sarr3, Jessica Kahn4, Larry Brown5, Ligia Peralta6, Gregory Zimet7.   

Abstract

PURPOSE: Placebo and randomization are important concepts that must be understood before youth can safely participate in HIV vaccine studies or other biomedical trials for HIV prevention. These concepts are central to the phenomenon of preventive misconception that may be associated with an increase in risk behavior among study participants related to mistaken beliefs. Persuasive messaging, traditionally used in the field of marketing, could enhance educational efforts associated with randomized clinical trials.
METHODS: Two educational brochures were designed to increase knowledge about HIV vaccine clinical trials via one- and two-sided persuasive messaging. Through the Adolescent Medicine Trials Network, 120 youth were enrolled, administered a mock HIV vaccine trial consent, and then randomized to receive either no supplemental information or one of the two brochures.
RESULTS: The two-sided brochure group in which common clinical trial misconceptions were acknowledged and then refuted had significantly higher scores on knowledge of randomization and interpretation of side effects than the consent-only control group, and the willingness to participate in an HIV vaccine trial was not decreased with the use of this brochure.
CONCLUSION: Two-sided persuasive messaging improves understanding of the concepts of randomization and placebo among youth who would consider participating in an HIV vaccine trial. Further evaluation of this approach should be considered for at-risk youth participating in an actual trial of a biomedical intervention for HIV prevention.
Copyright © 2014 Society for Adolescent Health and Medicine. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Adolescent clinical trials; Adolescents; HIV; HIV vaccine trials; Preventive misconception

Mesh:

Substances:

Year:  2014        PMID: 24613097      PMCID: PMC4108563          DOI: 10.1016/j.jadohealth.2014.01.006

Source DB:  PubMed          Journal:  J Adolesc Health        ISSN: 1054-139X            Impact factor:   5.012


  20 in total

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Review 2.  Interventions to improve research participants' understanding in informed consent for research: a systematic review.

Authors:  James Flory; Ezekiel Emanuel
Journal:  JAMA       Date:  2004-10-06       Impact factor: 56.272

3.  Behavioral considerations for engaging youth in HIV clinical research.

Authors:  Sybil G Hosek; Gregory D Zimet
Journal:  J Acquir Immune Defic Syndr       Date:  2010-07       Impact factor: 3.731

4.  Preventive misconception: its nature, presence, and ethical implications for research.

Authors:  Alan E Simon; Albert W Wu; Philip W Lavori; Jeremy Sugarman
Journal:  Am J Prev Med       Date:  2007-05       Impact factor: 5.043

5.  Adolescents' understanding of research concepts: a focus group study.

Authors:  Diane R Blake; Celeste A Lemay; Margaret H Kearney; Kathleen M Mazor
Journal:  Arch Pediatr Adolesc Med       Date:  2011-06

6.  Preventive misconception and adolescents' knowledge about HIV vaccine trials.

Authors:  Mary A Ott; Andreia B Alexander; Michelle Lally; John B Steever; Gregory D Zimet
Journal:  J Med Ethics       Date:  2013-01-25       Impact factor: 2.903

7.  Behavioral interventions to increase HPV vaccination acceptability among mothers of young girls.

Authors:  Dena S Cox; Anthony D Cox; Lynne Sturm; Greg Zimet
Journal:  Health Psychol       Date:  2010-01       Impact factor: 4.267

8.  Measuring numeracy without a math test: development of the Subjective Numeracy Scale.

Authors:  Angela Fagerlin; Brian J Zikmund-Fisher; Peter A Ubel; Aleksandra Jankovic; Holly A Derry; Dylan M Smith
Journal:  Med Decis Making       Date:  2007-07-19       Impact factor: 2.583

9.  Development and validation of a short-form, rapid estimate of adult literacy in medicine.

Authors:  Ahsan M Arozullah; Paul R Yarnold; Charles L Bennett; Robert C Soltysik; Michael S Wolf; Rosario M Ferreira; Shoou-Yih D Lee; Stacey Costello; Adil Shakir; Caroline Denwood; Fred B Bryant; Terry Davis
Journal:  Med Care       Date:  2007-11       Impact factor: 2.983

10.  Enrolling adolescents in HIV vaccine trials: reflections on legal complexities from South Africa.

Authors:  Catherine Slack; Ann Strode; Theodore Fleischer; Glenda Gray; Chitra Ranchod
Journal:  BMC Med Ethics       Date:  2007-05-13       Impact factor: 2.652

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  13 in total

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Authors:  Susan L Rosenthal; Marilyn C Morris; Lily F Hoffman; Gregory D Zimet
Journal:  Clin Pract Pediatr Psychol       Date:  2018-05-24

2.  Adolescent decision making about participation in a hypothetical HIV vaccine trial.

Authors:  Andreia B Alexander; Mary A Ott; Michelle A Lally; Kevin Sniecinski; Alyne Baker; Gregory D Zimet
Journal:  Vaccine       Date:  2015-01-30       Impact factor: 3.641

3.  Adolescent and Parent Perceptions about Participation in Biomedical Sexual Health Trials.

Authors:  Sara E Landers; Jenny K R Francis; Marilyn C Morris; Christine Mauro; Susan L Rosenthal
Journal:  Ethics Hum Res       Date:  2020-05

4.  Preventive Misconception and Risk Behaviors in a Multinational HIV Prevention Trial.

Authors:  Jeremy Sugarman; Li Lin; Jared M Baeten; Thesla Palanee-Phillips; Elizabeth R Brown; Flavia Matovu Kiweewa; Nyaradzo M Mgodi; Gonasagrie Nair; Samantha Siva; Damon M Seils; Kevin P Weinfurt
Journal:  AJOB Empir Bioeth       Date:  2019-04-19

5.  Self-Consent for HIV Prevention Research Involving Sexual and Gender Minority Youth: Reducing Barriers Through Evidence-Based Ethics.

Authors:  Celia B Fisher; Miriam R Arbeit; Melissa S Dumont; Kathryn Macapagal; Brian Mustanski
Journal:  J Empir Res Hum Res Ethics       Date:  2016-03-07       Impact factor: 1.742

6.  Adolescents with substance use disorder and assent/consent: Empirical data on understanding biobank risks in genomic research.

Authors:  Marilyn E Coors; Kristen M Raymond; Christian J Hopfer; Joseph Sakai; Shannon K McWilliams; Susan Young; Susan K Mikulich-Gilbertson
Journal:  Drug Alcohol Depend       Date:  2015-12-21       Impact factor: 4.492

7.  Does the Ring Work? Perceptions and Understanding of the Efficacy of a Dapivirine Vaginal Ring for HIV Prevention Amongst Women in a Placebo-Controlled Trial.

Authors:  Juliane Etima; Ariana W K Katz; Zoe Duby; Morgan Garcia; Thesla Palanee-Phillips; Krishnaveni Reddy; Florence Mathebula; Chifundo Zimba; Leila E Mansoor; Devika Singh; Elmah Manengamambo; Sarita Naidoo; Lydia Soto-Torres; Elizabeth T Montgomery
Journal:  AIDS Behav       Date:  2021-11-02

8.  Towards a Science of Community Stakeholder Engagement in Biomedical HIV Prevention Trials: An Embedded Four-Country Case Study.

Authors:  Peter A Newman; Clara Rubincam; Catherine Slack; Zaynab Essack; Venkatesan Chakrapani; Deng-Min Chuang; Suchon Tepjan; Murali Shunmugam; Surachet Roungprakhon; Carmen Logie; Jennifer Koen; Graham Lindegger
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9.  I'm positive, but i'm negative: Competing Voices in Informed Consent and Implications for HIV vaccine trials.

Authors:  Clinton Rautenbach; Graham Lindegger; Catherine Slack; Melissa Wallace; Peter Newman
Journal:  J Empir Res Hum Res Ethics       Date:  2015-04       Impact factor: 1.742

10.  ". . . I've Gone Through This My Own Self, So I Practice What I Preach . . . ".

Authors:  Catherine Slack; Siya Thabethe; Graham Lindegger; Limba Matandika; Peter A Newman; Philippa Kerr; Doug Wassenaar; Surita Roux; Linda-Gail Bekker
Journal:  J Empir Res Hum Res Ethics       Date:  2016-11-09       Impact factor: 1.742

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