Literature DB >> 24477169

Identifying socio-environmental factors that facilitate resilience among Canadian palliative family caregivers: a qualitative case study.

Melissa Giesbrecht1, Faye Wolse2, Valorie A Crooks1, Kelli Stajduhar2.   

Abstract

OBJECTIVE: In Canada, friends and family members are becoming increasingly responsible for providing palliative care in the home. This is resulting in some caregivers experiencing high levels of stress and burden that may ultimately surpass their ability to cope. Recent palliative care research has demonstrated the potential for caregiver resilience within such contexts. This research, however, is primarily focused on exploring individual-level factors that contribute to resilience, minimizing the inherent complexity of this concept, and how it is simultaneously influenced by one's social context. Therefore, our study aims to identify socio-environmental factors that contribute to palliative family caregiver resilience in the Canadian homecare context.
METHODS: Drawing on ethnographic fieldnotes and semistructured interviews with family caregivers, care recipients, and homecare nurses, this secondary analysis employs an intersectionality lens and qualitative case study approach to identify socio-environmental factors that facilitate family caregivers' capacity for resilience. Following a case study methodology, two cases are purposely selected for analysis.
RESULTS: Findings demonstrate that family caregiver resilience is influenced not only by individual-level factors but also by the social environment, which sets the lived context from which caregiving roles are experienced. Thematic findings of the two case studies revealed six socio-environmental factors that play a role in shaping resilience: access to social networks, education/knowledge/awareness, employment status, housing status, geographic location, and life-course stage. SIGNIFICANCE OF
RESULTS: Findings contribute to existing research on caregiver resilience by empirically demonstrating the role of socio-environmental factors in caregiving experiences. Furthermore, utilizing an intersectional approach, these findings build on existing notions that resilience is a multidimensional and complex process influenced by numerous related variables that intersect to create either positive or negative experiences. The implications of the results for optimizing best homecare nursing practice are discussed.

Keywords:  Ethnography; Family caregivers; Palliative; Resilience; Social environment

Mesh:

Year:  2013        PMID: 24477169     DOI: 10.1017/S1478951513001028

Source DB:  PubMed          Journal:  Palliat Support Care        ISSN: 1478-9515


  6 in total

1.  Differences within Differences: Gender Inequalities in Caregiving Intensity Vary by Race and Ethnicity in Informal Caregivers.

Authors:  Steven A Cohen; Natalie J Sabik; Sarah K Cook; Ariana B Azzoli; Carolyn A Mendez-Luck
Journal:  J Cross Cult Gerontol       Date:  2019-09

Review 2.  [Considering diversity in nursing and palliative care - the example of migrants].

Authors:  Patrick Brzoska; Yüce Yilmaz-Aslan; Stephan Probst
Journal:  Z Gerontol Geriatr       Date:  2017-06-14       Impact factor: 1.281

3.  The effect of bereavement groups on grief, anxiety, and depression - a controlled, prospective intervention study.

Authors:  Ulla Näppä; Ann-Britt Lundgren; Bertil Axelsson
Journal:  BMC Palliat Care       Date:  2016-07-12       Impact factor: 3.234

4.  Caregiving at the margins: An ethnographic exploration of family caregivers experiences providing care for structurally vulnerable populations at the end-of-life.

Authors:  Kelli I Stajduhar; Melissa Giesbrecht; Ashley Mollison; Naheed Dosani; Ryan McNeil
Journal:  Palliat Med       Date:  2020-04-27       Impact factor: 4.762

5.  The power of informal cancer caregivers' writings: results from a thematic and narrative analysis.

Authors:  Nicoletta Suter; Giulia Ardizzone; Guido Giarelli; Lucia Cadorin; Nicolas Gruarin; Chiara Cipolat Mis; Nancy Michilin; Alessandra Merighi; Ivana Truccolo
Journal:  Support Care Cancer       Date:  2021-01-09       Impact factor: 3.359

6.  "Just too busy living in the moment and surviving": barriers to accessing health care for structurally vulnerable populations at end-of-life.

Authors:  K I Stajduhar; A Mollison; M Giesbrecht; R McNeil; B Pauly; S Reimer-Kirkham; N Dosani; B Wallace; G Showler; C Meagher; K Kvakic; D Gleave; T Teal; C Rose; C Showler; K Rounds
Journal:  BMC Palliat Care       Date:  2019-01-26       Impact factor: 3.234

  6 in total

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