Literature DB >> 24456684

A critical assessment of supported decision-making for persons aging with intellectual disabilities.

Nina A Kohn1, Jeremy A Blumenthal2.   

Abstract

Supported decision-making is increasingly being promoted as an alternative to guardianship for persons aging with intellectual disabilities. Proponents argue that supported decision-making, unlike guardianship, empowers persons with disabilities by providing them with help in making their own decisions, rather than simply providing someone else to make decisions for them. To evaluate the empirical support for these claims, we reviewed the evidence base on supported decision-making. Our review found little such empirical research, suggesting that significant further research is warranted to determine whether--and under what conditions--supported decision-making can benefit persons with intellectual disabilities. Indeed, without more empirical evidence as to how supported decision-making functions in practice, it is too early to rule out the possibility it may actually disempower individuals with disabilities by facilitating undue influence by their alleged supporters. We therefore suggest several key areas for future research.
Copyright © 2014 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Aging; Guardianship; Intellectual disability; Law; Supported decision-making

Mesh:

Year:  2013        PMID: 24456684     DOI: 10.1016/j.dhjo.2013.03.005

Source DB:  PubMed          Journal:  Disabil Health J        ISSN: 1876-7583            Impact factor:   2.554


  9 in total

1.  Is Safety in the Eye of the Beholder? Safeguards in Research With Adults With Intellectual Disability.

Authors:  Katherine E McDonald; Nicole E Conroy; Carolyn I Kim; Emily J LoBraico; Ellis M Prather; Robert S Olick
Journal:  J Empir Res Hum Res Ethics       Date:  2016-07-31       Impact factor: 1.742

2.  What's the Harm? Harms in Research With Adults With Intellectual Disability.

Authors:  Katherine E McDonald; Nicole E Conroy; Robert S Olick; The Project Ethics Expert Panel
Journal:  Am J Intellect Dev Disabil       Date:  2017-01

Review 3.  Supported Decision-Making: Implications from Positive Psychology for Assessment and Intervention in Rehabilitation and Employment.

Authors:  Hatice Uyanik; Karrie A Shogren; Peter Blanck
Journal:  J Occup Rehabil       Date:  2017-12

4.  "You can't be cold and scientific": community views on ethical issues in intellectual disability research.

Authors:  Katherine E McDonald; Nicole M Schwartz; Colleen M Gibbons; Robert S Olick
Journal:  J Empir Res Hum Res Ethics       Date:  2015-03-13       Impact factor: 1.742

5.  Psychiatric Advance Directives Under the Convention on the Rights of Persons With Disabilities: Why Advance Instructions Should Be Able to Override Current Preferences.

Authors:  Matthé Scholten; Astrid Gieselmann; Jakov Gather; Jochen Vollmann
Journal:  Front Psychiatry       Date:  2019-09-11       Impact factor: 4.157

6.  Equality in the Informed Consent Process: Competence to Consent, Substitute Decision-Making, and Discrimination of Persons with Mental Disorders.

Authors:  Matthé Scholten; Jakov Gather; Jochen Vollmann
Journal:  J Med Philos       Date:  2021-01-25

7.  Genetic Testing on Patients with Developmental Delay: A Preliminary Study from the Perspective of Physicians.

Authors:  Gwanwook Bang; Sook Joung Lee; Bomyee Lee; Minji Park; So-Youn Park
Journal:  Healthcare (Basel)       Date:  2022-07-02

8.  Supported Decision Making in South America: Analysis of Three Countries' Experiences.

Authors:  Alberto Vásquez Encalada; Kimber Bialik; Kaitlin Stober
Journal:  Int J Environ Res Public Health       Date:  2021-05-13       Impact factor: 3.390

9.  Adverse consequences of article 12 of the UN Convention on the Rights of Persons with Disabilities for persons with mental disabilities and an alternative way forward.

Authors:  Matthé Scholten; Jakov Gather
Journal:  J Med Ethics       Date:  2017-10-25       Impact factor: 2.903

  9 in total

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