Literature DB >> 24362765

Measuring pediatric patient-reported outcomes: good progress but a long way to go.

I-Chan Huang1, Dennis A Revicki, Carolyn E Schwartz.   

Abstract

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Year:  2014        PMID： 24362765      PMCID： PMC4301734          DOI： 10.1007/s11136-013-0607-2

Source DB:  PubMed          Journal:  Qual Life Res        ISSN： 0962-9343            Impact factor:   4.147


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  16 in total

1.  An evaluation of a psychosocial intervention for survivors of childhood cancer: paradoxical effects of response shift over time.

Authors:  C E Schwartz; R G Feinberg; E Jilinskaia; J C Applegate
Journal:  Psychooncology       Date:  1999 Jul-Aug       Impact factor: 3.894

Review 2.  Patient-important activity and participation outcomes in clinical trials involving children with chronic conditions.

Authors:  Nora Fayed; Olaf Kraus de Camargo; Inam Elahi; Ankita Dubey; Ricardo M Fernandes; Amy Houtrow; Eyal Cohen
Journal:  Qual Life Res       Date:  2013-09-13       Impact factor: 4.147

Review 3.  Recommended methods for determining responsiveness and minimally important differences for patient-reported outcomes.

Authors:  Dennis Revicki; Ron D Hays; David Cella; Jeff Sloan
Journal:  J Clin Epidemiol       Date:  2007-08-03       Impact factor: 6.437

4.  Association between the prevalence of symptoms and health-related quality of life in adult survivors of childhood cancer: a report from the St Jude Lifetime Cohort study.

Authors:  I-Chan Huang; Tara M Brinkman; Kelly Kenzik; James G Gurney; Kirsten K Ness; Jennifer Lanctot; Elizabeth Shenkman; Leslie L Robison; Melissa M Hudson; Kevin R Krull
Journal:  J Clin Oncol       Date:  2013-10-14       Impact factor: 44.544

5.  Health-Related Quality of Life of Young Adult Survivors of Childhood Cancer: A Review of Qualitative Studies.

Authors:  Chandylen L Nightingale; Gwendolyn P Quinn; Elizabeth A Shenkman; Barbara A Curbow; Bradley J Zebrack; Kevin R Krull; I-Chan Huang
Journal:  J Adolesc Young Adult Oncol       Date:  2011-09       Impact factor: 2.223

Review 6.  A review of patient-reported outcomes for children and adolescents with obesity.

Authors:  Bani Ahuja; Anne F Klassen; Randi Satz; Nikita Malhotra; Elena Tsangaris; Matthew Ventresca; Nora Fayed
Journal:  Qual Life Res       Date:  2013-06-26       Impact factor: 4.147

7.  Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes.

Authors:  I B Wilson; P D Cleary
Journal:  JAMA       Date:  1995-01-04       Impact factor: 56.272

Review 8.  Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues.

Authors:  Louis S Matza; Andrine R Swensen; Emuella M Flood; Kristina Secnik; Nancy Kline Leidy
Journal:  Value Health       Date:  2004 Jan-Feb       Impact factor: 5.725

Review 9.  Evidence that school-age children can self-report on their health.

Authors:  Anne W Riley
Journal:  Ambul Pediatr       Date:  2004 Jul-Aug

10.  The European KIDSCREEN approach to measure quality of life and well-being in children: development, current application, and future advances.

Authors:  Ulrike Ravens-Sieberer; Michael Herdman; Janine Devine; Christiane Otto; Monika Bullinger; Matthias Rose; Fionna Klasen
Journal:  Qual Life Res       Date:  2013-05-18       Impact factor: 4.147
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  16 in total

1.  Alignment of parent- and child-reported outcomes and histology in eosinophilic esophagitis across multiple CEGIR sites.

Authors:  Seema S Aceves; Eileen King; Margaret H Collins; Guang-Yu Yang; Kelley E Capocelli; J Pablo Abonia; Dan Atkins; Peter A Bonis; Christina L Carpenter; Evan S Dellon; Michael D Eby; Gary W Falk; Nirmala Gonsalves; Sandeep K Gupta; Ikuo Hirano; Kendra Kocher; Jeffrey P Krischer; John Leung; Jessi Lipscomb; Paul Menard-Katcher; Vincent A Mukkada; Zhaoxing Pan; Jonathan M Spergel; Qin Sun; Barry K Wershil; Marc E Rothenberg; Glenn T Furuta
Journal:  J Allergy Clin Immunol       Date:  2018-05-29       Impact factor: 10.793

2.  A person-centred analysis of the time-use, daily activities and health-related quality of life of Irish school-going late adolescents.

Authors:  Eithne Hunt; Elizabeth A McKay; Darren L Dahly; Anthony P Fitzgerald; Ivan J Perry
Journal:  Qual Life Res       Date:  2014-11-15       Impact factor: 4.147

3.  Toward Patient-Centered Innovation: A Conceptual Framework for Patient-Reported Outcome Measures for Transformative Kidney Replacement Devices.

Authors:  Jennifer E Flythe; Tandrea S Hilliard; Kourtney Ikeler; San Keller; Debbie S Gipson; Amanda C Grandinetti; Robert J Nordyke; Ronald D Perrone; Prabir Roy-Chaudhury; Mark Unruh; Melissa West; Fraser Bocell; Frank P Hurst
Journal:  Clin J Am Soc Nephrol       Date:  2020-04-10       Impact factor: 8.237

Review 4.  What is QOL in children and adolescents with physical disabilities? A thematic synthesis of pediatric QOL literature.

Authors:  Nikki Ow; Adriana Appau; Mohamad Matout; Nancy E Mayo
Journal:  Qual Life Res       Date:  2021-02-07       Impact factor: 4.147

5.  Avoidant coping and diabetes-related distress: Pathways to adolescents' Type 1 diabetes outcomes.

Authors:  Esti Iturralde; Jill Weissberg-Benchell; Korey K Hood
Journal:  Health Psychol       Date:  2016-11-03       Impact factor: 4.267

6.  Health-related quality of life among children, adolescents, and adults with bladder exstrophy-epispadias complex: a systematic review of the literature and recommendations for future research.

Authors:  Michaela Dellenmark-Blom; Sofia Sjöström; Kate Abrahamsson; Gundela Holmdahl
Journal:  Qual Life Res       Date:  2019-02-06       Impact factor: 4.147

7.  Feasibility of Assessing Adolescent and Young Adult Heart Transplant Recipient Mental Health and Resilience Using Patient-Reported Outcome Measures.

Authors:  Tyler Brown; Sharon Chen; Zhining Ou; Nancy McDonald; Laura Bennett-Murphy; Lauren Schneider; Lisa Giles; Kimberly Molina; Daniel Cox; Arvind Hoskoppal; Kristi Glotzbach; Josef Stehlik; Lindsay May
Journal:  J Acad Consult Liaison Psychiatry       Date:  2021-08-24

8.  Association of consistently suboptimal quality of life with consistently poor asthma control in children with asthma.

Authors:  Carrie R Howell; Lindsay A Thompson; Heather E Gross; Bryce B Reeve; Shih-Wen Huang; Darren A DeWalt; I-Chan Huang
Journal:  Ann Allergy Asthma Immunol       Date:  2017-11-06       Impact factor: 6.347

9.  Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures.

Authors:  Christopher Morris; Astrid Janssens; Valerie Shilling; Amanda Allard; Andrew Fellowes; Richard Tomlinson; Jane Williams; Jo Thompson Coon; Morwenna Rogers; Bryony Beresford; Colin Green; Crispin Jenkinson; Alan Tennant; Stuart Logan
Journal:  Health Qual Life Outcomes       Date:  2015-06-25       Impact factor: 3.186

10.  Development of the web-based Spanish and Catalan versions of the Euroqol 5D-Y (EQ-5D-Y) and comparison of results with the paper version.

Authors:  Noemí Robles; Luis Rajmil; Dolors Rodriguez-Arjona; Marta Azuara; Francisco Codina; Hein Raat; Ulrike Ravens-Sieberer; Michael Herdman
Journal:  Health Qual Life Outcomes       Date:  2015-06-03       Impact factor: 3.186
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