Literature DB >> 24294625

Dynamic consent in the digital age of biology: online initiatives and regulatory considerations.

Richman Wee1, Mark Henaghan, Ingrid Winship.   

Abstract

Mesh：

Year:  2013        PMID： 24294625

Source DB:  PubMed          Journal:  J Prim Health Care        ISSN： 1172-6156


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  5 in total

Review 1.  Privacy challenges and research opportunities for genomic data sharing.

Authors:  Luca Bonomi; Yingxiang Huang; Lucila Ohno-Machado
Journal:  Nat Genet       Date:  2020-06-29       Impact factor: 38.330

2.  METORY: Development of a Demand-Driven Blockchain-Based Dynamic Consent Platform Tailored for Clinical Trials.

Authors:  Ki Young Huh; Sang-Un Jeong; Seol Ju Moon; Min-Ji Kim; Wooseok Yang; Myeonggyu Jeong; Ildae Song; Yong-Geun Kwak; SeungHwan Lee; Min-Gul Kim
Journal:  Front Med (Lausanne)       Date:  2022-05-13

3.  Broad Consent for Research With Biological Samples: Workshop Conclusions.

Authors:  Christine Grady; Lisa Eckstein; Ben Berkman; Dan Brock; Robert Cook-Deegan; Stephanie M Fullerton; Hank Greely; Mats G Hansson; Sara Hull; Scott Kim; Bernie Lo; Rebecca Pentz; Laura Rodriguez; Carol Weil; Benjamin S Wilfond; David Wendler
Journal:  Am J Bioeth       Date:  2015       Impact factor: 11.229

4.  Redefining genomic privacy: trust and empowerment.

Authors:  Yaniv Erlich; James B Williams; David Glazer; Kenneth Yocum; Nita Farahany; Maynard Olson; Arvind Narayanan; Lincoln D Stein; Jan A Witkowski; Robert C Kain
Journal:  PLoS Biol       Date:  2014-11-04       Impact factor: 8.029

Review 5.  Adding dynamic consent to a longitudinal cohort study: A qualitative study of EXCEED participant perspectives.

Authors:  Susan E Wallace; José Miola
Journal:  BMC Med Ethics       Date:  2021-02-09       Impact factor: 2.652
  5 in total

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