Literature DB >> 24289781

Surrogate consent for genetic testing, the reconsent process, and consent for long-term outcomes in acute respiratory distress syndrome trials.

Alexandra Smart1, B Taylor Thompson, Dale M Needham, Ramona O Hopkins, Andre Williams, Ellen L Burnham, Marc Moss.   

Abstract

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Year:  2013        PMID： 24289781      PMCID： PMC3919075          DOI： 10.1164/rccm.201307-1235LE

Source DB:  PubMed          Journal:  Am J Respir Crit Care Med        ISSN： 1073-449X            Impact factor:   21.405


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  17 in total

1.  Outcomes research in critical care: results of the American Thoracic Society Critical Care Assembly Workshop on Outcomes Research. The Members of the Outcomes Research Workshop.

Authors:  G D Rubenfeld; D C Angus; M R Pinsky; J R Curtis; A F Connors; G R Bernard
Journal:  Am J Respir Crit Care Med       Date:  1999-07       Impact factor: 21.405

2.  Genetic research and health disparities.

Authors:  Pamela Sankar; Mildred K Cho; Celeste M Condit; Linda M Hunt; Barbara Koenig; Patricia Marshall; Sandra Soo-Jin Lee; Paul Spicer
Journal:  JAMA       Date:  2004-06-23       Impact factor: 56.272

3.  A new brief instrument for assessing decisional capacity for clinical research.

Authors:  Dilip V Jeste; Barton W Palmer; Paul S Appelbaum; Shahrokh Golshan; Danielle Glorioso; Laura B Dunn; Kathleen Kim; Thomas Meeks; Helena C Kraemer
Journal:  Arch Gen Psychiatry       Date:  2007-08

4.  The ethical conduct of clinical research involving critically ill patients in the United States and Canada: principles and recommendations.

Authors:  John M Luce; Deborah J Cook; Thomas R Martin; Derek C Angus; Homer A Boushey; J Randall Curtis; John E Heffner; Paul N Lanken; Mitchell M Levy; Paula Y Polite; Graeme M Rocker; Robert D Truog
Journal:  Am J Respir Crit Care Med       Date:  2004-12-15       Impact factor: 21.405

Review 5.  Public willingness to participate in and public opinions about genetic variation research: a review of the literature.

Authors:  Rene Sterling; Gail E Henderson; Giselle Corbie-Smith
Journal:  Am J Public Health       Date:  2006-10-03       Impact factor: 9.308

6.  Assessment of patient capacity to consent to treatment.

Authors:  E Etchells; P Darzins; M Silberfeld; P A Singer; J McKenny; G Naglie; M Katz; G H Guyatt; D W Molloy; D Strang
Journal:  J Gen Intern Med       Date:  1999-01       Impact factor: 5.128

7.  Surrogate and patient discrepancy regarding consent for critical care research.

Authors:  Julia T Newman; Alexandra Smart; Tyler R Reese; Andre Williams; Marc Moss
Journal:  Crit Care Med       Date:  2012-09       Impact factor: 7.598

8.  History of medical ethics and perspectives on disparities in minority recruitment and involvement in health research.

Authors:  B Seto
Journal:  Am J Med Sci       Date:  2001-11       Impact factor: 2.378

9.  Personal characteristics of older primary care patients who provide a buccal swab for apolipoprotein E testing and banking of genetic material: the spectrum study.

Authors:  Hillary R Bogner; Marsha N Wittink; Jon F Merz; Joseph B Straton; Peter F Cronholm; Peter V Rabins; Joseph J Gallo
Journal:  Community Genet       Date:  2004

10.  Informed consent in the critically ill: a two-step approach incorporating delirium screening.

Authors:  Eddy Fan; Shabana Shahid; V Praveen Kondreddi; O Joseph Bienvenu; Pedro A Mendez-Tellez; Peter J Pronovost; Dale M Needham
Journal:  Crit Care Med       Date:  2008-01       Impact factor: 7.598
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  4 in total

1.  Ethical challenges involved in obtaining consent for research from patients hospitalized in the intensive care unit.

Authors:  Fiona Ecarnot; Jean-Pierre Quenot; Guillaume Besch; Gaël Piton
Journal:  Ann Transl Med       Date:  2017-12

2.  Surrogate receptivity to participation in critical illness genetic research: aligning research oversight and stakeholder concerns.

Authors:  Bradley D Freeman; Kevin Butler; Dragana Bolcic-Jankovic; Brian R Clarridge; Carie R Kennedy; Jessica LeBlanc; Sara Chandros Hull
Journal:  Chest       Date:  2015-04       Impact factor: 9.410

3.  Perspectives of Decisional Surrogates and Patients Regarding Critical Illness Genetic Research.

Authors:  Bradley D Freeman; Dragana Bolcic-Jankovic; Carie R Kennedy; Jessica LeBlanc; Alexander Eastman; Jennifer Barillas; Catherine M Wittgen; Kathryn Indsey; Rumel S Mahmood; Brian R Clarridge
Journal:  AJOB Empir Bioeth       Date:  2015-05-01

4.  Recall of clinical trial participation and attrition rates in survivors of acute respiratory distress syndrome.

Authors:  Erin F Carlton; Erin Ice; Ryan P Barbaro; Lee Kampuis; Marc Moss; Derek C Angus; Valerie M Banner-Goodspeed; Adit A Ginde; Michelle N Gong; Colin K Grissom; Peter C Hou; David T Huang; Catherine Terri Lee Hough; Daniel S Talmor; B Taylor Thompson; Donald M Yealy; Mick P Couper; Theodore J Iwashyna
Journal:  J Crit Care       Date:  2021-04-17       Impact factor: 4.298
  4 in total

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