Literature DB >> 24122420

Social impact of dialysis on children and their families.

Jameela Abdulaziz Kari1, Majed Alzahrany, Basem El-Deek, Muhanad Maimani, Sherif El-Desoky.   

Abstract

OBJECTIVES: To evaluate the social consequences of dialysis on children and their parents.
METHODS: From January through June 2012 short structured interviews with parents or caregivers of children on peritoneal dialysis (PD) or hemodialysis (HD) who were followed up at King Abdulaziz University Hospital, King Faisal Specialty Hospital and Research Center, or the Kidney Center at King Fahad Hospital were conducted. Data were analyzed using the Statistical Package for the Social Sciences.
RESULTS: Thirty six children (20 boys and 16 girls [corrected] ) and their families were included. The mean (SD) age of the children was 11.5±6.87 y, and the mean (SD) duration of dialysis was 28±11.32 mo. Only one third of the families had the opportunity to choose the modality of dialysis. Both modalities of dialysis had a negative effect on fathers' jobs in over 50% of the cases. Similarly, both modalities of treatment had a considerable impact on the quality of care provided by the mothers to other family members. There was no difference between the two modalities on the frequency of admissions.
CONCLUSIONS: Both PD and HD had a negative impact on fathers' jobs and on the level of care provided by mothers to the rest of the family.

Entities:  

Mesh:

Year:  2013        PMID: 24122420     DOI: 10.1007/s12098-013-1236-z

Source DB:  PubMed          Journal:  Indian J Pediatr        ISSN: 0019-5456            Impact factor:   1.967


  19 in total

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Authors:  L S Baines; T J Beattie; A V Murphy; R M Jindal
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2.  Stress factors and coping strategies of parents with children treated by hemodialysis: A qualitative study.

Authors:  Güler Cimete
Journal:  J Pediatr Nurs       Date:  2002-08       Impact factor: 2.145

3.  The pediatric quality of life inventory: measuring pediatric health-related quality of life from the perspective of children and their parents.

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Journal:  Pediatr Clin North Am       Date:  2009-08       Impact factor: 3.278

4.  Assessing associations between medication adherence and potentially modifiable psychosocial variables in pediatric kidney transplant recipients and their families.

Authors:  A C Gerson; S L Furth; A M Neu; B A Fivush
Journal:  Pediatr Transplant       Date:  2004-12

5.  Renal transplantation in children: psychological and donation-related aspects from the parental perspective.

Authors:  H M Kärrfelt; U B Berg; F I Lindblad
Journal:  Pediatr Transplant       Date:  2000-11

6.  The broader burden of end-stage renal disease on children and their families.

Authors:  A L Friedman
Journal:  Kidney Int       Date:  2006-12       Impact factor: 10.612

7.  Measuring health-related quality of life in children with ESRD: performance of the generic and ESRD-specific instrument of the Pediatric Quality of Life Inventory (PedsQL).

Authors:  Stuart L Goldstein; Nicole Graham; Bradley A Warady; Mouin Seikaly; Ruth McDonald; Tasha M Burwinkle; Christine A Limbers; James W Varni
Journal:  Am J Kidney Dis       Date:  2008-02       Impact factor: 8.860

Review 8.  Educational interventions in kidney disease care: a systematic review of randomized trials.

Authors:  Jo Mason; Kamlesh Khunti; Margaret Stone; Azhar Farooqi; Sue Carr
Journal:  Am J Kidney Dis       Date:  2008-04-28       Impact factor: 8.860

9.  Long-term survival of children with end-stage renal disease.

Authors:  Stephen P McDonald; Jonathan C Craig
Journal:  N Engl J Med       Date:  2004-06-24       Impact factor: 91.245

10.  Validity and reliability of the Korean version of the pediatric quality of life ESRD module.

Authors:  Ki-Soo Park; Min Hyun Cho; Il Soo Ha; Hee Gyung Kang; Hae Il Cheong; Young Seo Park; Yoon Jung Lee; Joo Hoon Lee; Hee Yeon Cho
Journal:  Health Qual Life Outcomes       Date:  2012-06-06       Impact factor: 3.186

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  2 in total

Review 1.  Epidemiology of haemodialysis outcomes.

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Journal:  Nat Rev Nephrol       Date:  2022-02-22       Impact factor: 42.439

Review 2.  Addressing the Ethical Challenges of Providing Kidney Failure Care for Children: A Global Stance.

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  2 in total

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