Literature DB >> 24097838

Barriers to end-of-life care for African Americans from the providers' perspective: opportunity for intervention development.

Ramona L Rhodes1, Kim Batchelor2, Simon C Lee3, Ethan A Halm4.   

Abstract

Research has shown that African Americans (AAs) are less likely to complete advance directives and enroll in hospice. We examined barriers to use of these end-of-life (EOL) care options by conducting semi-structured interviews with hospice and palliative medicine providers and leaders of a national health care organization. Barriers identified included: lack of knowledge about prognosis, desires for aggressive treatment, family members resistance to accepting hospice, and lack of insurance. Providers believed that acceptance of EOL care options among AAs could be improved by increasing cultural sensitivity though education and training initiatives, and increasing staff diversity. Respondents did not have programs currently in place to increase awareness of EOL care options for underrepresented minorities, but felt that there was a need to develop these types of programs. These data can be used in future research endeavors to create interventions designed to increase awareness of EOL care options for AAs and other underrepresented minorities.
© The Author(s) 2013.

Entities:  

Keywords:  African Americans; barriers; disparities; hospice and palliative care; interventions; underutilization

Mesh:

Year:  2013        PMID: 24097838      PMCID: PMC5508735          DOI: 10.1177/1049909113507127

Source DB:  PubMed          Journal:  Am J Hosp Palliat Care        ISSN: 1049-9091            Impact factor:   2.500


  26 in total

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2.  Hospice usage by minorities in the last year of life: results from the National Mortality Followback Survey.

Authors:  K Allen Greiner; Subashan Perera; Jasjit S Ahluwalia
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3.  Programmatic barriers to providing culturally competent end-of-life care.

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Journal:  Am J Hosp Palliat Care       Date:  2004 Sep-Oct       Impact factor: 2.500

Review 4.  Barriers to hospice use among African Americans: a systematic review.

Authors:  Karla T Washington; Denise Bickel-Swenson; Nathan Stephens
Journal:  Health Soc Work       Date:  2008-11

5.  The influence of culture on end-of-life decision making.

Authors:  Karen Bullock
Journal:  J Soc Work End Life Palliat Care       Date:  2011

6.  Racial disparities in the use of hospice services according to geographic residence and socioeconomic status in an elderly cohort with nonsmall cell lung cancer.

Authors:  Dale Hardy; Wenyaw Chan; Chih-Chin Liu; Janice N Cormier; Rui Xia; Eduardo Bruera; Xianglin L Du
Journal:  Cancer       Date:  2010-11-08       Impact factor: 6.860

7.  Assessing end-of-life preferences for advanced dementia in rural patients using an educational video: a randomized controlled trial.

Authors:  Angelo E Volandes; Laurie Anne Ferguson; Aretha D Davis; Nathan C Hull; Michael J Green; Yuchiao Chang; Kristy Deep; Michael K Paasche-Orlow
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8.  Improving asthma outcomes in minority children: a randomized, controlled trial of parent mentors.

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9.  Knowledge, attitudes, and beliefs about end-of-life care among inner-city African Americans and Latinos.

Authors:  Wendi Born; K Allen Greiner; Eldonna Sylvia; James Butler; Jasjit S Ahluwalia
Journal:  J Palliat Med       Date:  2004-04       Impact factor: 2.947

10.  Use of and reactions to a tailored CD-ROM designed to enhance oncologist-patient communication: the SCOPE trial intervention.

Authors:  Celette Sugg Skinner; Kathryn I Pollak; David Farrell; Maren K Olsen; Amy S Jeffreys; James A Tulsky
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2.  Minority Patients are Less Likely to Undergo Withdrawal of Care After Spontaneous Intracerebral Hemorrhage.

Authors:  Cora H Ormseth; Guido J Falcone; Sara D Jasak; David M Mampre; Audrey C Leasure; Laura C Miyares; David Y Hwang; Michael L James; Fernando D Testai; Kyra J Becker; David L Tirschwell; Carl D Langefeld; Daniel Woo; Kevin N Sheth
Journal:  Neurocrit Care       Date:  2018-12       Impact factor: 3.210

3.  The Desires of Their Hearts: The Multidisciplinary Perspectives of African Americans on End-of-Life Care in the African American Community.

Authors:  Ramona L Rhodes; Bryan Elwood; Simon C Lee; Jasmin A Tiro; Ethan A Halm; Celette S Skinner
Journal:  Am J Hosp Palliat Care       Date:  2016-02-14       Impact factor: 2.500

4.  Ethical Considerations Concerning Use of Percutaneous Endoscopic Gastrostomy Feeding Tubes in Patients With Advanced Dementia.

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5.  Respecting Faith, Hope, and Miracles in African American Christian Patients at End-of-Life: Moving from Labeling Goals of Care as "Aggressive" to Providing Equitable Goal-Concordant Care.

Authors:  Shena Gazaway; Elizabeth Chuang; Moneka Thompson; Gloria White-Hammond; Ronit Elk
Journal:  J Racial Ethn Health Disparities       Date:  2022-08-10

6.  Use and Predictors of End-of-Life Care Among HIV Patients in a Safety Net Health System.

Authors:  Ramona L Rhodes; Fiza Nazir; Sonya Lopez; Lei Xuan; Ank E Nijhawan; Nicole E Alexander-Scott; Ethan A Halm
Journal:  J Pain Symptom Manage       Date:  2015-09-16       Impact factor: 3.612

7.  Understanding Underuse of Advance Care Planning Among a Cohort of African American Patients With Advanced Cancer: Formative Research That Examines Gaps in Intent to Discuss Options for Care.

Authors:  Ramona L Rhodes; Nkemdirim C E Ukoha; Kimberly A Williams; Bryan Elwood; Tori Knox-Rice; Simon C Lee; Jasmin A Tiro; Celette Sugg Skinner; Ethan A Halm
Journal:  Am J Hosp Palliat Care       Date:  2019-04-21       Impact factor: 2.500

8.  Spirituality and the Illness Experience: Perspectives of African American Older Adults.

Authors:  Shaunna Siler; Kelly Arora; Katherine Doyon; Stacy M Fischer
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9.  Exploring Culturally Responsive Religious and Spirituality Health Care Communications among African Americans with Advanced Heart Failure, Their Family Caregivers, and Clinicians.

Authors:  Deborah Ejem; Karen Steinhauser; J Nicholas Dionne-Odom; Rachel Wells; Raegan W Durant; Olivio J Clay; Marie Bakitas
Journal:  J Palliat Med       Date:  2021-06-28       Impact factor: 2.947

10.  Advance care planning among African American patients on haemodialysis and their end-of-life care preferences.

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Journal:  J Ren Care       Date:  2021-02-22
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