Literature DB >> 24082807

Counselling and management for anticipated extremely preterm birth.

Ann L Jefferies, Haresh M Kirpalani.   

Abstract

Extremely preterm birth (birth between 22(0/7) and 25(6/7) weeks' gestational age [GA]) often requires parents to make complex choices about the care of their infant. Health professionals have a significant role in providing information, guidance and support. Parents facing the birth of an extremely preterm infant should have the chance to meet with both obstetrical and paediatric/neonatal care providers to receive accurate information about their infant's prognosis, provided with clarity and compassion. Decision making between parents and health professionals should be an informed and shared process, with documentation of all management decisions. Consultation with and transfer to tertiary perinatal centres are important for the care of both mother and fetus. As the survival of infants born before or at 22 completed weeks' GA remains uncommon, a noninterventional approach is recommended, whereas at 23, 24 and 25 weeks' GA, counselling about outcomes and decision making should be individualized for each infant and family, using factors which influence prognosis. All extremely preterm infants who are not resuscitated, or for whom resuscitation is not successful, must receive compassionate palliative care.

Entities:  

Keywords:  Antenatal counselling; Ethics; Extreme prematurity; Resuscitation

Year:  2012        PMID: 24082807      PMCID: PMC3474387          DOI: 10.1093/pch/17.8.443

Source DB:  PubMed          Journal:  Paediatr Child Health        ISSN: 1205-7088            Impact factor:   2.253


  21 in total

Review 1.  Advocating for equality for preterm infants.

Authors:  Daniel Batton; Beau Batton
Journal:  CMAJ       Date:  2013-10-28       Impact factor: 8.262

2.  Ethical framework for shared decision making in the neonatal intensive care unit: Communicative ethics.

Authors:  Thierry Daboval; Sarah Shidler
Journal:  Paediatr Child Health       Date:  2014-06       Impact factor: 2.253

3.  CPS position statement for prenatal counselling before a premature birth: Simple rules for complicated decisions.

Authors:  Annie Janvier; Keith J Barrington; Khalid Aziz; Eduardo Bancalari; Daniel Batton; Carlo Bellieni; Brahim Bensouda; Carlos Blanco; Po-Yin Cheung; Felicia Cohn; Thierry Daboval; Peter Davis; Eugene Dempsey; Amélie Dupont-Thibodeau; Emanuela Ferretti; Barbara Farlow; Matteo Fontana; Etienne Fortin-Pellerin; Aviva Goldberg; Thor Willy Ruud Hansen; Marlyse Haward; Lajos Kovacs; Anie Lapointe; John Lantos; Colin Morley; Ahmed Moussa; Gabriel Musante; Sophie Nadeau; Colm Pf O'Donnell; Kristina Orfali; Antoine Payot; C Anthony Ryan; Guilherme Sant'anna; Ola D Saugstad; Sadath Sayeed; Theophil A Stokes; Eduard Verhagen
Journal:  Paediatr Child Health       Date:  2014-01       Impact factor: 2.253

4.  Counselling and management for anticipated extremely preterm birth.

Authors:  Ann L Jefferies; Haresh Kirpalani; Susan G Albersheim; Andrew Lynk
Journal:  Paediatr Child Health       Date:  2014-01       Impact factor: 2.253

5.  Between-hospital variation in treatment and outcomes in extremely preterm infants.

Authors:  Matthew A Rysavy; Lei Li; Edward F Bell; Abhik Das; Susan R Hintz; Barbara J Stoll; Betty R Vohr; Waldemar A Carlo; Seetha Shankaran; Michele C Walsh; Jon E Tyson; C Michael Cotten; P Brian Smith; Jeffrey C Murray; Tarah T Colaizy; Jane E Brumbaugh; Rosemary D Higgins
Journal:  N Engl J Med       Date:  2015-05-07       Impact factor: 91.245

6.  Constructing a Culturally Informed Spanish Decision-Aid to Counsel Latino Parents Facing Imminent Extreme Premature Delivery.

Authors:  Matthew J Drago; Ursula Guillén; Maria Schiaratura; Jennifer Batza; Annette Zygmunt; Anja Mowes; David Munson; John M Lorenz; Christiana Farkouh-Karoleski; Haresh Kirpalani
Journal:  Matern Child Health J       Date:  2018-07

Review 7.  Shared decision making for infants born at the threshold of viability: a prognosis-based guideline.

Authors:  B Lemyre; T Daboval; S Dunn; M Kekewich; G Jones; D Wang; M Mason-Ward; G P Moore
Journal:  J Perinatol       Date:  2016-05-12       Impact factor: 2.521

8.  Field testing of decision coaching with a decision aid for parents facing extreme prematurity.

Authors:  G P Moore; B Lemyre; T Daboval; S Ding; S Dunn; S Akiki; N Barrowman; A L Shephard; M L Lawson
Journal:  J Perinatol       Date:  2017-03-30       Impact factor: 2.521

9.  Evaluating the Use of a Decision Aid for Parents Facing Extremely Premature Delivery: A Randomized Trial.

Authors:  Úrsula Guillén; Amy Mackley; Naomi Laventhal; Stephanie Kukora; Lori Christ; Matthew Derrick; Jennifer Batza; Sarvin Ghavam; Haresh Kirpalani
Journal:  J Pediatr       Date:  2019-04-02       Impact factor: 4.406

10.  Survey of the Definition of Fetal Viability and the Availability, Indications, and Decision Making Processes for Post-Viability Termination of Pregnancy for Fetal Abnormalities and Health Conditions in Canada.

Authors:  Danna Hull; Gregory Davies; Christine M Armour
Journal:  J Genet Couns       Date:  2015-11-05       Impact factor: 2.537

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