OBJECTIVE: To determine whether chronically ill patients' needs for self-management support depend on their course of illness. METHODS: Cross-sectional and longitudinal linear regression analyses were conducted using data from 1300 patients with chronic disease(s) who participated in a nationwide Dutch panel-study. Self-management support needs were assessed by the Patient Assessment of Self-management Tasks questionnaire (PAST). Course of illness was operationalized as: illness duration, patients' perception of the course of illness and changes in self-rated general health (RAND-36). RESULTS: Self-management support needs are not related to illness duration. Patients who perceive their illness as episodic and/or progressively deteriorating have greater self-management support needs than patients who perceive their illness as stable. Deterioration of self-rated health is related to increased support needs. The effect of the course of illness on support needs depends on the type of self-management activities. CONCLUSION: How chronically ill patients perceive the course of illness and actual changes in self-rated health are predictive for their need for support for self-management activities. Illness duration is not. PRACTICE IMPLICATIONS: Helping patients to self-manage should not be confined to the first years after diagnosis. Healthcare providers should be alert to patients' own perceptions of their course of illness and health status.
OBJECTIVE: To determine whether chronically ill patients' needs for self-management support depend on their course of illness. METHODS: Cross-sectional and longitudinal linear regression analyses were conducted using data from 1300 patients with chronic disease(s) who participated in a nationwide Dutch panel-study. Self-management support needs were assessed by the Patient Assessment of Self-management Tasks questionnaire (PAST). Course of illness was operationalized as: illness duration, patients' perception of the course of illness and changes in self-rated general health (RAND-36). RESULTS: Self-management support needs are not related to illness duration. Patients who perceive their illness as episodic and/or progressively deteriorating have greater self-management support needs than patients who perceive their illness as stable. Deterioration of self-rated health is related to increased support needs. The effect of the course of illness on support needs depends on the type of self-management activities. CONCLUSION: How chronically ill patients perceive the course of illness and actual changes in self-rated health are predictive for their need for support for self-management activities. Illness duration is not. PRACTICE IMPLICATIONS: Helping patients to self-manage should not be confined to the first years after diagnosis. Healthcare providers should be alert to patients' own perceptions of their course of illness and health status.
Authors: Anneke van Dijk-de Vries; Marloes A van Bokhoven; Bjorn Winkens; Berend Terluin; J André Knottnerus; Trudy van der Weijden; Jacques Th M van Eijk Journal: BMJ Open Date: 2015-06-25 Impact factor: 2.692
Authors: Laura M J Hochstenbach; Annemie M Courtens; Sandra M G Zwakhalen; Maarten van Kleef; Luc P de Witte Journal: BMC Cancer Date: 2015-05-19 Impact factor: 4.430
Authors: Sophie I van Dongen; Kim de Nooijer; Jane M Cramm; Anneke L Francke; Wendy H Oldenmenger; Ida J Korfage; Frederika E Witkamp; Rik Stoevelaar; Agnes van der Heide; Judith Ac Rietjens Journal: Palliat Med Date: 2020-02 Impact factor: 4.762