Literature DB >> 24024819

Relationships matter: ethical considerations for returning results to family members of deceased subjects.

Lauren C Milner1, Emily Y Liu, Nanibaa' A Garrison.   

Abstract

Mesh：

Year:  2013        PMID： 24024819     DOI： 10.1080/15265161.2013.828533

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  10 in total

1.  Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank.

Authors:  Carmen Radecki Breitkopf; Gloria M Petersen; Susan M Wolf; Kari G Chaffee; Marguerite E Robinson; Deborah R Gordon; Noralane M Lindor; Barbara A Koenig
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

2.  Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.

Authors:  Susan M Wolf; Rebecca Branum; Barbara A Koenig; Gloria M Petersen; Susan A Berry; Laura M Beskow; Mary B Daly; Conrad V Fernandez; Robert C Green; Bonnie S LeRoy; Noralane M Lindor; P Pearl O'Rourke; Carmen Radecki Breitkopf; Mark A Rothstein; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

3.  The Emergence of Clinical Research Ethics Consultation: Insights From a National Collaborative.

Authors:  Kathryn M Porter; Marion Danis; Holly A Taylor; Mildred K Cho; Benjamin S Wilfond
Journal:  Am J Bioeth       Date:  2018-01       Impact factor: 11.229

4.  Attitudes Toward Return of Genetic Research Results to Relatives, Including After Death: Comparison of Cancer Probands, Blood Relatives, and Spouse/Partners.

Authors:  Carmen Radecki Breitkopf; Susan M Wolf; Kari G Chaffee; Marguerite E Robinson; Noralane M Lindor; Deborah R Gordon; Barbara A Koenig; Gloria M Petersen
Journal:  J Empir Res Hum Res Ethics       Date:  2018-04-27       Impact factor: 1.742

5.  Return of Genetic Research Results to Participants and Families: IRB Perspectives and Roles.

Authors:  Laura M Beskow; P Pearl O'Rourke
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

6.  Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families.

Authors:  Conrad V Fernandez; P Pearl O'Rourke; Laura M Beskow
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

7.  Considerations for Returning Research Results to Culturally Diverse Participants and Families of Decedents.

Authors:  Nanibaa A Garrison
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

8.  Assessing research participant preferences for receiving study results.

Authors:  Sarah Cook; Stephanie Mayers; Kathryn Goggins; David Schlundt; Kemberlee Bonnet; Neely Williams; Donald Alcendor; Shari Barkin
Journal:  J Clin Transl Sci       Date:  2019-10-04

Review 9.  Confidentiality & the Risk of Genetic Discrimination: What Surgeons Need to Know.

Authors:  Amanda Gammon; Deborah W Neklason
Journal:  Surg Oncol Clin N Am       Date:  2015-07-16       Impact factor: 3.495

10.  Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.

Authors:  Susan M Wolf; Emily Scholtes; Barbara A Koenig; Gloria M Petersen; Susan A Berry; Laura M Beskow; Mary B Daly; Conrad V Fernandez; Robert C Green; Bonnie S LeRoy; Noralane M Lindor; P Pearl O'Rourke; Carmen Radecki Breitkopf; Mark A Rothstein; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2018-03-27       Impact factor: 1.718
  10 in total

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