Literature DB >> 23948015

A situated practice of ethics for participatory visual and digital methods in public health research and practice: a focus on digital storytelling.

Aline C Gubrium1, Amy L Hill, Sarah Flicker.   

Abstract

This article explores ethical considerations related to participatory visual and digital methods for public health research and practice, through the lens of an approach known as "digital storytelling." We begin by briefly describing the digital storytelling process and its applications to public health research and practice. Next, we explore 6 common challenges: fuzzy boundaries, recruitment and consent to participate, power of shaping, representation and harm, confidentiality, and release of materials. We discuss their complexities and offer some considerations for ethical practice. We hope this article serves as a catalyst for expanded dialogue about the need for high standards of integrity and a situated practice of ethics wherein researchers and practitioners reflexively consider ethical decision-making as part of the ongoing work of public health.

Entities:  

Mesh:

Year:  2013        PMID: 23948015      PMCID: PMC4151912          DOI: 10.2105/AJPH.2013.301310

Source DB:  PubMed          Journal:  Am J Public Health        ISSN: 0090-0036            Impact factor:   9.308


  18 in total

1.  Personal stories: voices of Latino youth health advocates in a diabetes prevention initiative.

Authors:  Danielle W Toussaint; Maria Villagrana; Hugo Mora-Torres; Mario de Leon; Mary Hoshiko Haughey
Journal:  Prog Community Health Partnersh       Date:  2011

2.  Addressing food insecurity in a Native American reservation using community-based participatory research.

Authors:  Valarie Blue Bird Jernigan; Alicia L Salvatore; Dennis M Styne; Marilyn Winkleby
Journal:  Health Educ Res       Date:  2011-10-11

3.  A model of effects of narrative as culture-centric health promotion.

Authors:  Linda K Larkey; Michael Hecht
Journal:  J Health Commun       Date:  2010-03

4.  Who benefits from community-based participatory research? A case study of the Positive Youth Project.

Authors:  Sarah Flicker
Journal:  Health Educ Behav       Date:  2006-05-31

5.  Ethical dilemmas in community-based participatory research: recommendations for institutional review boards.

Authors:  Sarah Flicker; Robb Travers; Adrian Guta; Sean McDonald; Aileen Meagher
Journal:  J Urban Health       Date:  2007-07       Impact factor: 3.671

6.  Pilot testing Okay With Asthma: an online asthma intervention for school-age children.

Authors:  Tami H Wyatt; Emily J Hauenstein
Journal:  J Sch Nurs       Date:  2008-06       Impact factor: 2.835

Review 7.  Photovoice: a review of the literature in health and public health.

Authors:  Caricia Catalani; Meredith Minkler
Journal:  Health Educ Behav       Date:  2009-10-01

8.  Photovoice: concept, methodology, and use for participatory needs assessment.

Authors:  C Wang; M A Burris
Journal:  Health Educ Behav       Date:  1997-06

9.  Photovoice ethics: perspectives from Flint Photovoice.

Authors:  C C Wang; Y A Redwood-Jones
Journal:  Health Educ Behav       Date:  2001-10

10.  Photovoice: a participatory action research strategy applied to women's health.

Authors:  C C Wang
Journal:  J Womens Health       Date:  1999-03       Impact factor: 2.681

View more
  15 in total

1.  The Power of Digital Storytelling as a Culturally Relevant Health Promotion Tool.

Authors:  Katherine J Briant; Amy Halter; Nathan Marchello; Monica Escareño; Beti Thompson
Journal:  Health Promot Pract       Date:  2016-07-08

2.  Black Mothers Living With HIV Picture the Social Determinants of Health.

Authors:  Courtney Caiola; Julie Barroso; Sharron L Docherty
Journal:  J Assoc Nurses AIDS Care       Date:  2017-09-29       Impact factor: 1.354

3.  Beyond Compliance Checking: A Situated Approach to Visual Research Ethics.

Authors:  Caroline Lenette; Jessica R Botfield; Katherine Boydell; Bridget Haire; Christy E Newman; Anthony B Zwi
Journal:  J Bioeth Inq       Date:  2018-03-19       Impact factor: 1.352

4.  A Systematic Literature Review of Cancer Communication with Indigenous Populations in Canada and the United States.

Authors:  Amanda D Boyd; Xiaofei Song; Chris M Furgal
Journal:  J Cancer Educ       Date:  2021-04       Impact factor: 2.037

5.  Pilot Feasibility Study of a Digital Storytelling Intervention for Immigrant and Refugee Adults With Diabetes.

Authors:  Mark L Wieland; Jane W Njeru; Marcelo M Hanza; Deborah H Boehm; Davinder Singh; Barbara P Yawn; Christi A Patten; Matthew M Clark; Jennifer A Weis; Ahmed Osman; Miriam Goodson; Maria D Porraz Capetillo; Abdullah Hared; Rachel Hasley; Laura Guzman-Corrales; Rachel Sandler; Valentina Hernandez; Paul J Novotny; Jeff A Sloan; Irene G Sia
Journal:  Diabetes Educ       Date:  2017-06-07       Impact factor: 2.140

6.  Strategic Authenticity and Voice: New Ways of Seeing and Being Seen as Young Mothers through Digital Storytelling.

Authors:  Aline C Gubrium; Elizabeth L Krause; Kasey Jernigan
Journal:  Sex Res Social Policy       Date:  2014-12-01

7.  Using the Emanuel Framework to Explore the Ethical Issues Raised in a Participatory Visual Research Project in Rural South Africa.

Authors:  Astrid Treffry-Goatley; Relebohile Moletsane; Tulio de Oliveira; Janet Seeley; Richard Lessells
Journal:  J Empir Res Hum Res Ethics       Date:  2021-02-08       Impact factor: 1.742

8.  Let all know: insights from a digital storytelling facilitator training in Uganda.

Authors:  Tingting Yan; Michael Lang; Teddy Kyomuhangi; Barbara Naggayi; Jerome Kabakyenga; Wasswa William; Scholastic Ashaba; Clementia Murembe Neema; Manasseh Tumuhimbise; Robens Mutatina; Deborah Natumanya; Jennifer L Brenner
Journal:  Glob Health Action       Date:  2021-01-01       Impact factor: 2.640

9.  Ethics in Community-University-Artist Partnered Research: Tensions, Contradictions and Gaps Identified in an 'Arts for Social Change' Project.

Authors:  Annalee Yassi; Jennifer Beth Spiegel; Karen Lockhart; Lynn Fels; Katherine Boydell; Judith Marcuse
Journal:  J Acad Ethics       Date:  2016-04-07

10.  Exploring the perceptions of physicians, caregivers and families towards artificial nutrition and hydration for people in permanent vegetative state: How can a photo-elicitation method help?

Authors:  Elodie Cretin; Lionel Pazart; Marie-Christine Rousseau; Alain Noé; Pierre Decavel; Aline Chassagne; Aurélie Godard-Marceau; Hélène Trimaille; Florence Mathieu-Nicot; Yvan Beaussant; Damien Gabriel; Serge Daneault; Régis Aubry
Journal:  PLoS One       Date:  2017-10-26       Impact factor: 3.240

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.