Literature DB >> 23900836

Validity, discriminative ability, and reliability of the hearing-related quality of life questionnaire for adolescents.

Tara Rachakonda1, Donna B Jeffe, Jennifer J Shin, Leila Mankarious, Robert J Fanning, Marci M Lesperance, Judith E C Lieu.   

Abstract

OBJECTIVES/HYPOTHESIS: The prevalence of hearing loss (HL) in adolescents has grown over the past decade, but hearing-related quality of life (QOL) has not been well-measured. We sought to develop a reliable, valid measure of hearing-related QOL for adolescents and the Hearing Environments And Reflection on Quality of Life (HEAR-QL). STUDY
DESIGN: Multisite observational study.
METHODS: Adolescents with HL and siblings without HL were recruited from five centers. Participants completed the HEAR-QL and validated questionnaires measuring generic pediatric QOL (PedsQL), depression and anxiety (RCADS-25), and hearing-related QOL for adults (HHIA) to determine construct and discriminant validity. Participants completed the HEAR-QL 2 weeks later for test-retest reliability. We used exploratory principal components analysis to determine the HEAR-QL factor structure and measured reliability. Sensitivity and specificity of the HEAR-QL, PedsQL, HHIA, and RCADS-25 were assessed. We compared scores on all surveys between those with normal hearing, unilateral, and bilateral HL.
RESULTS: A total of 233 adolescents (13-18 years old) participated: 179 with HL, 54 without HL. The original 45-item HEAR-QL was shortened to 28 items after determining factor structure. The resulting HEAR-QL-28 demonstrated excellent reliability (Cronbach's alpha = 0.95) and construct validity (HHIA: r = .845, PedsQL: r = .587; RCADS-25: r = .433). The HEAR-QL-28 displayed excellent discriminant validity, with higher area under the curve (0.932) than the PedsQL (0.597) or RCADS-25 (0.529). Teens with bilateral HL using hearing devices reported worse QOL on the HEAR-QL and HHIA than peers with HL not using devices.
CONCLUSIONS: The HEAR-QL is a sensitive, reliable, and valid measure of hearing-related QOL for adolescents. LEVEL OF EVIDENCE: 2b.
© 2013 The American Laryngological, Rhinological and Otological Society, Inc.

Entities:  

Keywords:  Adolescents; hearing loss; quality of life; validation study

Mesh:

Year:  2013        PMID: 23900836      PMCID: PMC3951892          DOI: 10.1002/lary.24336

Source DB:  PubMed          Journal:  Laryngoscope        ISSN: 0023-852X            Impact factor:   3.325


  21 in total

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Authors:  C W Newman; B E Weinstein; G P Jacobson; G A Hug
Journal:  Ear Hear       Date:  1990-12       Impact factor: 3.570

2.  Mental health problems of Dutch youth with hearing loss as shown on the Youth Self Report.

Authors:  Theo van Eldik
Journal:  Am Ann Deaf       Date:  2005

3.  The "hearing aid effect" 2005: a rigorous test of the visibility of new hearing aid styles.

Authors:  Carole E Johnson; Jeffrey L Danhauer; Reid B Gavin; Summer Raye Karns; Amber C Reith; Ilian Priscilla Lopez
Journal:  Am J Audiol       Date:  2005-12       Impact factor: 1.493

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Journal:  Ann Intern Med       Date:  1990-08-01       Impact factor: 25.391

5.  The societal costs of severe to profound hearing loss in the United States.

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Journal:  Int J Technol Assess Health Care       Date:  2000       Impact factor: 2.188

6.  The HEAR-QL: quality of life questionnaire for children with hearing loss.

Authors:  Amy M Umansky; Donna B Jeffe; Judith E C Lieu
Journal:  J Am Acad Audiol       Date:  2011 Nov-Dec       Impact factor: 1.664

7.  Health-related quality of life of Austrian children and adolescents with cochlear implants.

Authors:  Maria Huber
Journal:  Int J Pediatr Otorhinolaryngol       Date:  2005-04-07       Impact factor: 1.675

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Authors:  C W Newman; G P Jacobson; G A Hug; S A Sandridge
Journal:  Ann Otol Rhinol Laryngol       Date:  1997-03       Impact factor: 1.547

9.  Children with minimal sensorineural hearing loss: prevalence, educational performance, and functional status.

Authors:  F H Bess; J Dodd-Murphy; R A Parker
Journal:  Ear Hear       Date:  1998-10       Impact factor: 3.570

10.  Test-retest reliability of the hearing handicap inventory for adults.

Authors:  C W Newman; B E Weinstein; G P Jacobson; G A Hug
Journal:  Ear Hear       Date:  1991-10       Impact factor: 3.570

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  10 in total

Review 1.  Quality of Life in Children with Hearing Impairment: Systematic Review and Meta-analysis.

Authors:  Lauren Roland; Caroline Fischer; Kayla Tran; Tara Rachakonda; Dorina Kallogjeri; Judith E C Lieu
Journal:  Otolaryngol Head Neck Surg       Date:  2016-04-26       Impact factor: 3.497

2.  Unilateral hearing loss is associated with a negative effect on language scores in adolescents.

Authors:  Caroline Fischer; Judith Lieu
Journal:  Int J Pediatr Otorhinolaryngol       Date:  2014-07-12       Impact factor: 1.675

3.  Discriminant Validity of the Parent-Proxy Preschool HEAR-QL.

Authors:  Amy L Zhang; Donna B Jeffe; Judith E C Lieu
Journal:  Otol Neurotol       Date:  2022-02-01       Impact factor: 2.311

Review 4.  Permanent Unilateral Hearing Loss (UHL) and Childhood Development.

Authors:  Judith E C Lieu
Journal:  Curr Otorhinolaryngol Rep       Date:  2018-02-15

5.  Hearing Norton Sound: a community randomised trial protocol to address childhood hearing loss in rural Alaska.

Authors:  Susan D Emmett; Samantha Kleindienst Robler; Nae-Yuh Wang; Alain Labrique; Joseph J Gallo; Philip Hofstetter
Journal:  BMJ Open       Date:  2019-01-15       Impact factor: 2.692

6.  Hearing Norton Sound: mixed methods protocol of a community randomised trial to address childhood hearing loss in rural Alaska.

Authors:  Susan D Emmett; Samantha Kleindienst Robler; Joseph J Gallo; Nae-Yuh Wang; Alain Labrique; Philip Hofstetter
Journal:  BMJ Open       Date:  2019-01-22       Impact factor: 2.692

7.  Restricted Speech Recognition in Noise and Quality of Life of Hearing-Impaired Children and Adolescents With Cochlear Implants - Need for Studies Addressing This Topic With Valid Pediatric Quality of Life Instruments.

Authors:  Maria Huber; Clara Havas
Journal:  Front Psychol       Date:  2019-09-12

8.  Italian Version of the YQOL-DHH Questionnaire: Translation and Cross-cultural Adaptation.

Authors:  Manuela Gragnaniello; Claudia Celletti; Alessandra Resca; Giovanni Galeoto; Filippo Camerota
Journal:  OTO Open       Date:  2021-12-12

9.  Functional Reorganization of the Central Auditory System in Children with Single-Sided Deafness: A Protocol Using fNIRS.

Authors:  Marie-Noëlle Calmels; Yohan Gallois; Mathieu Marx; Olivier Deguine; Soumia Taoui; Emma Arnaud; Kuzma Strelnikov; Pascal Barone
Journal:  Brain Sci       Date:  2022-03-22

10.  Otolaryngology Manifestations of Primary Ciliary Dyskinesia: A Multicenter Study.

Authors:  Faisal Zawawi; Adam J Shapiro; Sharon Dell; Nikolaus E Wolter; Cinzia L Marchica; Michael R Knowles; Maimoona A Zariwala; Margaret W Leigh; Mariana Smith; Pilar Gajardo; Sam J Daniel
Journal:  Otolaryngol Head Neck Surg       Date:  2021-06-22       Impact factor: 5.591

  10 in total

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