Literature DB >> 23793248

Community-based participatory research and user-centered design in a diabetes medication information and decision tool.

Vida A Henderson1, Kathryn L Barr, Lawrence C An, Claudia Guajardo, William Newhouse, Rebecca Mase, Michele Heisler.   

Abstract

BACKGROUND: Together, community-based participatory research (CBPR), user-centered design (UCD), and health information technology (HIT) offer promising approaches to improve health disparities in low-resource settings.
OBJECTIVES: This article describes the application of CBPR and UCD principles to the development of iDecide/Decido, an interactive, tailored, web-based diabetes medication education and decision support tool delivered by community health workers (CHWs) to African American and Latino participants with diabetes in Southwest and Eastside Detroit. The decision aid is offered in English or Spanish and is delivered on an iPad in participants' homes.
METHODS: The overlapping principles of CBPR and UCD used to develop iDecide/Decido include a user-focused or community approach, equitable academic and community partnership in all study phases, an iterative development process that relies on input from all stakeholders, and a program experience that is specified, adapted, and implemented with the target community.
RESULTS: Collaboration between community members, researchers, and developers is especially evident in the program's design concept, animations, pictographs, issue cards, goal setting, tailoring, and additional CHW tools.
CONCLUSIONS: The principles of CBPR and UCD can be successfully applied in developing health information tools that are easy to use and understand, interactive, and target health disparities.

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Year:  2013        PMID: 23793248      PMCID: PMC4117400          DOI: 10.1353/cpr.2013.0024

Source DB:  PubMed          Journal:  Prog Community Health Partnersh        ISSN: 1557-0541


  47 in total

1.  Glycemic control in English- vs Spanish-speaking Hispanic patients with type 2 diabetes mellitus.

Authors:  L M Lasater; A J Davidson; J F Steiner; P S Mehler
Journal:  Arch Intern Med       Date:  2001-01-08

2.  Is glycemic control improving in U.S. adults?

Authors:  Thomas J Hoerger; Joel E Segel; Edward W Gregg; Jinan B Saaddine
Journal:  Diabetes Care       Date:  2007-10-12       Impact factor: 19.112

3.  Effectiveness of a community health worker intervention among African American and Latino adults with type 2 diabetes: a randomized controlled trial.

Authors:  Michael S Spencer; Ann-Marie Rosland; Edith C Kieffer; Brandy R Sinco; Melissa Valerio; Gloria Palmisano; Michael Anderson; J Ricardo Guzman; Michele Heisler
Journal:  Am J Public Health       Date:  2011-06-16       Impact factor: 9.308

4.  Impact of medication adherence on hospitalization risk and healthcare cost.

Authors:  Michael C Sokol; Kimberly A McGuigan; Robert R Verbrugge; Robert S Epstein
Journal:  Med Care       Date:  2005-06       Impact factor: 2.983

5.  Quality of diabetes care in U.S. academic medical centers: low rates of medical regimen change.

Authors:  Richard W Grant; John B Buse; James B Meigs
Journal:  Diabetes Care       Date:  2005-02       Impact factor: 19.112

Review 6.  Adherence to pharmacologic therapy in patients with type 2 diabetes mellitus.

Authors:  Richard R Rubin
Journal:  Am J Med       Date:  2005-05       Impact factor: 4.965

7.  Using an iPad-based video modelling package to teach numeracy skills to a child with an autism spectrum disorder.

Authors:  E L Jowett; D W Moore; A Anderson
Journal:  Dev Neurorehabil       Date:  2012-06-12       Impact factor: 2.308

8.  Evaluation of Community Action Against Asthma: a community health worker intervention to improve children's asthma-related health by reducing household environmental triggers for asthma.

Authors:  Edith A Parker; Barbara A Israel; Thomas G Robins; Graciela Mentz; Wilma Brakefield-Caldwell; Erminia Ramirez; Katherine K Edgren; Maria Salinas; Toby C Lewis
Journal:  Health Educ Behav       Date:  2007-08-29

9.  The design of a decision aid about diabetes medications for use during the consultation with patients with type 2 diabetes.

Authors:  Maggie Breslin; Rebecca J Mullan; Victor M Montori
Journal:  Patient Educ Couns       Date:  2008-09-03

10.  Community action against asthma: examining the partnership process of a community-based participatory research project.

Authors:  Edith A Parker; Barbara A Israel; Melina Williams; Wilma Brakefield-Caldwell; Toby C Lewis; Thomas Robins; Erminia Ramirez; Zachary Rowe; Gerald Keeler
Journal:  J Gen Intern Med       Date:  2003-07       Impact factor: 5.128

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  25 in total

1.  Study protocol: Using peer support to aid in prevention and treatment in prediabetes (UPSTART).

Authors:  Michele Heisler; Jeffrey Kullgren; Caroline Richardson; Shelley Stoll; Cristina Alvarado Nieves; Deanne Wiley; Tali Sedgwick; Alyce Adams; Monique Hedderson; Eileen Kim; Megan Rao; Julie A Schmittdiel
Journal:  Contemp Clin Trials       Date:  2020-06-01       Impact factor: 2.226

2.  The Mini Report: a Practical Tool to Address Lung Cancer Disparities in Rural Communities.

Authors:  Georgia S Mueller-Luckey; Whitney E Zahnd; Kyle Garner; Ruth Heitkamp; Wiley D Jenkins; Michael D Boehler; David E Steward
Journal:  J Cancer Educ       Date:  2017-06       Impact factor: 2.037

3.  Effectiveness of Technologically Enhanced Peer Support in Improving Glycemic Management Among Predominantly African American, Low-Income Adults With Diabetes.

Authors:  Michele Heisler; Hwajung Choi; Rebecca Mase; Judith A Long; Pamela J Reeves
Journal:  Diabetes Educ       Date:  2019-04-26       Impact factor: 2.140

4.  Comparison of community health worker-led diabetes medication decision-making support for low-income Latino and African American adults with diabetes using e-health tools versus print materials: a randomized, controlled trial.

Authors:  Michele Heisler; Hwajung Choi; Gloria Palmisano; Rebecca Mase; Caroline Richardson; Angela Fagerlin; Victor M Montori; Michael Spencer; Laurence C An
Journal:  Ann Intern Med       Date:  2014-11-18       Impact factor: 25.391

5.  Study protocol: The Technology-Enhanced Coaching (TEC) program to improve diabetes outcomes - A randomized controlled trial.

Authors:  Michele Heisler; Rebecca Mase; Brianne Brown; Shayla Wilson; Pamela J Reeves
Journal:  Contemp Clin Trials       Date:  2017-01-27       Impact factor: 2.226

6.  Community Health Workers Versus Nurses as Counselors or Case Managers in a Self-Help Diabetes Management Program.

Authors:  Kim B Kim; Miyong T Kim; Hochang B Lee; Tam Nguyen; Lee R Bone; David Levine
Journal:  Am J Public Health       Date:  2016-03-17       Impact factor: 9.308

7.  Human Papilloma Virus and Cervical Cancer Education Needs among HIV-Positive Haitian Women in Miami.

Authors:  Sonjia Kenya; Olveen Carrasquillo; Marie Fatil; Jamal Jones; Chrystelle Jean; India Huff; Erin Kobetz
Journal:  Womens Health Issues       Date:  2015-04-09

Review 8.  Eliminating disparities among Latinos with type 2 diabetes: Effective eHealth strategies.

Authors:  Lenny López; Aswita Tan-McGrory; Gabrielle Horner; Joseph R Betancourt
Journal:  J Diabetes Complications       Date:  2015-12-08       Impact factor: 2.852

9.  Evaluating tablet computers as a survey tool in rural communities.

Authors:  Steve M Newell; Henrietta L Logan; Yi Guo; John G Marks; James A Shepperd
Journal:  J Rural Health       Date:  2014-09-19       Impact factor: 4.333

10.  Facilitating Meaningful Engagement on Community Advisory Committees in Patient-Centered Outcome Research.

Authors:  Gabrielle Kelly; Shi-Yi Wang; Georgina Lucas; Liana Fraenkel; Cary P Gross
Journal:  Prog Community Health Partnersh       Date:  2017
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