Literature DB >> 23758218

"You've only got one chance to get it right": children's cancer nurses' experiences of providing palliative care in the acute hospital setting.

Helen Nina Pearson1.   

Abstract

The aim of this study was to understand children's cancer nurses experiences of providing palliative care in the acute hospital setting. Palliative care for children with cancer is rarely hospital- centred and predominately care is provided in the community or hospice setting. Vast research has looked at the experiences of children's nurses providing palliative care within the child's home environment or the hospice. This research has suggested that nurses need adequate support to avoid stress and burnout. Parental views focus on the nurses attributes as opposed to the clinical skills which are required. This research study wanted to ascertain whether specific educational preparation or support is needed to prepare children's cancer nurses in providing palliative care in the acute hospital setting. The research study used a qualitative approach with semi-structured in-depth interviews across three primary treatment centers within the United Kingdom that provide cancer care to children. Data were collected and analyzed using a phenomenological approach. Data were collected between October 2011 and February 2012. Interviews took place in the participants preferred location and lasted between 45 and 60 min. Data were analyzed using the Strauss and Corbin method. Five themes emerged which were "lack of a plan", "managing the symptoms", 'family", and "experience". Categories within these themes were devised from participant narratives. The findings of this research study suggest nurses need specific palliative care education not only at pre-registration level but also continuing professional development.

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Year:  2013        PMID: 23758218     DOI: 10.3109/01460862.2013.797520

Source DB:  PubMed          Journal:  Issues Compr Pediatr Nurs        ISSN: 0146-0862


  7 in total

1.  Investigation of Modifiable Variables to Increase Hospice Nurse Comfort With Care Provision to Children and Families in the Community: A Population-Level Study Across Tennessee, Mississippi, and Arkansas.

Authors:  Erica C Kaye; Melanie Gattas; Ashley Kiefer; Jason Reynolds; Kristina Zalud; Chen Li; Zhaohua Lu; Justin N Baker
Journal:  J Pain Symptom Manage       Date:  2020-07-02       Impact factor: 3.612

2.  Using EmPalPed-An Educational Toolkit on Essential Messages in Palliative Care and Pain Management in Children-As a Strategy to Promote Pediatric Palliative Care.

Authors:  Ximena García-Quintero; Angélica Claros-Hulbert; María Elena Tello-Cajiao; Jhon Edwar Bolaños-Lopez; María Isabel Cuervo-Suárez; Martha Gabriela García Durán; Wendy Gómez-García; Michael McNeil; Justin N Baker
Journal:  Children (Basel)       Date:  2022-06-06

3.  Health care Professionals' Experiences and Needs When Delivering End-of-Life Care to Children: A Qualitative Study.

Authors:  Eva Bergsträsser; Eva Cignacco; Patricia Luck
Journal:  Palliat Care       Date:  2017-08-10

4.  The experience of providing end of life care at a children's hospice: a qualitative study.

Authors:  Tracey McConnell; Sam Porter
Journal:  BMC Palliat Care       Date:  2017-02-13       Impact factor: 3.234

5.  Barriers and facilitators to the implementation of a paediatric palliative care team.

Authors:  Lisa M Verberne; Marijke C Kars; Sasja A Schepers; Antoinette Y N Schouten-van Meeteren; Martha A Grootenhuis; Johannes J M van Delden
Journal:  BMC Palliat Care       Date:  2018-02-12       Impact factor: 3.234

6.  A cross-sectional survey of moral distress and ethical climate - Situations in paediatric oncology care that involve children's voices.

Authors:  Päivi Ventovaara; Margareta Af Sandeberg; Gitte Petersen; Klas Blomgren; Pernilla Pergert
Journal:  Nurs Open       Date:  2022-04-20

7.  Community Hospice Nurses' Perspectives on Needs, Preferences, and Challenges Related to Caring for Children With Serious Illness.

Authors:  Amy S Porter; Kristina Zalud; Jacob Applegarth; Cameka Woods; Melanie Gattas; Emily Rutt; Karen Williams; Justin N Baker; Erica C Kaye
Journal:  JAMA Netw Open       Date:  2021-10-01
  7 in total

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