Literature DB >> 23749484

Deafblind people, communication, independence, and isolation.

Marion Hersh1.   

Abstract

This paper discusses issues related to communication, independence, and isolation for an understudied group of deaf people who also have visual impairments. The discussion is based on the experiences of 28 deafblind people in 6 different countries, obtained from interviews that were carried out as part of a larger research project on travel issues. However, the similarities in experiences between countries were stronger than the differences. In particular, barriers to communication and inadequate support, with resulting problems of isolation and depression, were found in all the countries. Equally, deafblind people in all the countries were interested in being involved in and contributing to society and supporting other people, particularly through organizations of blind and deafblind people. This runs counter to the tendency to present deafblind and other disabled people purely as recipients of support rather than also as active participants in society. However, there were some differences in the support available in the different countries.

Entities:  

Mesh:

Year:  2013        PMID: 23749484     DOI: 10.1093/deafed/ent022

Source DB:  PubMed          Journal:  J Deaf Stud Deaf Educ        ISSN: 1081-4159


  14 in total

1.  Associations between sensory loss and social networks, participation, support, and loneliness: Analysis of the Canadian Longitudinal Study on Aging.

Authors:  Paul Mick; Maksim Parfyonov; Walter Wittich; Natalie Phillips; Dawn Guthrie; M Kathleen Pichora-Fuller
Journal:  Can Fam Physician       Date:  2018-01       Impact factor: 3.275

2.  Tactile short-term memory in sensory-deprived individuals.

Authors:  Costanza Papagno; Giovanna Minniti; Giulia C Mattavelli; Lara Mantovan; Carlo Cecchetto
Journal:  Exp Brain Res       Date:  2016-10-26       Impact factor: 1.972

3.  Is it Usher syndrome? Collaborative diagnosis and molecular genetics of patients with visual impairment and hearing loss.

Authors:  Heather A Stiff; Christina M Sloan-Heggen; Ashley Ko; Wanda L Pfeifer; Diana L Kolbe; Carla J Nishimura; Kathy L Frees; Kevin T Booth; Donghong Wang; Amy E Weaver; Hela Azaiez; John Kamholz; Richard J H Smith; Arlene V Drack
Journal:  Ophthalmic Genet       Date:  2020-04-13       Impact factor: 1.803

4.  Psychosocial well-being and health-related quality of life in a UK population with Usher syndrome.

Authors:  Gavin Dean; Amy Orford; Roy Staines; Anna McGee; Kimberley J Smith
Journal:  BMJ Open       Date:  2017-01-12       Impact factor: 2.692

5.  Problems identified by dual sensory impaired older adults in long-term care when using a self-management program: A qualitative study.

Authors:  Lieve Roets-Merken; Sytse Zuidema; Myrra Vernooij-Dassen; Marianne Dees; Pieter Hermsen; Gertrudis Kempen; Maud Graff
Journal:  PLoS One       Date:  2017-03-21       Impact factor: 3.240

6.  Challenges of teaching the deaf-blind learner in an education setting in Johannesburg: Experiences of educators and assistant educators.

Authors:  Tejal Manga; Khetsiwe P Masuku
Journal:  S Afr J Commun Disord       Date:  2020-06-11

Review 7.  Participation experiences of people with deafblindness or dual sensory loss: A scoping review of global deafblind literature.

Authors:  Atul Jaiswal; Heather Aldersey; Walter Wittich; Mansha Mirza; Marcia Finlayson
Journal:  PLoS One       Date:  2018-09-13       Impact factor: 3.240

Review 8.  Informed Consent or Assent Strategies for Research With Individuals With Deafblindness or Dual Sensory Impairment: A Scoping Review.

Authors:  Abinethaa Paramasivam; Atul Jaiswal; Renu Minhas; Walter Wittich; Roxanna Spruyt-Rocks
Journal:  Arch Rehabil Res Clin Transl       Date:  2021-02-22

9.  Health, work, social trust, and financial situation in persons with Usher syndrome type 1.

Authors:  Mattias Ehn; Moa Wahlqvist; Berth Danermark; Örjan Dahlström; Claes Möller
Journal:  Work       Date:  2018

10.  Overcoming barriers to the involvement of deafblind people in conversations about research: recommendations from individuals with Usher syndrome.

Authors:  Andrew Skilton; Emma Boswell; Kevin Prince; Priya Francome-Wood; Mariya Moosajee
Journal:  Res Involv Engagem       Date:  2018-10-26
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