Literature DB >> 23739673

Return of results to the families of children in genomic sequencing: tallying risks and benefits.

James P Evans.   

Abstract

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Year:  2013        PMID: 23739673     DOI: 10.1038/gim.2013.54

Source DB:  PubMed          Journal:  Genet Med        ISSN: 1098-3600            Impact factor:   8.822


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  5 in total

Review 1.  Ethical considerations in genomic testing for hematologic disorders.

Authors:  Jonathan M Marron; Steven Joffe
Journal:  Blood       Date:  2017-06-09       Impact factor: 22.113

2.  Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families.

Authors:  Conrad V Fernandez; P Pearl O'Rourke; Laura M Beskow
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

3.  Ethical Issues in Newborn Sequencing Research: The Case Study of BabySeq.

Authors:  Lainie Friedman Ross; Ellen Wright Clayton
Journal:  Pediatrics       Date:  2019-11-12       Impact factor: 7.124

4.  Exploring neurologists' perspectives on the return of next generation sequencing results to their patients: a needed step in the development of guidelines.

Authors:  Thierry Hurlimann; Iris Jaitovich Groisman; Béatrice Godard
Journal:  BMC Med Ethics       Date:  2018-09-29       Impact factor: 2.652

5.  Pediatric reporting of genomic results study (PROGRESS): a mixed-methods, longitudinal, observational cohort study protocol to explore disclosure of actionable adult- and pediatric-onset genomic variants to minors and their parents.

Authors:  Juliann M Savatt; Jennifer K Wagner; Steven Joffe; Alanna Kulchak Rahm; Marc S Williams; Angela R Bradbury; F Daniel Davis; Julie Hergenrather; Yirui Hu; Melissa A Kelly; H Lester Kirchner; Michelle N Meyer; Jessica Mozersky; Sean M O'Dell; Josie Pervola; Andrea Seeley; Amy C Sturm; Adam H Buchanan
Journal:  BMC Pediatr       Date:  2020-05-15       Impact factor: 2.125

  5 in total

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