Literature DB >> 23720053

Cancer research advocacy: past, present, and future.

Jane Perlmutter1, Shannon K Bell, Gwen Darien.   

Abstract

In this article, we present a brief history of cancer advocacy and discuss the variety of ways advocates have become involved in cancer research and subsequently present principles that establish a framework for successful research advocacy based on a review of many early initiatives coupled with our knowledge as long-time cancer advocates. Challenges to effective advocacy are described, and recommendations for increasing meaningful contributions by research advocates are proposed. The purpose of this article is to discuss the exciting field of research advocacy and to help shape a more productive future for advocates and their scientific collaborators. ©2013 AACR.

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Year:  2013        PMID: 23720053     DOI: 10.1158/0008-5472.CAN-12-4553-T

Source DB:  PubMed          Journal:  Cancer Res        ISSN: 0008-5472            Impact factor:   12.701


  9 in total

1.  Nurturing Advocacy Inclusion to Bring Health Equity in Breast Cancer among African American Women.

Authors:  Kimlin Tam Ashing; Aria M Miller; Eudora Mitchell; Virginia Martin; Kommah McDowell; Rhonda Santifer; June Smith; Shirley Brown; Camille Ragin; Agatha Carrington
Journal:  Breast Cancer Manag       Date:  2014

2.  Connecting Students with Patients and Survivors to Enhance Cancer Research Training.

Authors:  Robert N Riter; Robert S Weiss
Journal:  Cancer Res       Date:  2019-07-31       Impact factor: 12.701

Review 3.  A New Framework for Patient Engagement in Cancer Clinical Trials Cooperative Group Studies.

Authors:  Patricia A Deverka; Rick Bangs; Karma Kreizenbeck; Deborah M Delaney; Dawn L Hershman; Charles D Blanke; Scott D Ramsey
Journal:  J Natl Cancer Inst       Date:  2018-06-01       Impact factor: 13.506

Review 4.  Promoting Scientist-Advocate Collaborations in Cancer Research: Why and How.

Authors:  Jeannine M Salamone; Wanda Lucas; Shelley B Brundage; Jamie N Holloway; Sherri M Stahl; Nora E Carbine; Margery London; Naomi Greenwood; Rosa Goyes; Deborah Charles Chisholm; Erin Price; Roberta Carlin; Susan Winarsky; Kirsten B Baker; Julia Maues; Ayesha N Shajahan-Haq
Journal:  Cancer Res       Date:  2018-08-17       Impact factor: 12.701

5.  Patient Engagement in Neurological Clinical Trials Design: A Conference Summary.

Authors:  Enesha M Cobb; William Meurer; Deneil Harney; Robert Silbergleit; Bray Patrick Lake; Christina Clark; Debbie Gipson; William Barsan
Journal:  Clin Transl Sci       Date:  2015-06-17       Impact factor: 4.689

6.  Clinical trialist perspectives on the ethics of adaptive clinical trials: a mixed-methods analysis.

Authors:  Laurie J Legocki; William J Meurer; Shirley Frederiksen; Roger J Lewis; Valerie L Durkalski; Donald A Berry; William G Barsan; Michael D Fetters
Journal:  BMC Med Ethics       Date:  2015-05-03       Impact factor: 2.652

7.  International Framework for Cancer Patient Advocacy: Empowering Organizations and Patients to Create a National Call to Action on Cancer.

Authors:  Rebekkah M Schear; Leigh Manasco; Devon McGoldrick; Kiti Kajana; Lauren Rosenthal; Ann McMikel; Nancy Lins
Journal:  J Glob Oncol       Date:  2015-10-28

8.  NCI's publication affiliation conundrum: Reframing innovation to incentivize an equitable path for advocate representation.

Authors:  Susan Samson; Jason J Northey; Irene Acerbi; Andrei Goga; Carl L Flink; Valerie M Weaver; Mark A LaBarge
Journal:  Transl Oncol       Date:  2021-12-30       Impact factor: 4.243

9.  Global Patient Involvement in Sarcoma Care-A Collaborative Initiative of the Connective Tissue Oncology Society (CTOS) & Sarcoma Patients EuroNet (SPAEN).

Authors:  Bernd Kasper; Kathrin Schuster; Roger Wilson; Sorrel Bickley; Jean-Yves Blay; Denise Reinke; Markus Wartenberg; Rick Haas
Journal:  Cancers (Basel)       Date:  2022-02-09       Impact factor: 6.639

  9 in total

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