Literature DB >> 23690163

Involving children in non-therapeutic research: on the development argument.

Linus Broström1, Mats Johansson.   

Abstract

Non-therapeutic research on children raises ethical concerns. Such research is not only conducted on individuals who are incapable of providing informed consent. It also typically involves some degree of risk or discomfort, without prospects of medically benefiting the participating children. Therefore, these children seem to be instrumentalized. Some ethicists, however, have tried to sidestep this problem by arguing that the children may indirectly benefit from participating in such research, in ways not related to the medical intervention as such. It has been argued, for example, that non-therapeutic pediatric research does not instrumentalize the children enrolled since it has the prospects of furthering their moral development. We argue that this argument is far too undeveloped to be taken seriously.

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Year:  2014        PMID: 23690163     DOI: 10.1007/s11019-013-9486-0

Source DB:  PubMed          Journal:  Med Health Care Philos        ISSN: 1386-7423


  13 in total

1.  Parents, children, and the moral benefits of research.

Authors:  W G Bartholome
Journal:  Hastings Cent Rep       Date:  1976-12       Impact factor: 2.683

2.  Moral duties of parents and nontherapeutic clinical research procedures involving children.

Authors:  Terrence F Ackerman
Journal:  Bioethics Q       Date:  1980

Review 3.  Defining and describing benefit appropriately in clinical trials.

Authors:  N M King
Journal:  J Law Med Ethics       Date:  2000       Impact factor: 1.718

4.  A new justification for pediatric research without the potential for clinical benefit.

Authors:  David Wendler
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

5.  Obliging children.

Authors:  Barry Lyons
Journal:  Med Law Rev       Date:  2011-02-02       Impact factor: 1.267

6.  The enforcement of morals: nontherapeutic research on children.

Authors:  P Ramsey
Journal:  Hastings Cent Rep       Date:  1976-08       Impact factor: 2.683

7.  Experimentation in children: sharing in sociality.

Authors:  R A McCormick
Journal:  Hastings Cent Rep       Date:  1976-12       Impact factor: 2.683

8.  How children can be respected as 'ends' yet still be used as subjects in non-therapeutic research.

Authors:  R B Redmon
Journal:  J Med Ethics       Date:  1986-06       Impact factor: 2.903

9.  On using people merely as a means in clinical research.

Authors:  Rieke van der Graaf; Johannes J M van Delden
Journal:  Bioethics       Date:  2010-04-05       Impact factor: 1.898

10.  Should we presume moral turpitude in our children?--small children and consent to medical research.

Authors:  John Harris; Søren Holm
Journal:  Theor Med Bioeth       Date:  2003
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  5 in total

1.  Body matters: rethinking the ethical acceptability of non-beneficial clinical research with children.

Authors:  Eva De Clercq; Domnita Oana Badarau; Katharina M Ruhe; Tenzin Wangmo
Journal:  Med Health Care Philos       Date:  2015-08

2.  Using a Respectful Approach to Child-centred Healthcare (ReACH) in a paediatric clinical trial: A feasibility study.

Authors:  Analise Nicholl; Kate Evelegh; Kane Evan Deering; Kate Russell; David Lawrence; Philippa Lyons-Wall; Therese Anne O'Sullivan
Journal:  PLoS One       Date:  2020-11-09       Impact factor: 3.240

3.  Non-beneficial pediatric research: individual and social interests.

Authors:  Jan Piasecki; Marcin Waligora; Vilius Dranseika
Journal:  Med Health Care Philos       Date:  2015-02

4.  Child's objection to non-beneficial research: capacity and distress based models.

Authors:  Marcin Waligora; Joanna Różyńska; Jan Piasecki
Journal:  Med Health Care Philos       Date:  2016-03

5.  Development and validation of the Distracting Ingenuity Promotion Scale for paediatric nurses to support the psychological outcomes of paediatric patients and their families: A survey-based cross-sectional cohort study.

Authors:  Hiroyuki Ogihara
Journal:  Nurs Open       Date:  2022-03-11
  5 in total

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