Literature DB >> 23686341

Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.

Susan M Wolf1, George J Annas, Sherman Elias.   

Abstract

Entities:  

Mesh：

Year:  2013        PMID： 23686341      PMCID： PMC3721305          DOI： 10.1126/science.1239119

Source DB:  PubMed          Journal:  Science        ISSN： 0036-8075            Impact factor:   47.728


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  10 in total

1.  The incidentalome: a threat to genomic medicine.

Authors:  Isaac S Kohane; Daniel R Masys; Russ B Altman
Journal:  JAMA       Date:  2006-07-12       Impact factor: 56.272

2.  Medicine. Reestablishing the researcher-patient compact.

Authors:  Isaac S Kohane; Kenneth D Mandl; Patrick L Taylor; Ingrid A Holm; Daniel J Nigrin; Louis M Kunkel
Journal:  Science       Date:  2007-05-11       Impact factor: 47.728

3.  Putting the Genetic Information Nondiscrimination Act in context.

Authors:  Mark A Rothstein
Journal:  Genet Med       Date:  2008-09       Impact factor: 8.822

4.  Generic consent for genetic screening.

Authors:  S Elias; G J Annas
Journal:  N Engl J Med       Date:  1994-06-02       Impact factor: 91.245

Review 5.  Managing incidental findings in human subjects research: analysis and recommendations.

Authors:  Susan M Wolf; Frances P Lawrenz; Charles A Nelson; Jeffrey P Kahn; Mildred K Cho; Ellen Wright Clayton; Joel G Fletcher; Michael K Georgieff; Dale Hammerschmidt; Kathy Hudson; Judy Illes; Vivek Kapur; Moira A Keane; Barbara A Koenig; Bonnie S Leroy; Elizabeth G McFarland; Jordan Paradise; Lisa S Parker; Sharon F Terry; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

6.  Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. American Society of Human Genetics Board of Directors, American College of Medical Genetics Board of Directors.

Authors: 
Journal:  Am J Hum Genet       Date:  1995-11       Impact factor: 11.025

7.  Managing incidental findings and research results in genomic research involving biobanks and archived data sets.

Authors:  Susan M Wolf; Brittney N Crock; Brian Van Ness; Frances Lawrenz; Jeffrey P Kahn; Laura M Beskow; Mildred K Cho; Michael F Christman; Robert C Green; Ralph Hall; Judy Illes; Moira Keane; Bartha M Knoppers; Barbara A Koenig; Isaac S Kohane; Bonnie Leroy; Karen J Maschke; William McGeveran; Pilar Ossorio; Lisa S Parker; Gloria M Petersen; Henry S Richardson; Joan A Scott; Sharon F Terry; Benjamin S Wilfond; Wendy A Wolf
Journal:  Genet Med       Date:  2012-04       Impact factor: 8.822

8.  Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network.

Authors:  Stephanie M Fullerton; Wendy A Wolf; Kyle B Brothers; Ellen Wright Clayton; Dana C Crawford; Joshua C Denny; Philip Greenland; Barbara A Koenig; Kathleen A Leppig; Noralane M Lindor; Catherine A McCarty; Amy L McGuire; Eugenia R McPeek Hinz; Daniel B Mirel; Erin M Ramos; Marylyn D Ritchie; Maureen E Smith; Carol J Waudby; Wylie Burke; Gail P Jarvik
Journal:  Genet Med       Date:  2012-02-23       Impact factor: 8.822

9.  ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.

Authors:  Robert C Green; Jonathan S Berg; Wayne W Grody; Sarah S Kalia; Bruce R Korf; Christa L Martin; Amy L McGuire; Robert L Nussbaum; Julianne M O'Daniel; Kelly E Ormond; Heidi L Rehm; Michael S Watson; Marc S Williams; Leslie G Biesecker
Journal:  Genet Med       Date:  2013-06-20       Impact factor: 8.822

10.  Technical report: Ethical and policy issues in genetic testing and screening of children.

Authors:  Lainie Friedman Ross; Laine Friedman Ross; Howard M Saal; Karen L David; Rebecca R Anderson
Journal:  Genet Med       Date:  2013-02-21       Impact factor: 8.822
  10 in total
  98 in total

1.  Clinical Management of Pediatric Genomic Testing.

Authors:  Ingrid A Holm
Journal:  Curr Genet Med Rep       Date:  2014-12-01

2.  Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.

Authors:  Susan M Wolf; Rebecca Branum; Barbara A Koenig; Gloria M Petersen; Susan A Berry; Laura M Beskow; Mary B Daly; Conrad V Fernandez; Robert C Green; Bonnie S LeRoy; Noralane M Lindor; P Pearl O'Rourke; Carmen Radecki Breitkopf; Mark A Rothstein; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

3.  Public views on participating in newborn screening using genome sequencing.

Authors:  Yvonne Bombard; Fiona A Miller; Robin Z Hayeems; Carolyn Barg; Celine Cressman; June C Carroll; Brenda J Wilson; Julian Little; Denise Avard; Michael Painter-Main; Judith Allanson; Yves Giguere; Pranesh Chakraborty
Journal:  Eur J Hum Genet       Date:  2014-02-19       Impact factor: 4.246

Review 4.  Applications of high-throughput DNA sequencing to benign hematology.

Authors:  Vijay G Sankaran; Patrick G Gallagher
Journal:  Blood       Date:  2013-09-10       Impact factor: 22.113

5.  Discussing molecular testing in oncology care: Comparing patient and physician information preferences.

Authors:  Ana P M Pinheiro; Rachel H Pocock; Jeffrey M Switchenko; Margie D Dixon; Walid L Shaib; Suresh S Ramalingam; Rebecca D Pentz
Journal:  Cancer       Date:  2017-01-31       Impact factor: 6.860

6.  Which Results to Return: Subjective Judgments in Selecting Medically Actionable Genes.

Authors:  Gabriel Lázaro-Muñoz; John M Conley; Arlene M Davis; Anya E R Prince; R Jean Cadigan
Journal:  Genet Test Mol Biomarkers       Date:  2017-02-01

7.  Ethical issues in pediatric pharmacogenomics.

Authors:  Kyle B Brothers
Journal:  J Pediatr Pharmacol Ther       Date:  2013-07

Review 8.  Getting personal: Head and neck cancer management in the era of genomic medicine.

Authors:  Andrew C Birkeland; Wendy R Uhlmann; J Chad Brenner; Andrew G Shuman
Journal:  Head Neck       Date:  2015-08-13       Impact factor: 3.147

9.  Returning a Genomic Result for an Adult-Onset Condition to the Parents of a Newborn: Insights From the BabySeq Project.

Authors:  Ingrid A Holm; Amy McGuire; Stacey Pereira; Heidi Rehm; Robert C Green; Alan H Beggs
Journal:  Pediatrics       Date:  2019-01       Impact factor: 7.124

10.  Return of genomic results to research participants: the floor, the ceiling, and the choices in between.

Authors:  Gail P Jarvik; Laura M Amendola; Jonathan S Berg; Kyle Brothers; Ellen W Clayton; Wendy Chung; Barbara J Evans; James P Evans; Stephanie M Fullerton; Carlos J Gallego; Nanibaa' A Garrison; Stacy W Gray; Ingrid A Holm; Iftikhar J Kullo; Lisa Soleymani Lehmann; Cathy McCarty; Cynthia A Prows; Heidi L Rehm; Richard R Sharp; Joseph Salama; Saskia Sanderson; Sara L Van Driest; Marc S Williams; Susan M Wolf; Wendy A Wolf; Wylie Burke
Journal:  Am J Hum Genet       Date:  2014-05-08       Impact factor: 11.025
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