Literature DB >> 23670719

Patient and family experiences of palliative care in hospital: what do we know? An integrative review.

Jackie Robinson1, Merryn Gott, Christine Ingleton.   

Abstract

BACKGROUND: In most developed countries, acute hospitals play a significant role in palliative care provision and are the setting in which most people die. They are often the setting where a life-limiting diagnosis is made and where patients present when symptoms develop or when they are not well managed. Understanding the experiences of hospital admissions for people with a life-limiting illness and their families is essential in understanding the role acute hospitals play in providing palliative care. AIM: The aim of this review is to synthesise current evidence regarding the experience of palliative care in an acute hospital setting from the perspectives of patient and family.
DESIGN: An integrative review was completed using standard processes followed by a process of data extraction and synthesis. DATA SOURCES: Using predefined search terms, literature was sourced from five electronic databases including MEDLINE (EBSCO), CINAHL, EMBASE, Cochrane and PsycINFO between January 1990 and November 2011. Reference lists from relevant articles were cross-checked and pertinent journals hand searched for articles.
RESULTS: In total, 32 articles were included in the review. Five recurring themes were identified from the synthesised data: symptom control and burden, communication with health professionals, decision-making related to patient care and management, inadequate hospital environment and interpersonal relationships with health professionals.
CONCLUSION: This review has identified that, largely as a result of study design, our knowledge of patient and family experiences of palliative care in an acute hospital remains limited to discrete aspects of care. Further research is required to explore the total patient and family experience taking into account all aspects of care including the potential benefits of hospital admissions in the last year of life.

Entities:  

Keywords:  Palliative care; hospitalisation; patient admission; patient satisfaction; professional–family relations

Mesh:

Year:  2013        PMID: 23670719     DOI: 10.1177/0269216313487568

Source DB:  PubMed          Journal:  Palliat Med        ISSN: 0269-2163            Impact factor:   4.762


  31 in total

1.  "I Just Felt Like I Was Stuck in the Middle": Physician Assistants' Experiences Communicating With Terminally Ill Patients and Their Families in the Acute Care Setting.

Authors:  Elizabeth Chuang; Richard Lamkin; Aluko A Hope; Gina Kim; Jean Burg; Michelle Ng Gong
Journal:  J Pain Symptom Manage       Date:  2017-05-04       Impact factor: 3.612

2.  What's the Plan? Needing Assistance with Plan of Care Is Associated with In-Hospital Death for ICU Patients Referred for Palliative Care Consultation.

Authors:  Ayano Kiyota; Christina L Bell; Kamal Masaki; Daniel J Fischberg
Journal:  Hawaii J Med Public Health       Date:  2016-08

3.  Promoting improved family caregiver health literacy: evaluation of caregiver communication resources.

Authors:  Elaine Wittenberg; Joy Goldsmith; Betty Ferrell; Sandra L Ragan
Journal:  Psychooncology       Date:  2016-03-16       Impact factor: 3.894

4.  Gaps in Provision of Primary and Specialty Palliative Care in the Acute Care Setting by Race and Ethnicity.

Authors:  Elizabeth Chuang; Aluko A Hope; Katherine Allyn; Elissa Szalkiewicz; Brittany Gary; Michelle N Gong
Journal:  J Pain Symptom Manage       Date:  2017-07-29       Impact factor: 3.612

Review 5.  Health literacy in cancer caregivers: a systematic review.

Authors:  Chloe Moore; Danielle Hassett; Simon Dunne
Journal:  J Cancer Surviv       Date:  2021-01-07       Impact factor: 4.442

6.  Communication Coaching: A Case Study of Family Caregiver Burden.

Authors:  Elaine Wittenberg; Betty Ferrell; Marianna Koczywas; Catherine Ferraro
Journal:  Clin J Oncol Nurs       Date:  2017-04-01       Impact factor: 1.283

7.  Dying in hospital in Germany - optimising care in the dying phase: study protocol for a multi-centre bottom-up intervention on ward level.

Authors:  Kerstin Kremeike; Anneke Ullrich; Karin Oechsle; Raymond Voltz; Holger Schulz; Carolin Rosendahl; Kathleen Boström; Sukhvir Kaur; Nikolas Oubaid; Christina Plathe-Ignatz; Christin Leminski; Kira Hower; Holger Pfaff; Martin Hellmich
Journal:  BMC Palliat Care       Date:  2022-05-06       Impact factor: 3.113

Review 8.  Dying in the hospital setting: A systematic review of quantitative studies identifying the elements of end-of-life care that patients and their families rank as being most important.

Authors:  Claudia Virdun; Tim Luckett; Patricia M Davidson; Jane Phillips
Journal:  Palliat Med       Date:  2015-04-28       Impact factor: 4.762

9.  Experiences of patients, family and professional caregivers with Integrated Palliative Care in Europe: protocol for an international, multicenter, prospective, mixed method study.

Authors:  Marlieke van der Eerden; Agnes Csikos; Csilla Busa; Sean Hughes; Lukas Radbruch; Johan Menten; Jeroen Hasselaar; Marieke Groot
Journal:  BMC Palliat Care       Date:  2014-11-21       Impact factor: 3.234

10.  Communication between family carers and health professionals about end-of-life care for older people in the acute hospital setting: a qualitative study.

Authors:  Glenys Caswell; Kristian Pollock; Rowan Harwood; Davina Porock
Journal:  BMC Palliat Care       Date:  2015-08-01       Impact factor: 3.234

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