Literature DB >> 23659815

Health care autonomy in children with chronic conditions: implications for self-care and family management.

Barbara L Beacham1, Janet A Deatrick.   

Abstract

Health care autonomy typically occurs during late adolescence but health care providers and families often expect children with chronic health conditions to master self-care earlier. Few studies have examined the development of health care autonomy as it pertains to self-care and family management. This review links the 3 concepts and discusses the implications for families and health care providers. Case studies are provided as exemplars to highlight areas where intervention and research is needed.
Copyright © 2013 Elsevier Inc. All rights reserved.

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Year:  2013        PMID： 23659815      PMCID： PMC3805269          DOI： 10.1016/j.cnur.2013.01.010

Source DB:  PubMed          Journal:  Nurs Clin North Am        ISSN： 0029-6465            Impact factor:   1.208


  22 in total

1.  Examining the motivational impact of intrinsic versus extrinsic goal framing and autonomy-supportive versus internally controlling communication style on early adolescents' academic achievement.

Authors:  Maarten Vansteenkiste; Joke Simons; Willy Lens; Bart Soenens; Lennia Matos
Journal:  Child Dev       Date:  2005 Mar-Apr

2.  Illness centrality and well-being among male and female early adolescents with diabetes.

Authors:  Vicki S Helgeson; Sarah A Novak
Journal:  J Pediatr Psychol       Date:  2006-07-12

3.  Parent-adolescent discrepancies in adolescents' competence and the balance of adolescent autonomy and adolescent and parent well-being in the context of Type 1 diabetes.

Authors:  Jonathan Butner; Cynthia A Berg; Peter Osborn; Jorie M Butler; Carine Godri; Katie T Fortenberry; Ilana Barach; Hai Le; Deborah J Wiebe
Journal:  Dev Psychol       Date:  2009-05

Review 4.  Chronic childhood disorders: prevalence and impact.

Authors:  S L Gortmaker; W Sappenfield
Journal:  Pediatr Clin North Am       Date:  1984-02       Impact factor: 3.278

Review 5.  Medical adherence and childhood chronic illness: family daily management skills and emotional climate as emerging contributors.

Authors:  Barbara H Fiese; Robin S Everhart
Journal:  Curr Opin Pediatr       Date:  2006-10       Impact factor: 2.856

6.  Children's appraisals of maternal involvement in coping with diabetes: enhancing our understanding of adherence, metabolic control, and quality of life across adolescence.

Authors:  Deborah J Wiebe; Cynthia A Berg; Carolyn Korbel; Debra L Palmer; Ryan M Beveridge; Renn Upchurch; Rob Lindsay; Michael T Swinyard; David L Donaldson
Journal:  J Pediatr Psychol       Date:  2005-03

7.  The effects of autonomy-supportive coaching, need satisfaction, and self-perceptions on initiative and identity in youth swimmers.

Authors:  J Douglas Coatsworth; David E Conroy
Journal:  Dev Psychol       Date:  2009-03

8.  Development and testing of a scale to measure separation anxiety of parents of adolescents.

Authors:  Carol J Dashiff; Michael Weaver
Journal:  J Nurs Meas       Date:  2008

9.  The use of Continuous Subcutaneous Insulin Infusion (CSII): parental and professional perceptions of self-care mastery and autonomy in children and adolescents.

Authors:  Jill Weissberg-Benchell; Shirley S Goodman; Jeanne Antisdel Lomaglio; Kathy Zebracki
Journal:  J Pediatr Psychol       Date:  2007-06-28

10.  Chronic illness, disability, and mental and social well-being: findings of the Ontario Child Health Study.

Authors:  D Cadman; M Boyle; P Szatmari; D R Offord
Journal:  Pediatrics       Date:  1987-05       Impact factor: 7.124
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  14 in total

1.  Parent-to-Child Transition in Managing Cystic Fibrosis: A Research Synthesis.

Authors:  Jennifer Leeman; Margarete Sandelowski; Nancy L Havill; Kathleen Knafl
Journal:  J Fam Theory Rev       Date:  2015-06

2.  Evaluation of Medication-related Self-care Skills in Patients With Cystic Fibrosis.

Authors:  Kelsey Lackey Lewis; Barnabas John; Michelle Condren; Sandra M Carter
Journal:  J Pediatr Pharmacol Ther       Date:  2016 Nov-Dec

3.  A Longitudinal Study of Depressive Symptoms, Neuropsychological Functioning, and Medical Responsibility in Youth With Spina Bifida: Examining Direct and Mediating Pathways.

Authors:  Alexa Stern; Colleen F Bechtel Driscoll; Diana Ohanian; Grayson N Holmbeck
Journal:  J Pediatr Psychol       Date:  2018-09-01

4.  "It was not okay because you leave your friends behind": A prospective analysis of transition to adult care for adolescents living with perinatally-acquired HIV in South Africa.

Authors:  Brian C Zanoni; Moherndran Archary; Tamarra Subramony; Thobekile Sibaya; Christina Psaros; Jessica E Haberer
Journal:  Vulnerable Child Youth Stud       Date:  2021-01-22

5.  Medical responsibility growth in youth with spina bifida: Neuropsychological and parenting predictors.

Authors:  Alexa R Stern; Adrien M Winning; Joseph R Rausch; Grayson N Holmbeck
Journal:  Health Psychol       Date:  2021-10       Impact factor: 5.556

6.  Exploration of Decisional Control Preferences in Adolescents and Young Adults with Cancer and Other Complex Medical Conditions.

Authors:  Sarah J Miano; Sara L Douglas; Ronald L Hickman; Marguerite DiMarco; Connie Piccone; Barbara J Daly
Journal:  J Adolesc Young Adult Oncol       Date:  2020-02-24       Impact factor: 2.223

7.  Transition Readiness for Talking With Providers in Urban Youth With Asthma: Associations With Medication Management.

Authors:  Marybeth R Jones; Sean M Frey; Kristin Riekert; Maria Fagnano; Jill S Halterman
Journal:  J Adolesc Health       Date:  2018-10-30       Impact factor: 5.012

8.  Understanding the Influences Behind Parents' Asthma Decision-Making: A Qualitative Exploration of the Asthma Network of Parents with Children with Asthma.

Authors:  Pamela Srour-Alphonse; Biljana Cvetkovski; Elizabeth Azzi; Cynthia Rand; Lynn H M Cheong; Vicky Kritikos; Sinthia Bosnic-Anticevich
Journal:  Pulm Ther       Date:  2021-02-10

9.  Parent Experiences With Electronic Medication Monitoring in Pediatric Asthma Management: Qualitative Study.

Authors:  Kristin Kan; Sara Shaunfield; Madeleine Kanaley; Avneet Chadha; Kathy Boon; Carolyn C Foster; Luis Morales; Patricia Labellarte; Deneen Vojta; Ruchi S Gupta
Journal:  JMIR Pediatr Parent       Date:  2021-04-23

Review 10.  Care of girls and women with Turner syndrome: beyond growth and hormones.

Authors:  Caroline Culen; Diana-Alexandra Ertl; Katharina Schubert; Lisa Bartha-Doering; Gabriele Haeusler
Journal:  Endocr Connect       Date:  2017-03-23       Impact factor: 3.335
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