Literature DB >> 23625019

Unmet needs in immigrant cancer survivors: a cross-sectional population-based study.

P N Butow1, M L Bell, L J Aldridge, M Sze, M Eisenbruch, M Jefford, P Schofield, A Girgis, M King, P S Duggal, J McGrane, D Goldstein.   

Abstract

PURPOSE: Social suffering, language difficulties, and cultural factors may all make the cancer experience more difficult for immigrants. This study aimed to document unmet needs, and variables associated with these, in a population-based sample of first-generation immigrants and Anglo-Australians who had survived cancer.
METHODS: Participants were recruited via Australian cancer registries. Eligible cancer survivors had a new diagnosis 1-6 years earlier and were aged between 18 and 80 years at diagnosis. Eligible immigrant participants and parents were born in a country where Arabic, Chinese (Mandarin, Cantonese, and other dialects), or Greek is spoken, and they spoke one of these languages. A random sample of English-speaking Anglo-Australian-born controls was recruited.
RESULTS: Five hundred ninety-six patients (277 immigrants) were recruited to the study (response rate, 26%). Compared to Anglo-Australians, the adjusted odds ratio of Chinese immigrants for at least one unmet information/support need was 5.1 (95% CI 3.1, 8.3) and for any unmet physical need was 3.1 (95% CI 1.9, 5.1). For Greek, these were 2.0 (95% CI 1.1, 4.0) and 2.7 (95% CI 1.4, 5.2). Arabic patients had elevated, but not statistically significant, odds ratios compared to Anglo-Australians. Written information and having a specialist, support services, and other health professionals who spoke their language were in the top ten unmet needs amongst immigrants.
CONCLUSION: Immigrant cancer survivors, several years after initial diagnosis, are more likely to have an unmet need for information or for help with a physical problem than Anglo-Australians. They strongly desire information and support in their own language.

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Year:  2013        PMID: 23625019     DOI: 10.1007/s00520-013-1819-2

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  26 in total

Review 1.  Psychological morbidity and quality of life of ethnic minority patients with cancer: a systematic review and meta-analysis.

Authors:  Tim Luckett; David Goldstein; Phyllis N Butow; Val Gebski; Lynley J Aldridge; Joshua McGrane; Weng Ng; Madeleine T King
Journal:  Lancet Oncol       Date:  2011-10-11       Impact factor: 41.316

2.  Unmet needs for specialty, dental, mental, and allied health care among children with special health care needs: are there racial/ethnic disparities?

Authors:  Emmanuel M Ngui; Glenn Flores
Journal:  J Health Care Poor Underserved       Date:  2007-11

3.  The development and evaluation of a measure to assess cancer survivors' unmet supportive care needs: the CaSUN (Cancer Survivors' Unmet Needs measure).

Authors:  K Hodgkinson; P Butow; G E Hunt; S Pendlebury; K M Hobbs; S K Lo; G Wain
Journal:  Psychooncology       Date:  2007-09       Impact factor: 3.894

4.  The unmet supportive care needs of patients with cancer. Supportive Care Review Group.

Authors:  R Sanson-Fisher; A Girgis; A Boyes; B Bonevski; L Burton; P Cook
Journal:  Cancer       Date:  2000-01-01       Impact factor: 6.860

Review 5.  The impact of medical interpreter services on the quality of health care: a systematic review.

Authors:  Glenn Flores
Journal:  Med Care Res Rev       Date:  2005-06       Impact factor: 3.929

6.  Psychosocial needs assessment among an underserved, ethnically diverse cancer patient population.

Authors:  Alyson B Moadel; Carole Morgan; Janice Dutcher
Journal:  Cancer       Date:  2007-01-15       Impact factor: 6.860

7.  Cervical cancer survivorship in a population based sample.

Authors:  Kimlin T Ashing-Giwa; Judith S Tejero; Jinsook Kim; Geraldine V Padilla; Marjorie Kagawa-Singer; M Belinda Tucker; Jung-Won Lim
Journal:  Gynecol Oncol       Date:  2008-12-06       Impact factor: 5.482

Review 8.  What are the unmet supportive care needs of people with cancer? A systematic review.

Authors:  James D Harrison; Jane M Young; Melanie A Price; Phyllis N Butow; Michael J Solomon
Journal:  Support Care Cancer       Date:  2009-03-25       Impact factor: 3.603

9.  Evaluation of the Chinese version of the Hospital Anxiety and Depression Scale. A cross-cultural perspective.

Authors:  C M Leung; S Ho; C S Kan; C H Hung; C N Chen
Journal:  Int J Psychosom       Date:  1993

10.  Prevalence and correlates of cancer survivors' supportive care needs 6  months after diagnosis: a population-based cross-sectional study.

Authors:  Allison W Boyes; Afaf Girgis; Catherine D'Este; Alison C Zucca
Journal:  BMC Cancer       Date:  2012-04-18       Impact factor: 4.430

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  18 in total

1.  Assessing the invariance of a culturally competent multi-lingual unmet needs survey for immigrant and Australian-born cancer patients: a Rasch analysis.

Authors:  J A McGrane; P N Butow; M Sze; M Eisenbruch; D Goldstein; M T King
Journal:  Qual Life Res       Date:  2014-05-24       Impact factor: 4.147

2.  Culturally and linguistically diverse patient participation in glioma research.

Authors:  Zarnie Lwin; Alexander Broom; Rasha Cosman; Ann Livingstone; Kate Sawkins; Phillip Good; Emma Kirby; Eng-Siew Koh; Elizabeth Hovey
Journal:  Neurooncol Pract       Date:  2014-06-25

3.  "I might not have cancer if you didn't mention it": a qualitative study on information needed by culturally diverse cancer survivors.

Authors:  Clare O'Callaghan; Penelope Schofield; Phyllis Butow; Linda Nolte; Melanie Price; Spiri Tsintziras; Ming Sze; Thida Thein; Dorothy Yiu; Shab Mireskandari; David Goldstein; Michael Jefford
Journal:  Support Care Cancer       Date:  2015-06-21       Impact factor: 3.603

4.  BE ACTIVE: an Education Program for Chinese Cancer Survivors in Canada.

Authors:  Sandy Kwong; Angela Bedard
Journal:  J Cancer Educ       Date:  2016-09       Impact factor: 2.037

5.  It's all good on the surface: care coordination experiences of migrant cancer patients in Australia.

Authors:  Joanne M Shaw; Heather L Shepherd; Ivana Durcinoska; Phyllis N Butow; Winston Liauw; David Goldstein; Jane M Young
Journal:  Support Care Cancer       Date:  2015-12-03       Impact factor: 3.603

6.  Chronic Illness Management in Culturally and Linguistically Diverse Patients: Exploring the Needs, Access, and Understanding of Information.

Authors:  Sylvie Lambert; Ekaterina Loban; Jane Li; Tracy Nghiem; Jamie Schaffler; Christine Maheu; Sylvie Dubois; Nathalie Folch; Elisa Gélinas-Phaneuf; Andréa Maria Laizner
Journal:  Qual Health Res       Date:  2021-10-12

Review 7.  Integrative Review of the Supportive Care Needs of Arab People Affected by Cancer.

Authors:  Ibrahim Alananzeh; Janelle Levesque; Cannas Kwok; Bronwyn Everett
Journal:  Asia Pac J Oncol Nurs       Date:  2016 Apr-Jun

8.  Integrative Oncology: International Perspectives.

Authors:  Suzanne J Grant; Jennifer Hunter; Dugald Seely; Lynda G Balneaves; Elio Rossi; Ting Bao
Journal:  Integr Cancer Ther       Date:  2019 Jan-Dec       Impact factor: 3.279

9.  Developing Written Information for Cancer Survivors from Culturally and Linguistically Diverse Backgrounds: Lessons Learnt.

Authors:  Georgina Wiley; Amanda Piper; A M Phyllis Butow; Penny Schofield; Fiona Douglas; Jane Roy; Linda Nolte; Michael Jefford
Journal:  Asia Pac J Oncol Nurs       Date:  2018 Jan-Mar

10.  Australian integrative oncology services: a mixed-method study exploring the views of cancer survivors.

Authors:  Jennifer Hunter; Jane Ussher; Chloe Parton; Andrew Kellett; Caroline Smith; Geoff Delaney; Eleanor Oyston
Journal:  BMC Complement Altern Med       Date:  2018-05-09       Impact factor: 3.659

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