Literature DB >> 23624619

The needs of hospitalized patients with autism spectrum disorders: a parent survey.

Kimberly Kopecky1, Sarabeth Broder-Fingert, Dorothea Iannuzzi, Susan Connors.   

Abstract

OBJECTIVE: This survey assessed the in-hospital needs of patients diagnosed with autism spectrum disorders (ASDs).
METHODS: Parents were recruited to complete a 21-item survey about the needs of their child with an ASD while in the hospital. ASD diagnosis was reported by parents at the time of the survey. The results of the survey were analyzed and evaluated in 3 distinct categories of need.
RESULTS: We documented a range of responses associated with ASD-specific needs during hospitalization. Common concerns included child safety and the importance of acknowledging individual communication methods.
CONCLUSIONS: In a population of children with ASDs, parents report a diverse range of needs while in the hospital. These data support the concept that a pragmatic assessment of individual communication and sensory differences is likely to be essential in the development of an appropriate inpatient care plan.

Entities:  

Keywords:  autism; hospitalization; inpatient; parent; survey

Mesh:

Year:  2013        PMID: 23624619     DOI: 10.1177/0009922813485974

Source DB:  PubMed          Journal:  Clin Pediatr (Phila)        ISSN: 0009-9228            Impact factor:   1.168


  9 in total

1.  A Scoping Review of Targeted Interventions and Training to Facilitate Medical Encounters for School-Aged Patients with an Autism Spectrum Disorder.

Authors:  Jennifer L Kouo; Theodore S Kouo
Journal:  J Autism Dev Disord       Date:  2021-08

2.  Perspectives of Health Care Providers Regarding Emergency Department Care of Children and Youth with Autism Spectrum Disorder.

Authors:  Lonnie Zwaigenbaum; David B Nicholas; Barbara Muskat; Christopher Kilmer; Amanda S Newton; William R Craig; Savithiri Ratnapalan; Justine Cohen-Silver; Andrea Greenblatt; Wendy Roberts; Raphael Sharon
Journal:  J Autism Dev Disord       Date:  2016-05

3.  Caregiver Insights and Improvement Strategies for Youth with Autism Undergoing Gastrointestinal Endoscopy.

Authors:  Tierney Kim; Kassandra Martinez; Breanna Lopez Cruz; Jeannie S Huang; Nicole A Stadnick
Journal:  J Autism Dev Disord       Date:  2022-02-25

4.  Working with Children with Autism Spectrum Disorder in a Medical Setting: Insights from Certified Child Life Specialists.

Authors:  Emily J Jensen; Cheryl Geisthardt; Pamela A Sarigiani
Journal:  J Autism Dev Disord       Date:  2020-01

Review 5.  Exploring patient safety outcomes for people with learning disabilities in acute hospital settings: a scoping review.

Authors:  Gemma Louch; Abigail Albutt; Joanna Harlow-Trigg; Sally Moore; Kate Smyth; Lauren Ramsey; Jane K O'Hara
Journal:  BMJ Open       Date:  2021-05-19       Impact factor: 2.692

6.  Prevalence of Decreased Sound Tolerance (Hyperacusis) in Individuals With Autism Spectrum Disorder: A Meta-Analysis.

Authors:  Zachary J Williams; Evan Suzman; Tiffany G Woynaroski
Journal:  Ear Hear       Date:  2021 Sep/Oct       Impact factor: 3.562

Review 7.  Medical Encounters for Youth With Autism Spectrum Disorder: A Comprehensive Review of Environmental Considerations and Interventions.

Authors:  Jolie Straus; Sarah Coburn; Stephanie Maskell; Jessica Pappagianopoulos; Kathryn Cantrell
Journal:  Clin Med Insights Pediatr       Date:  2019-04-29

Review 8.  Pediatric Consultation-Liaison Psychiatry: An Update and Review.

Authors:  Jessica E Becker; Joshua R Smith; Eric P Hazen
Journal:  Psychosomatics       Date:  2020-04-25       Impact factor: 2.386

Review 9.  Autism spectrum disorder and kidney disease.

Authors:  Joanna Clothier; Michael Absoud
Journal:  Pediatr Nephrol       Date:  2020-12-19       Impact factor: 3.714

  9 in total

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