Literature DB >> 23548720

Genomics for public health improvement: relevant international ethical and policy issues around genome-wide association studies and biobanks.

T Pang1.   

Abstract

Genome-wide association studies and biobanks are at the forefront of genomics research and possess unprecedented potential to improve public health. However, for public health genomics to ultimately fulfill its potential, technological and scientific advances alone are insufficient. Scientists, ethicists, policy makers, and regulators must work closely together with research participants and communities in order to craft an equitable and just ethical framework, and a sustainable environment for effective policies. Such a framework should be a 'hybrid' form which balances equity and solidarity with entrepreneurship and scientific advances. A good balance between research and policy on one hand, and privacy, protection and trust on the other is the key for public health improvement based on advances in genomics science.
Copyright © 2013 S. Karger AG, Basel.

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Mesh:

Year:  2013        PMID: 23548720     DOI: 10.1159/000341500

Source DB:  PubMed          Journal:  Public Health Genomics        ISSN: 1662-4246            Impact factor:   2.000


  4 in total

1.  Focusing attention on ancestral diversity within genomics research: a potential means for promoting equity in the provision of genomics based healthcare services in developing countries.

Authors:  Nirmala D Sirisena; Vajira H W Dissanayake
Journal:  J Community Genet       Date:  2017-07-11

2.  Increasing participation in genomic research and biobanking through community-based capacity building.

Authors:  Elizabeth Gross Cohn; Maryam Husamudeen; Elaine L Larson; Janet K Williams
Journal:  J Genet Couns       Date:  2014-09-18       Impact factor: 2.537

3.  Genomics and infectious disease: a call to identify the ethical, legal and social implications for public health and clinical practice.

Authors:  Gail Geller; Rachel Dvoskin; Chloe L Thio; Priya Duggal; Michelle H Lewis; Theodore C Bailey; Andrea Sutherland; Daniel A Salmon; Jeffrey P Kahn
Journal:  Genome Med       Date:  2014-11-18       Impact factor: 11.117

4.  Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity.

Authors:  Helena Machado; Susana Silva
Journal:  J Med Ethics       Date:  2015-07-02       Impact factor: 2.903

  4 in total

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