OBJECTIVE: To develop a comprehensive community follow-up questionnaire for participants enrolled in the Rick Hansen Spinal Cord Injury Registry (RHSCIR). DESIGN: Development and preliminary assessment of measurement properties (reliability and validity) of instruments used during a community follow-up and aligned with the International Classification of Functioning, Disability and Health (ICF). SETTING: General community setting. PARTICIPANTS: People with spinal cord injury (N=50) living in the community. INTERVENTION: Not applicable. MAIN OUTCOME MEASURES: A comprehensive follow-up questionnaire, referred to as the RHSCIR Community Follow-up Questionnaire Version 2.0 (CFQ-V2.0), includes 8 instruments. Four new instruments were developed, 2 existing instruments were modified, and 2 previously published instruments were included. RESULTS: Intra- and interrater reliability statistics (Gwet's AC1) support the measurement properties of the new and modified instruments. Correlations between new and existing instruments and between groups based on the severity of injury support the construct validity of the secondary complications and person-perceived participation instruments. CONCLUSIONS: The RHSCIR CFQ-V2.0 is a comprehensive community follow-up questionnaire that aligns to the ICF. Initial study results suggest that it covers all relevant aspects of community living, and the measurement properties are promising.
OBJECTIVE: To develop a comprehensive community follow-up questionnaire for participants enrolled in the Rick Hansen Spinal Cord Injury Registry (RHSCIR). DESIGN: Development and preliminary assessment of measurement properties (reliability and validity) of instruments used during a community follow-up and aligned with the International Classification of Functioning, Disability and Health (ICF). SETTING: General community setting. PARTICIPANTS: People with spinal cord injury (N=50) living in the community. INTERVENTION: Not applicable. MAIN OUTCOME MEASURES: A comprehensive follow-up questionnaire, referred to as the RHSCIR Community Follow-up Questionnaire Version 2.0 (CFQ-V2.0), includes 8 instruments. Four new instruments were developed, 2 existing instruments were modified, and 2 previously published instruments were included. RESULTS: Intra- and interrater reliability statistics (Gwet's AC1) support the measurement properties of the new and modified instruments. Correlations between new and existing instruments and between groups based on the severity of injury support the construct validity of the secondary complications and person-perceived participation instruments. CONCLUSIONS: The RHSCIR CFQ-V2.0 is a comprehensive community follow-up questionnaire that aligns to the ICF. Initial study results suggest that it covers all relevant aspects of community living, and the measurement properties are promising.
Authors: Jordan W Squair; Amanda H X Lee; Zoe K Sarafis; Geoff Coombs; Otto Barak; Jacquelyn J Cragg; Tanja Mijacika; Renata Pecotic; Andrei V Krassioukov; Zoran Dogas; Zeljko Dujic; Aaron A Phillips Journal: Neurology Date: 2019-11-06 Impact factor: 9.910
Authors: Jennifer A Locke; Blayne Welk; Andrew Macnab; Carly S Rivers; Dilnur Kurban; Mark Nigro; Lynn Stothers Journal: Spinal Cord Date: 2019-07-09 Impact factor: 2.772
Authors: M Arora; L A Harvey; L Lavrencic; J L Bowden; L Nier; J V Glinsky; A J Hayes; I D Cameron Journal: Spinal Cord Date: 2015-07-21 Impact factor: 2.772
Authors: Chelsea A Pelletier; Frédéric S Dumont; Jean Leblond; Luc Noreau; Lora Giangregorio; B Catharine Craven Journal: Top Spinal Cord Inj Rehabil Date: 2014
Authors: R Andrew Glennie; Juliet Batke; Nader Fallah; Christiana L Cheng; Carly S Rivers; Vanessa K Noonan; Marcel F Dvorak; Charles G Fisher; Brian K Kwon; John T Street Journal: J Neurotrauma Date: 2017-05-18 Impact factor: 5.269