Gavin Daker-White1, Julie Greenfield, John Ealing. 1. Centre for Primary Care, Institute of Population Health, 5th Floor, Williamson Building, University of Manchester, Oxford Road, Manchester M13 9PL, United Kingdom. Electronic address: gavin.daker-white@manchester.ac.uk.
Abstract
OBJECTIVE: An exploratory study to examine specialist neurological physiotherapy service provision and utilisation for people with progressive ataxia. DESIGN: Qualitative study involving thematic analysis of accounts in semi-structured interviews with physiotherapists and patients. SETTING: People with ataxia and specialist neuro-rehabilitation physiotherapists in Greater Manchester, UK. PARTICIPANTS: 38 people with ataxia and 8 neurological-physiotherapists working in academic and hospital and community-based services in NHS and private settings. Recruiting physiotherapists experienced in working with the patient group was a challenge. INTERVENTIONS: One hour cross-sectional semi-structured interview at physiotherapists' workplaces or in patients' own homes. RESULTS: Neurological physiotherapy was experienced by 25 (66%) of the 38 people with ataxia. The overarching themes emerging from the analysis were 'making a difference,' engagement and service provision. A majority of both samples felt that services should be organised so as to provide longer term therapy and support that goes beyond short care packages followed by provision of home exercise programme. Engagement with services was linked to patient expectations, adherence and perception of outcomes. The most predominant codes in the data set were encapsulated by the theme 'making a difference,' which further included concerns about how to measure perceived clinical improvement (as experienced by patients) in the context of progressive decline. CONCLUSIONS: The findings suggest a model of idealised service provision involving a holistic, open-access service including research efforts to improve the evidence base. Special attention needs to be paid to measuring improvements following therapy.
OBJECTIVE: An exploratory study to examine specialist neurological physiotherapy service provision and utilisation for people with progressive ataxia. DESIGN: Qualitative study involving thematic analysis of accounts in semi-structured interviews with physiotherapists and patients. SETTING: People with ataxia and specialist neuro-rehabilitation physiotherapists in Greater Manchester, UK. PARTICIPANTS: 38 people with ataxia and 8 neurological-physiotherapists working in academic and hospital and community-based services in NHS and private settings. Recruiting physiotherapists experienced in working with the patient group was a challenge. INTERVENTIONS: One hour cross-sectional semi-structured interview at physiotherapists' workplaces or in patients' own homes. RESULTS: Neurological physiotherapy was experienced by 25 (66%) of the 38 people with ataxia. The overarching themes emerging from the analysis were 'making a difference,' engagement and service provision. A majority of both samples felt that services should be organised so as to provide longer term therapy and support that goes beyond short care packages followed by provision of home exercise programme. Engagement with services was linked to patient expectations, adherence and perception of outcomes. The most predominant codes in the data set were encapsulated by the theme 'making a difference,' which further included concerns about how to measure perceived clinical improvement (as experienced by patients) in the context of progressive decline. CONCLUSIONS: The findings suggest a model of idealised service provision involving a holistic, open-access service including research efforts to improve the evidence base. Special attention needs to be paid to measuring improvements following therapy.
Authors: W Ilg; A J Bastian; S Boesch; R G Burciu; P Celnik; J Claaßen; K Feil; R Kalla; I Miyai; W Nachbauer; L Schöls; M Strupp; M Synofzik; J Teufel; D Timmann Journal: Cerebellum Date: 2014-04 Impact factor: 3.847
Authors: Jennifer J Carr; Joyce Lalara; Gayangwa Lalara; Gloria O'Hare; Libby Massey; Nick Kenny; Kate E Pope; Alan R Clough; Anne Lowell; Ruth N Barker Journal: PLoS One Date: 2019-03-11 Impact factor: 3.240
Authors: Jennifer J Carr; Joyce Lalara; Gayangwa Lalara; Moira Smith; Jennifer Quaill; Alan R Clough; Anne Lowell; Ruth N Barker Journal: BMJ Open Date: 2019-09-30 Impact factor: 2.692
Authors: Giuseppe Lanza; Jacopo Antonino Casabona; Maria Bellomo; Mariagiovanna Cantone; Francesco Fisicaro; Rita Bella; Giovanni Pennisi; Placido Bramanti; Manuela Pennisi; Alessia Bramanti Journal: J Int Med Res Date: 2019-09-20 Impact factor: 1.671