Literature DB >> 23428177

The haystack is made of needles.

Sharon F Terry1, Robert Shelton, Greg Biggers, Dixie Baker, Kelly Edwards.   

Abstract

Mesh：

Year:  2013        PMID： 23428177     DOI： 10.1089/gtmb.2012.1542

Source DB:  PubMed          Journal:  Genet Test Mol Biomarkers        ISSN： 1945-0257


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  13 in total

Review 1.  Benefits and Risks of Sharing Genomic Information.

Authors:  Dhikshitha Balaji; Sharon F Terry
Journal:  Genet Test Mol Biomarkers       Date:  2015-11-20

2.  Testing an online, dynamic consent portal for large population biobank research.

Authors:  Daniel B Thiel; Jodyn Platt; Tevah Platt; Susan B King; Nicole Fisher; Robert Shelton; Sharon L R Kardia
Journal:  Public Health Genomics       Date:  2014-10-30       Impact factor: 2.000

3.  Research participants' attitudes towards the confidentiality of genomic sequence information.

Authors:  Leila Jamal; Julie C Sapp; Katie Lewis; Tatiane Yanes; Flavia M Facio; Leslie G Biesecker; Barbara B Biesecker
Journal:  Eur J Hum Genet       Date:  2013-11-27       Impact factor: 4.246

4.  Community perspectives on public health biobanking: an analysis of community meetings on the Michigan BioTrust for Health.

Authors:  Daniel B Thiel; Tevah Platt; Jodyn Platt; Susan B King; Sharon L R Kardia
Journal:  J Community Genet       Date:  2013-07-27

5.  Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons.

Authors:  Patricia A Deverka; Dierdre Gilmore; Jennifer Richmond; Zachary Smith; Rikki Mangrum; Barbara A Koenig; Robert Cook-Deegan; Angela G Villanueva; Mary A Majumder; Amy L McGuire
Journal:  J Law Med Ethics       Date:  2019-03       Impact factor: 1.718

Review 6.  Research participants' perceptions and views on consent for biobank research: a review of empirical data and ethical analysis.

Authors:  Flavio D'Abramo; Jan Schildmann; Jochen Vollmann
Journal:  BMC Med Ethics       Date:  2015-09-09       Impact factor: 2.652

7.  Governance Through Privacy, Fairness, and Respect for Individuals.

Authors:  Dixie B Baker; Jane Kaye; Sharon F Terry
Journal:  EGEMS (Wash DC)       Date:  2016-03-31

8.  Disease advocacy organizations catalyze translational research.

Authors:  Sharon F Terry
Journal:  Front Genet       Date:  2013-06-04       Impact factor: 4.599

9.  Revisiting respect for persons in genomic research.

Authors:  Debra J H Mathews; Leila Jamal
Journal:  Genes (Basel)       Date:  2014-01-22       Impact factor: 4.096

10.  A human rights approach to an international code of conduct for genomic and clinical data sharing.

Authors:  Bartha M Knoppers; Jennifer R Harris; Isabelle Budin-Ljøsne; Edward S Dove
Journal:  Hum Genet       Date:  2014-02-27       Impact factor: 4.132
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