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Literature DB >> 23427242

Caught in the web: informed consent for online health research.

Effy Vayena¹, Anna Mastroianni, Jeffrey Kahn.

Abstract

A context-specific approach to informed consent for Web-based health research can facilitate a dynamic research enterprise and maintain the public trust.

Mesh：

Year: 2013 PMID： 23427242 DOI： 10.1126/scitranslmed.3004798

Source DB: PubMed Journal: Sci Transl Med ISSN： 1946-6234 Impact factor: 17.956

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Cited

18 in total

1. The dynamics of big data and human rights: the case of scientific research.

Authors: Effy Vayena; John Tasioulas
Journal: Philos Trans A Math Phys Eng Sci Date: 2016-12-28 Impact factor: 4.226

2. Opinion: Learning as we go: lessons from the publication of Facebook's social-computing research.

Authors: Jeffrey P Kahn; Effy Vayena; Anna C Mastroianni
Journal: Proc Natl Acad Sci U S A Date: 2014-09-12 Impact factor: 11.205

3. Feasibility and Preliminary Efficacy of an Internet Support Group for Parents of a Child with Neurofibromatosis Type 1: a Pilot Study.

Authors: S Martin; M C Roderick; R Lockridge; M A Toledo-Tamula; A Baldwin; P Knight; P Wolters
Journal: J Genet Couns Date: 2016-11-07 Impact factor: 2.537

4. Dementia Prevention: optimizing the use of observational data for personal, clinical, and public health decision-making.

Authors: Penny A Dacks; Sandrine Andrieu; Deborah Blacker; Aaron J Carman; Allan M Green; Francine Grodstein; Victor W Henderson; Bryan D James; Rachel F Lane; Joseph Lau; Pei-Jung Lin; Barnaby C Reeves; Raj C Shah; Bruno Vellas; Kristine Yaffe; Karin Yurko-Mauro; Diana W Shineman; David A Bennett; Howard M Fillit
Journal: J Prev Alzheimers Dis Date: 2014-02

Caught in the web: informed consent for online health research.

1. The dynamics of big data and human rights: the case of scientific research.

2. Opinion: Learning as we go: lessons from the publication of Facebook's social-computing research.

3. Feasibility and Preliminary Efficacy of an Internet Support Group for Parents of a Child with Neurofibromatosis Type 1: a Pilot Study.

4. Dementia Prevention: optimizing the use of observational data for personal, clinical, and public health decision-making.

Review 5. Recruitment and Trial-Finding Apps-Time for Rules of the Road.

6. Health Research with Big Data: Time for Systemic Oversight.

Review 7. Challenges and opportunities of digital health in a post-COVID19 world.

8. Challenges of web-based personal genomic data sharing.

9. Ethical challenges of big data in public health.

10. Revisiting respect for persons in genomic research.